@CARE_PF

Official account for the Canadian Registry for Pulmonary Fibrosis (CARE-PF) - prospective, multi-centre 🇨🇦 registry for pts w/ interstitial lung disease

 Vancouver, British Columbia
Joined October 2022
  • Tweets27
  • Following137
  • Followers168
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Excited to bring @CARE_PF to the world of Twitter!! Stay tuned for fantastic research performed by our #ILD clinicians & scientists working across Canada to #CurePF @KerriBerriKerri @agrantorser @gilliangoobie @jolenehfisher @veronicasam940 @shapps999 & more!
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Excited to share our paper “Treatment of rheumatoid arthritis-associated interstitial lung disease in a multi-center registry cohort” @CARE_PF @kerriberrikerri @d_slok @jolenehfisher @shapps999 @gilliangoobie @usask_OVDR #ILD jtd.amegroups.com/article/vi… Journal of Thoracic Disease
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Myth-busting BAL in ILD! Come by hall E to learn more - BAL lymphocytosis not correlated to HRCT GGO 😱 @KerriBerriKerri #ATS2023 #curePF
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Great to have Chris Ryerson come and deliver the MTW Seminar today. imperial.ac.uk/mtw-centre-fi… Fantastic to hear about the success of @CARE_PF @KerriBerriKerri
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Data from ⁦@CARE_PF⁩ showing broadly similar disease trajectories regardless of aetiology. #lump or #split? #NIMILD2023
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Thanks @EnvirHealthNews for highlighting our @JAMAInternalMed manuscript & for helping to make our findings accessible to a general audience! Our pts deserve #CleanAirNow & clinicians, scientists, pts, & communities can partner to achieve this goal! ehn.org/respiratory-diseases… – at Richmond, British Columbia

Tiny particles of air pollution appear more deadly if from human-made sources

ehn.org
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We are strapped in and ready to go!!!
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For #ManuscriptMonday we'd like to highlight @CARE_PF work in @journal_CHEST 2019 by Mohmmed Algamdi, @Mo_Safavi, @jolenehfisher, @KerriBerriKerri, @AndrewHalayko, Chris Ryerson, & others not on Twitter demonstrating workplace productivity loss in pts with #fILD. 1/
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What do we need to do? -Engage pts about financial & emplyment situation. Are they able to meet basic needs? -Target better Sx control in pts to give them best chance of functionality -Engage policymakers & funders on social cost of fILDs to encourage ⬆️ research to #CurePF fin/
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Meant to also include @shapps999 on list of @CARE_PF authors on Twitter too!
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We want to help people affected by pulmonary fibrosis around the 🌎 and find effective 💊 faster. 🗓️ 1st November 7pm UK time: Free online education event. 🚨Register now. Bring ☕ & 🍰& 💻! actionpf.org/news/www-action…
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📣 Is your life affected by pulmonary fibrosis (lung scarring)? 🗓️ 1st November 7pm UK time. FREE Online Event 💻 REGISTER now to find out how we are planning to find effective treatments faster. Everyone is welcome 🤗 actionpf.org/news/www-action… #curepf #remap_ild
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@CARE_PF Director Chris Ryerson presenting amazing work at #CRRN on detailed clinical phenotyping of fibrotic #ILD by #CAREPF team Drs. Daniel Marinescu & others. We can’t wait for the publication!
Don Sin@donsin421 Oct 2022
Chris Ryerson presents an update on ILD (#carepf) ⁦@CanRespirResNet⁩ ⁦@HLIStPauls⁩
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@CanRespirResNet - thanks for supporting our research!
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And lastly, I owe a huge debt of gratitude to the patients who participated in @Simmons_ILD @PFFORG @CARE_PF registries, without whom none of this work would be possible. You are truly the driving force behind our work to #CurePF & establish #CleanAir & #SafeEnvironments for all!
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#MedTwitter Giving lecture 2 PrimaryCar tomoz about #ILD Key messages will b: 1: There is more of it than u think 2: Early diagnosis protects lung function 3: Identify & mitigate risk factors 4: Recognise & manage co-morbidities Anything else? @ActionPFcharity @EU_IPFF @CARE_PF
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