Proud father of twin boys, Wylder and Oakley,who have a rare genetic disease ABCA3. AAV therapy for a cure! https://xitter.cf/t.co/KixBLXxquv

Canada
Joined May 2010
Thank goodness for the reminder @TheWiggles
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Warning to others: do not accept a discount from @StubHub if there's an issue with your tickets!! They'll use it to claim "nothing further can be done" even if they screwed up your showtime. Learn from my mistake. #StubHub #CustomerServiceNightmare #ConsumerRights #StubHubSucks
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If you've been effed around by #StubHub you're not alone! I've been negotiating to get the proper tickets for the proper showtime I purchased, and to no avail, I have been left with tickets to a show I can't attend. #Fanprotect , my ass!! #gaslight @stubhub @stubhubsupport
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Noah, I want to say, without sounding too dramatic, but for all the music I've listened to in my 44 years on this planet—from Tupac and Neil Young to Nirvana ,Billy Joel and back—I've never had an artist hit me in the feels with as many songs as you do. Thank you🤘 @NoahKahan
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The AAVengers retweeted
🚨 BREAKING: RCMP have told Katie Pasitney of Universal Ostrich Farm that if she doesn't voluntarily leave the ostrich pen that she, and anyone else in the pen, will be arrested and removed from the property It's the 11th hour. Once the family is removed, the slaughter can begin. We need a miracle, please share widely! – at Canada
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These fights were good until the main card. #meatblanket #UFC319
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Panthers may have won The Cup, but Oilers have the cutest fans!! 💙🧡 Dear @EdmontonOilers, our family loves you, and hope we can bring our boys to watch a game IN PERSON next season!! 🔗: WylderAndOakleyFoundation.or… #cureWylderAndOakley #edmontonoilers #edmonton #oilers #stanleycupplayoffs
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9 months of love, strength, and the sweetest twin snuggles 👶🏼🩵👶🏼 9 months of fighting harder than most ever will, and defying the odds and showing us what true strength looks like. We’ve learned to celebrate the tiniest victories, to hold hope tighter than fear, and to find joy even in the hardest moments. 9 months isn’t just a milestone. It’s a testament to resilience. To love. To the power of community. And to the two bravest little warriors we know. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents
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This week is Mental Health Awareness Week. Here’s some quick reminders 🧠 🌞 It’s ok to be struggling ✨ Your feelings are always valid ☁️ Progress isn’t always clear 🌈 You’re stronger than you think 💓 It’s ok to ask for help 💎 Small steps lead to to big changes 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents
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This song is unapologetically amazing!!! The only thing I'm upset about is we have to wait til August for the whole album. Love it, guys!!
New album ALIENATION drops August 22! 🔥👤 3DG.lnk.to/Alienation Listen to our new single “Apologies” now ☕️🚬💊 3DG.lnk.to/Apologies
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$80,000 has been raised on our GoFundMe page 🙌✨ Our goal is $3,000,000 - with your support and donations, we can make it happen! Share our GoFundMe, spread the word, and rally with us as we fight to find a cure for Wylder, Oakley, and everyone battling ABCA3. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #hospital #albertachildrenshospital #achfkids #twins #twinboys #twinbrothers #familyoffour #gofundme
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WOW! 1,000 followers on our Instagram page is SUCH a huge accomplishment 👏🩵 We couldn’t have done it with all of you, by sharing the GoFundMe link, and for sharing and engaging in all of our videos and photos that we post here. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents
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DO OUR TWINS LOOK LIKE MOM OR DAD MORE?! Let us know in the comments ⬇️ Do our twin boys Wylder and Oakley look more like mom (Stacey) or dad (Graham) ? 🔗: WylderAndOakleyFoundation.or…
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Two peas in a pod 🫛 This photo was taken back in November, back when our boys were around 3 months old. Now they are 7 months old, growing, and we’re really seeing both boys connect with more of their toys 🧸 Twice the work some would say, but having twins is also twice the love, and our hearts feel like it’s grown twice as big 🩵 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #hospital #albertachildrenshospital #achfkids #twins #twinboys #twinbrothers
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One of our greatest wishes came true! 🩵 After 193 days, we got to take our sweet Wylder home for the very first time. Leading up to this moment, we experienced so many emotions — fear, doubt, and helplessness, but also excitement, extreme joy, and high hopes. Setting up his nursery was one of the hardest yet most beautiful things we did, not knowing if we would ever get to bring him home. We waited until the very last minute to do it. Waking up under the same roof as a family of four was something we dreamed of for 6.5 long months. We will fight and work towards what once felt unimaginable, doing everything we can to keep our baby boy here with us to enjoy this life on earth. Our hearts are full of hope that he will overcome this disease with the help of our incredible team working on a gene therapy for ABCA3. We want to thank every one of the medical professionals at Foothills and Alberta Children’s Hospital who have helped keep our little guy with us to this point. He wouldn’t be here without you, and for that, we are eternally grateful. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents #NICU
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WOW! 10,000 followers on our Facebook page is SUCH a huge accomplishment 👏🩵 We couldn’t have done it with all of you, by sharing the GoFundMe link, and for sharing and engaging in all of our videos and photos that we post here. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents
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We’re geared up for the Battle of Alberta! 💙⚡️🧡 The whole fam is rocking their Oilers blue & orange, ready to cheer loud and proud! GO OILERS GO! 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure #Hospital #AlbertaChildrensHospital #Parents #oilers #edmonton #yeg #edmontonoilers #battleofalberta
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Incredible progress is happening! ✨ The scientists and doctors working closely with us. Dr. Bernard Thébaud and Dr. Sarah Wootton have made groundbreaking advancements in AAV gene therapy for ABCA3 in mice. This is promising news for Wylder, Oakley, and other babies battling this rare disease. But to safely test, manufacture, and administer the treatment, we need to raise $3 million to bring this therapy to clinical trials. Here’s what it will take: 🧪 Manufacturing the gene therapy: $1-2M (8-10 months) 🔬 Toxicology studies & pre-clinical trial prep: $500K (6 months after manufacturing) 💉 Finalizing & administering the therapy Every donation and share brings us one step closer to saving lives. We are beyond grateful for your support and will keep you updated as we move forward. 🔗: WylderAndOakleyFoundation.or… #CureWylderAndOakley #ABCA3Awareness #ABCA3 #YYC #Calgary #Alberta #Cure
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Big stretches from Oakley and Cheeky! 🥹💛 We must say, our pup has truly embraced the added challenge of our life, and has become an awesome fur sister! We can’t wait until we can get a photo of Wylder in the mix 👶🏼🐾👶🏼 🔗: WylderAndOakleyFoundation.or…
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