We are patients & families standing together against UK's most indiscriminate and deadly cancers. We won't sit and be frustrated, we will act

Joined September 2025
The Prime Minister has committed to appointing a dedicated national brain cancer lead. 💛 This happened because patients, families, MPs, clinicians and thousands of you pushed together. Thank you, Archie, and everyone who added their voice. From terminal to treatable.
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Tessa Jowell used her final speech to Parliament to ask that everyone work together for patients. Eight years on, patients and families with lived experience are doing just that. What’s missing is someone in Government to make it happen. Link in bio 👆
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Brain Cancer Justice retweeted
It is incredibly hard to read this. Nearly 10 years ago Dame Tessa Jowell was diagnosed with Glioblastoma. Her action and determination had universal support. But how would she feel today if she knew there has been no change for GBM patients. International collaboration is needed
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Brain Cancer Justice retweeted
We always had hope, but 2 weeks after surgery, the tumour had already grown back to its original size Brain cancer is brutal, indiscriminate and devastating. This is an important week for our community, let's hope we finally see some meaningful change. @BrainCancerJust
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Promising British research for brain cancer shouldn’t be left waiting. Trials like CureGBM are ready. What’s missing is the support to get them started. A National Brain Cancer Lead would make sure they reach UK patients. Write to the Health Secretary. Link in bio 👆
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The past isn’t a complaint. It’s the evidence. 12 years of promises. £40 million pledged, a fraction delivered. The problems are known. What’s missing is someone in charge of fixing them. A National Brain Cancer Lead. Write to Health Secretary Yvette Cooper today. Link in bio👆
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This is not a rare cancer. We’ve lived it. We’ve watched brain cancer be left behind for too long. It’s time it had its own lead. Write to the Health Secretary today. Link in bio 👆
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Right now, brain cancer shares a tiny slice of part-time national leadership with 13 other cancers. The biggest cancer killer of under-40s deserves a full-time National Brain Cancer Lead. Write to Health Secretary Yvette Cooper today. Link in bio 👆
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One room. Everyone who cares about brain cancer. One message: the dots need connecting. A full-time National Brain Cancer Lead could do just that. Write to the Health Secretary and add your voice. Link in bio 👆
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Brain cancer doesn’t take days off. Its leadership shouldn’t either. Right now, national leadership is part-time and shared across 14 cancers. We need a full-time National Brain Cancer Lead. Write to Health Secretary Yvette Cooper. It takes five minutes. Link in bio 👆
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Brain cancer has been left behind. Ministers have said it. Parliament has debated it. 109,000 people have signed for it. What’s missing is someone whose job it is to fix it: a full-time National Brain Cancer Lead. Help us make it impossible to ignore. Link in bio 👆
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This is the moment we've been building towards. 12 years of promises. 109,000 signatures. 35 MPs. Next week, Archie meets the Prime Minister. Write to Health Secretary Yvette Cooper and ask for a full-time National Brain Cancer Lead. Link in bio 👆
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Tomorrow BCJ are leading an event at University of Manchester. “Bench to Bedside: A Participatory Action Research Workshop” We’ll be joined by cancer strategy (James Frith MP’s office - DHSC), clinicians, researchers, charities, patients & families. We will share the highlights!
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Thank you Gordon. Kim would be deeply moved re your post and you are absolutely right - she was the most amazing woman and it is heartbreaking to lose her. Thank you for fighting for more research.
Kim was the most amazing woman you could ever meet. It was a pleasure and privilege to meet her earlier this year, and it is absolutely heartbreaking to learn of her passing. I'll keep fighting for more brain tumour research, as she asked me to do. instagram.com/p/DdluAh0o1Wp/
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