The South Carolina chapter of the @CF_Foundation raises funds through special events and other campaigns to advance the search for a cure for cystic fibrosis.

Charleston, SC
Joined March 2009
This is what #CysticFibrosis actually looks like. These are the real heroes, the real warriors fighting every single day. If you are inspired by them please consider donating to @clairewineland & or @CF_Foundation. Together we can raise enough awareness & funds & #curecf.
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This week, volunteers from the #cysticfibrosis community will storm D.C. for March on the Hill! You can help make the voice of the CF community heard: Get involved and learn how you can participate in our Online Day of Action. #CFadvocacy on.cff.org/2SECWpS
Did you know? In 2018, the Foundation enabled 64 multicenter clinical trials, more than doubling the number of trials from just six years ago. #CFresearch
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First stop with @CFF_SC ! So honored & grateful for this support we can give! 🙏🏻 here’s to finding a cure!
We’ll be sharing live updates 10/18 – 10/20 from the 32nd annual North American Cystic Fibrosis Conference! Follow #NACFC for all our coverage from the conference. #CFresearch
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We hope everyone has a safe, healthy, and happy #LaborDay!
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As a member of Community Voice, you can have an active say in programs and initiatives that affect everyone in the #cysticfibrosis community. Make your voice heard, and learn more about joining today! on.cff.org/2LbDyiS
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Heading off to college? Check out 1️⃣0️⃣ tips from Ana Alford, an adult with #cysticfibroisis in her second year of law school, on finding balance while at school. on.cff.org/2PfPvaI
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Deciding to get a transplant can be one of the most difficult decisions for people living with #cysticfibrosis and their families. Register today to connect and learn from others who made the decision at CF MiniCon: Transplant. on.cff.org/2OAF6W3
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Exciting news for the #cysticfibrosis community! Today, the @US_FDA approved lumacaftor/ivacaftor (Orkambi) for children living with CF ages 2 to 5 who have two copies of the most common CF gene mutation, F508del. #CFresearch on.cff.org/2MsKkm3
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Whether she's your sister or your cyster, don't forget to celebrate your sisterhood on #NationalSistersDay!
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Going to the gym or heading outside this weekend? Don't forget to drink plenty of fluids and stay hydrated! on.cff.org/2MfcTDm
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Promising phase 2 clinical trial results announced today for acebilustat, a potential anti-inflammatory drug for people living with #cysticfibrosis. #CFresearch on.cff.org/2M9AqWa
Traveling when you have #cysticfibrosis often comes with unexpected hiccups. Clay Pickering, an adult living with CF, shares how on his first international trip, his port landed him in trouble with airport security. on.cff.org/2v6Nsxp
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Preparing for a #transplant is overwhelming -- from meeting new doctors, to learning medical lingo, & more. Talk to others with CF to get a better understanding of the pre- and post-transplant process by joining us for CF MiniCon: Transplant! on.cff.org/2v4TYUq
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On the 30th anniversary of #GreatStrides, we celebrate the milestones we have achieved thanks to our volunteers and sponsors: AbbVie, AllianceRX/Walgreens Prime, Genentech, Gilead, Novartis, and Vertex. Thank you for all you do to bring us closer to a cure for #cysticfibrosis!
Spending time outdoors this summer? Lee Degiorgio, an adult living with #cysticfibrosis, shares his top 5️⃣ tips for staying hydrated and healthy in the heat. ☀️ on.cff.org/2LcoId0
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Happy #FourthofJuly! We wish everyone a happy, safe, and healthy holiday. 🎆
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"We are aggressively pursuing the most innovative and exciting research opportunities, like gene editing, and leaving no stone unturned so that one day people with #cysticfibrosis can say, 'I used to have CF.'" -Dr. Preston Campbell #CFadvocacy
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Going to the gym this weekend? Check out 6 tips for staying healthy and safe during your workout. on.cff.org/2JYUM7r
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