A 501(c)3 organization dedicated to raising awareness, funds, and family support for congenital central hypoventilation syndrome (CCHS), a rare orphan disease.
www.cchsnetwork.org
Joined September 2011
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The 9th Annual International CCHS Day is exactly one month away. Let your light shine for our rare disease on September 23rd and help guarantee a brighter future for our community! For full details, click on the link in bio or go to cchsnetwork.org/cchs-day-202….
Tomorrow is CCHS Day! Please help us deliver a unified message of advocacy by posting the following image on your social media accounts. #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Ck1siiRJdJ9/…
Just in time for CCHS Day 2022, our redesigned website is now LIVE! #cchsnetwork #castalightoncchs #cchsday2022
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZyVfsuQbX/…
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZvkqIOyAM/…
Two weeks from today…CCHS Day 2022!!! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/CkTa-W7OIX_/…
Bonfire Glow-In-The-Dark Shirts, Sweatshirts and Onesies: bonfire.com/store/cchs/
CCHS Firefly Pin: cchsnetwork.org/buy-your-fir…
#cchsnetwork #cchsday2022 #castalightoncchs
We’re casting a light on our happy little camper, Abby! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Cj0H1jLO9_7/…
The CCHS Network is excited to launch our new logo and brand. Go to cchsnetwork.org for more information and to learn about CCHS Day 2022 happening on November 12th (including the sale of shirts and pins). #cchsnetwork #castalightoncchs #cchsday2022
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Happy CCHS Day! Watch our call to action video below, and post your own wave videos, or tag a friend for the #jointhewaveforcchs challenge. Go to cchsnetwork.org to donate and learn more about this heartbreaking disease
