CF NSW

Attn. all CFNSW members. The deadline to send in your proxy/consent forms for the upcoming CFvic merger meeting is March 28th. Thanks! – at Canberra, Australian Capital Territory

New parking concessions for frequent hospital visits are being rolled out :) dailytelegraph.com.au/news/n…

What do I do when I go to to Australia for work. Find a CF walk. #curecf #65k465roses 📷: @sluggers09

Team Leash claiming their territory at the @65K_4_65Roses Walkathon. Welcome back team! #65kroses #teamLeash – at Sydney, New South Wales

Team Libby and Kenzie powering through the 65k 4 65 Roses Walkathon 👏 #65kroses #cf #walkforcf

Ruby and Co. doing the rounds at the @65K_4_65Roses Walkathon ^_^ #65kroses

The brave souls about to kick off the 65km @65K_4_65Roses Walkathon. Good luck guys! #65kroses #cf

And the offical registration # for the @65K_4_65Roses Walkathon is 1156! You can still register on the day, visit 65kroses.com – at Canberra, Australian Capital Territory

Online registrations for Saturday's @65K_4_65Roses Walkathon are closing MIDNIGHT TOMORROW (Wednesday). Register at 65kroses.com – at Canberra, Australian Capital Territory

We're looking volunteers to help out at the @65K_4_65Roses Walkathon this Sat Feb 25th. If you're keen, contact us via events@cfnsw.org.au

Great wrap of yesterday's #cfprotest in Canberra. Thanks to everyone involved! #WeNeedOrkambi facebook.com/WINNewsCanberra… – at Canberra, Australian Capital Territory

Sonia Marshall with her daughter Evie who desperately needs life-saving drug #Orkambi to treat cystic fibrosis #WeNeedOrkambi #auspol – at Canberra, Australian Capital Territory

Central Coast Federal Member @Emma4Dobell and CEO's of Cystic Fibrosis AUS/NSW supporting the #CFprotest for #Orkambi in Canberra. #auspol – at Canberra, Australian Capital Territory

Senator Derryn Hinch @HumanHeadline and @Lozza_Rozza supporting the Protest for #Orkambi at Parliament House. Thanks! #auspol #CFprotest – at Canberra, Australian Capital Territory

.@GregHuntMP announcing #Kalydeco will be FREE & immediately available for those aged 2-5, with PBS listing from 1st May! #CFprotest #auspol – at Canberra, Australian Capital Territory

Life saving #Orkambi drug costs $4,000 per week, we need to change that! #weNeedOrkambi Latest snaps from Parliament House protest #auspol – at Canberra, Australian Capital Territory

Latest announcement from @CFAustralia regarding #Kalydeco. Amazing team effort by everyone👏 #WeNeedOrkambi bit.ly/2kdZMXB

Make some noise people! 📢 Our amazing fundraisers have just raised over $100,000 for the @65K_4_65Roses Walkathon! 65kroses.com

Baby animals, icecream truck, live music & more! Here's what you can expect at @65K_4_65Roses Walkathon createsend.com/t/i-99480066E… #65kroses

Some of the masterpieces taking shape at Castles in the Sand festival at New Port beach, right next to the #barefootBall #sandCastles – at Newport, Sydney