@CFstruggles

Uncovering the daily struggles of Cystic Fibrosis patients everywhere

cff.org/
Joined November 2015
  • Tweets147
  • Following0
  • Followers528
27Media
CF Struggles retweeted
cf/Aware@CFAware27 Aug 2017
People with CF and Parents/Carers! What is your/your child's average WEEKLY adherence to CF treatments (physio and meds)? Please RT!
55%80% - 100%
24%60% - 80%
11%40% - 60%
10%Less than 40%
529 votes • Final results
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Vest probs: watching Netflix at max volume & still needing subtitles
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Yes, hello, I'd like a refund on my body...it's kinda defective and really expensive
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Very cool #GoT themed organ donation awareness! via @Reborntobealive
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Ummmm yeah and I didn't choose to have bum lungs, a dysfunctional pancreas, & jank intestines, but hey, whatcha gonna do? xitter.cf/kardashianreact/status…
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Yes, yes I did just celebrate weight gain with more food
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Wearing hospital masks in public:
55%Badass
45%Embarrassing
29 votes • Final results
Thriving with disfunctional organs
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I feel like a walking margarita when my sweat dries
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The actual devil in liquid form
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I 👏🏼know👏🏼I'm👏🏼an👏🏼adult👏🏼 I 👏🏼still👏🏼want👏🏼butterfly👏🏼needles👏🏼for👏🏼my👏🏼blood👏🏼draws👏🏼
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We mourn the loss of Don Baylor, a champion in the fight against CF. Read about Baylor's work with the Foundation: on.cff.org/2vBxjkF
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Waking up early... staying up late... to do treatments
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Pills? Shots? Needles? IV antibiotics? Tube feeds? X-rays? Cat scans? MRIs? Surgery? Physical therapy? Pshhhh....
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Who else is paranoid that someone is calling your name during treatments?
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Hour 18 is a special one as Harry #CFWarrior Robson has an amazing dad cycling 250 miles to meet us at the finish line #24hrs4cf #Team24
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When you skip a treatment to go out with your friends
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That stressful moment when you can't remember if you already took your pills or not
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Ready. Set. GO. 🏆
43%Picc line
57%Port
42 votes • Final results
Shoutout to all of our CF Fighters 💪🏻 We know no battle is too small, and we're here to say we're proud of YOU.
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