Connecting young adults with Inflammatory Bowel Diseases around the world! Supported by @HelmsleyTrust 💥 100% young adult IBD patient-led!

🌍 Global
Joined November 2015
Hey #GITwitter & #AIBD2024 attendees! Come find us at the CCYAN booth TODAY to get a pin & to chat more about our new clinician-facing resources 💜💛 ➡️ccyanetwork.org/clinicians
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Crohn's and Colitis Young Adults Network retweeted
Akhil and Maalvika - members of the IBD India community and @CCYANetwork fellows are speaking at the 2025 conference of Generation Mental Health @GenMHTeam Akhil also recently spoke at IBD 2025 conference of @CCF_IN along with Aiswarya - another @CCYANetwork Fellow.
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Crohn's and Colitis Young Adults Network retweeted
Akhil & Aiswarya - our community members and 2025 @CCYANetwork Fellows spoke at @CCF_IN IBD 2025 conference during a multi-stakeholder discussion centered around patient-centered care.
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Crohn's and Colitis Young Adults Network retweeted
Introducing a resource guide to creating authentic peer-support spaces for young adult patients! 🔗 Explore the toolkit here: bit.ly/ps-toolkit #PeerSupport #ChronicIllness #MentalHealthAwarenessMonth
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“Living with the #IBD means battling symptoms that others can’t see. It is a constant storm...” ➡️ Read “Battling an invisible illness while everyone else plays ‘doctor,’” by Bamlak Alebel : ccyanetwork.org/news/battlin…
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Crohn's and Colitis Young Adults Network retweeted
Grateful to present our @SMCH_IBD_Celiac #IBDRISE study at @DDWMeeting! Prev lit shows ⬆️ self-efficacy correlates with better transition to adult care & ⬆️ #psychosocial outcomes. Our study suggests #PeerSupport interventions like IBD RISE can be 🔑 to improving care in #PedsIBD
IBD RISE community intervention for kids with IBD to improve measures of resilience and self-efficacy. Great job by MS Amy Bugwadia #DDW2025
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Crohn's and Colitis Young Adults Network retweeted
We're back with one of our favorite dietitians, to talk about binge eating and avoidant/restrictive eating, with the context of current lifestyles and chronic conditions like IBD, amongst young adults.
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Crohn's and Colitis Young Adults Network retweeted
What can AI do for #IBD? From faster diagnosis to flare prediction, drug discovery, and personalized care—AI is reshaping how we understand and manage inflammatory bowel disease. @MccutchenDr @AmCollegeGastro @CrohnsColitisFn Wanna know more about it 👇 crohnscolitisfoundation-org.…
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“…this journey gives you the resilience, endurance, and wisdom that no exams or university education can ever give you. Once you harness this energy, then the sky is your limit.” 🕊️ - Aiswarya Asokan 🔗Read more: ccyanetwork.org/news/sky-als… #IBD #SouthIndia #ChronicIllness
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“#IBD can be a very energy-consuming, exhausting disease and we are resilient for making it through the day, however that might look!” 🙌 -Lexi Hanson Get to know one of our 2025 CCYAN fellows, Lexi from Missouri! 🔗 ccyanetwork.org/news/get-to-…
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Take a look at this infographic by ‘25 fellow and teacher with #IBD, Kaitlyn Niznik! It includes tips & info on accommodations for teachers & students managing chronic illness in school or the workplace.📚🍎 #504Plan #IPE #Accommodations 🔗ccyanetwork.org/news/potenti…
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Meet Akhil Shridhar, one of our 2025 Fellows from India!! 🎉 Akhil is a software developer who was diagnosed with #CrohnsDisease while pursuing a Bachelor's degree in Chemical Engineering at Manipal Institute of Technology, Manipal. 🔗Read More: ccyanetwork.org/news/get-to-…
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"#IBD is a rare chronic illness, but from a disability perspective, it remains invisible. As a result, the pain and struggles of an IBD patient often go unnoticed…” -Rifa Tusnia Mona Get to know one of our 2025 CCYAN fellows, Rifa from Bangladesh! 🇧🇩 🔗 ccyanetwork.org/news/get-to-…
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“To those fighting this invisible battle, I want you to know that your struggles do not define your capabilities.” 💪💛 Read more of “Winds of Perseverance: The Crohn's Chronicles” by ‘25 fellow Rifa Tusnia Mona here: ccyanetwork.org/news/winds-o… #IBD #CrohnsDisease
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2025 Fellow Lexi Hanson offers a compelling look into the challenges of living with #IBD, the importance of recognizing invisible disabilities, & how the IBD #Disability Index aims to validate patient experiences and improve care. 🔗Read more: ccyanetwork.org/news/disabil…
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“Chronic conditions not only impact our physical health but also our identities, relationships, and goals, making the process of adjusting and coping essential.” Read more from “#IBD and Grief” by ‘25 Fellow Akhil Shridhar: ccyanetwork.org/news/ibd-and… #MentalHealth #ChronicIllness
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Crohn's and Colitis Young Adults Network retweeted
🎙️I had a heartfelt conversation with Rachel Bee, a 17-year-old with #Crohns who is getting things done and advocating for young people through her company, Infusion Hero. You can hear her inspiring journey and innovative spirit on #AboutIBDPodcast! 🌟 bit.ly/AIBD172
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“…living with a condition that people can’t see when they look at me made me even more aware of the fact that you never truly know what somebody might be going through.” - Alexis Gomez, ‘25 Fellow 💜 🔗Read more about Alexis in her Q&A here: ccyanetwork.org/news/get-to-…
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Crohn's and Colitis Young Adults Network retweeted
Young adults should be recognized as a distinct demographic in research. We’re committed to pushing for greater data disaggregation for all young adult patients—not only in IBD, but across all disease groups. #HealthEquity #ClinicalResearch
Research often lumps young adults into the 18–65 age group, ignoring crucial developmental and physiological differences. This leads to misguided treatment decisions and missed chances to improve long-term outcomes for conditions like #IBD. Read more: sciencedirect.com/science/ar…
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Research often lumps young adults into the 18–65 age group, ignoring crucial developmental and physiological differences. This leads to misguided treatment decisions and missed chances to improve long-term outcomes for conditions like #IBD. Read more: sciencedirect.com/science/ar…
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