A non-profit focused on neurological disorders. We have helped over 800 families donate a loved-one's brain, enabling the search for cures.

Menlo Park, CA
Joined August 2014
On Caregiving A scholar experiences the moral acts that come before—and go beyond—modern medicine. harvardmagazine.com/2010/07/…
29
'Harsh reality' of dementia and MND combination The partner of a woman diagnosed with both a rare form of dementia and motor neurone disease (MND) says he wanted to highlight the "harsh reality" of caring for someone with the combination. bbc.com/news/articles/c0w47d…
17
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July. allhomecarematters.com/aftd-…
13
Naomi Feil, Who Promoted Empathy as a Response to Dementia, Dies at 91 She trained caregivers to “validate” the delusions of older people with dementia, rather than try to wrest them into the real world. nytimes.com/2024/01/24/healt…
10
Fighting to Avoid Her Mother’s Fate, for Her Daughters’ Sake A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it? By Virginia Hughes nytimes.com/2024/12/22/healt…
13
Here's a book recommendation: ‘Let’s Talk About Aging Parents: A Real-Life Guide to Solving Problems With 27 Essential Conversations’ (by Laura Tamblyn Watts) a.co/d/7QncONJ
16
SPARK: The Look of Lewy Body Dementia “You don’t look like you have dementia.” That statement haunts Dona Denham, a forty-eight year old woman who has been diagnosed with Lewy body dementia (LBD). What does dementia look like?, she ponders. states.aarp.org/virginia/spa…
1
14
Be sure to follow us wherever we share news and information about Atypical Parkinson's, Brain Donation, and Caretaking. FB: facebook.com/BrainSupportNet… YT: youtube.com/@brainsupportnet… LI: linkedin.com/company/brain-s… TH: threads.net/@BrainSupportNet IN: instagram.com/brainsupportne…
10
David Gergen, Adviser To 4 U.S. Presidents, Has Dementia In one of his final messages shared with the public, Gergen told his daughter that America is "being tested now." huffpost.com/entry/david-ger…
19
APDA Virtual Parkinson’s Conference February 19-20 12:00pm – 4:00pm ET each day Don’t miss two great days designed to educate, empower, and engage you! Perfect for people with PD, care partners, friends and family. Informative, inspiring, and fun! apdaparkinson.org/events/apd…
6
What Is Lewy Body Dementia? Symptoms and Risk Factors for the Disease That Affected Robin Williams A neurologist reveals how LBD progresses and what you can do to stay healthy womansworld.com/aging/alzhei…
2
14
Here's a recommendation for the podcast "This Is Growing Old" from a recent article in the Wall Street Journal: This podcast is produced by the Alliance for Aging Research, a nonprofit devoted to “the common human experience of aging.” open.spotify.com/episode/6Q6…
14
I’m a doctor. Here are 5 ways to hack the 15-minute clinic visit. Don’t just tell us your medical history. Weaving in a fun fact about yourself is a research-backed way to get a better outcome. washingtonpost.com/wellness/…
21
Happy New Year's from Brain Support Network! brainsupportnetwork.org
5