Brain Changes Initiative (BCI) is a not-for-profit that funds groundbreaking research to improve the standard of care Traumatic Brain Injury (TBI) patients.

Toronto, ON
Joined May 2021
Brain Changes Initiative retweeted
PLEASE RETWEET! In collaboration with @BrainChanges, we are seeking stakeholders with diverse perspectives on the issue of moderate-to-severe #traumaticbraininjury, to participate in an interview about their needs and challenges ➡️ braincanada.ca/research-stor…
Brain Changes Initiative retweeted
Brain Canada would like to congratulate the Canadian trainees selected to receive a @BrainCanada Rising Stars Trainee Award👏. For full details on this year’s Rising Stars ➡️braincanada.ca/news/2022-ris…
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6.4 Next, plans for the Neurotrauma #CarePathways Phase 2 (2022-23). #NCP
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6.3 The Data Prioritization project identified indicators to evaluate & improve #neurotrauma care. 22 core indicators to address insufficiencies in the community sector and patient characterization, and value health equity and patient/caregiver education. #NCP
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6.2 The Ideal Pathways Project developed evidence- and experience-based care pathways for mild-TBI/#concussion, Mod-Sev #TBI, and traumatic #SCI. The Pathways are comprehensive of neurotrauma care necessities, need for re-access, caregiver burden, and individualized care. #NCP
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6.1 In Phase 1 of the Neurotrauma #CarePathways Project, we evaluated the current state of neurotrauma care, updated guidelines, and developed Ideal Pathways and data indicators to address the inadequate #neurotrauma care system in #ON. #NCP 🧵
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5.4 The aim of the project was for #ON to: #NCP 1) Collect appropriate descriptive data about individuals with #TBI and #SCI 2) Improve data integration between publicly funded and 3rd party care providers 3) Improve quality of data collection throughout the care continuum
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5.3 67 data indicators were identified. 42 were designated as ‘must-have’ indicators. 22 ‘must-haves’ were selected as a core set (1 Pre-Acute, 7 Acute, 4 Rehab, 7 Community, and 3 Critical Considerations). #NCP
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5.2 The Data Prioritization project aims to improve #neurotrauma data collection and integration in #ON. A diverse group of stakeholders identified and developed quality of care #indicators, addressed gaps in data collection, and mapped indicators onto the Ideal Pathways. #NCP
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5.1 The Ideal #CarePathways will only be successful with appropriate evaluation strategies; this is where the Data Prioritization project comes into play. #NCP 🧵
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4.10 The Ideal Pathways will also contribute to improved #healthcare provider confidence in the system, reduced inappropriate use of services, and mitigation of comorbidities and preventable complications, thus promoting holistic care and efficient use of resources. #NCP
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4.9 The Ideal Pathways will align with the #QuadrupleAim for healthcare where #patient & #caregiver experiences are taken into consideration during care planning, navigation, and care provision, resulting in #equitable health outcomes. #NCP
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4.8 Critical Considerations include geographic location, marginalized populations (e.g. #Black, #Indigenous, #LGBTQ2S+), income/housing/food security status, #mentalhealth issues, and availability of caregiver support. #NCP
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4.7 The Critical Considerations Working Group targeted care needs for vulnerable individuals & developed elements that address gaps in current #CPGs and public access to care. #NCP
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4.6 Traumatic #SCI Ideal Pathway: focused on assessment of possible brain injuries, improved access to inpatient, long-term outpatient rehab and #primarycare by family health teams, & improved efficiency/costs by reducing the use of emergency services. #NCP
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4.5 Mod-Sev #TBI Ideal Pathway: focused on similar aspects as concussion, but with additional emphasis on expanding access to specialized inpatient rehab and long-term community supports (i.e. specialized housing and peer support). #NCP
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4.4 mild-TBI/#concussion Ideal Pathway: focused on standardizing initial injury assessment, proper documentation of diagnosis and injury outcomes, and improving system navigation, number of high-quality community supports & follow-up in the community. #NCP
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4.3 All 3 Pathways focus on care across the lifespan, from pre-acute to community services. They include appropriate mechanisms for entering, transitioning and re-accessing care independent of where you live, where you got injured, access to funding or type of injury. #NCP
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4.2 Through group consensus, the 4 Working Groups reviewed published #clinicalpracticeguidelines and selected key building blocks (“the what”; e.g., the type of care) for the Ideal Pathways. #NCP
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4.1 We developed Ideal #CarePathways for mild-TBI/#concussion, Mod-Sev #TBI, and traumatic #SCI in collaboration with key stakeholders divided into #Acute, #Rehab, #Community and Critical Considerations Working Groups. #NCP 🧵
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