Transforming treatments and changing lives for people with brain conditions. Supporting The National Hospital and The UCL Institute of Neurology @UCLIoN
Queen Square, London
Joined February 2009
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The National Brain Appeal retweeted
BREAKING NEWS: Michael Palin and Terry Gilliam will be unveiling Terry J’s statue on Saturday 25th April in Colwyn Bay, North Wales. Why not join us and plan your trip at visitconwy.org.uk #terryjones #apythonontheprom #montypython #colwynbay #michaelpalin #terrygilliam
The National Brain Appeal retweeted
Thank you @BrainAppeal for funding Nurse Cristina who will support the patients on our ground breaking Glioblastoma Brain Tumour Drug trial @uclh. If you know a loved one recently diagnosed pre treatment please contact me [email protected]
The National Brain Appeal retweeted
Ten years ago, five rare dementia groups united to create Rare Dementia Support, building on roots that began in 1994 with a nurse-led FTD group at @UCLIoN Today we support 9,000+ members. This #RareDiseaseDay, thank you to everyone who’s been part of our journey.💜 @BrainAppeal
The National Brain Appeal retweeted
Members of our lab attended The National Brain Appeal Christmas Concert at Holy Sepulchre Church this year, supporting the charity’s vital work in advancing research into neurological conditions. A wonderful way to start the festive season! 🎻🎄🕯️✨@UCLIoN @BrainAppeal @uclh
The National Brain Appeal retweeted
🎥 In this moving and inspirational video, I catch up with my good friend George Wade from @Bidpath .. to talk about the incredible Gavel Art Trail … a nationwide project raising funds for three vital charities through art, creativity and community.
George shares more about his journey and the inspiration behind the Bidpath Foundation’s campaign, following his own brave battle with a double brain tumour. His positivity and determination are truly inspiring, and I’m so proud to support him.
I’ve even picked up a paintbrush myself to create “Hansons Golden Gavel” ... my artistic contribution to the trail.
The gavels go under the hammer tonight (6th Nov) at 7.30pm in London, with proceeds supporting:
💙 The Brain Tumour Charity (@BrainTumourOrg)
💛 The National Brain Appeal (@BrainAppeal)
💜 ICPCN - (@ICPCN)
You can tune in live, bid, or donate below 👇
🌐 bidpath.com/the-gavel-art-tr…
🎬 Watch Live & Bid: bit.ly/3K3oZ57
💰 Donate: justgiving.com/team/bidpath-…
#GavelArtTrail #Bidpath #WildInArt #TheBrainTumourCharity #TheNationalBrainAppeal #ICPCN #HansonsAuctioneers #fblifestyle #CharlesHanson #AuctionForGood #GoingGoingGogh
The National Brain Appeal retweeted
Congrats to Peter Finnigan, Highly Specialist Neuromuscular Physio from NHNN’s Highly Specialist McArdle & Related Disorders Service, on his Small Acorns grant @BrainAppeal of £5,691.60 to establish normative strength profiles and quantify sarcopenia risk in McArdle disease
The National Brain Appeal retweeted
🎶 Can music help heal the brain after injury?
This #WorldStrokeDay we speak to Dr @sara_ajina about her pioneering trial at @uclh with @nordoffrobbins and @BrainAppeal to find out the impact of music therapy.
ucl.ac.uk/brain-sciences/cel…
ALT For many, music therapy facilitated social connections, which were often challenging for patients with communication difficulties, such as aphasia. These shared musical experiences provided a sense of connection that might be otherwise difficult to achieve.
The National Brain Appeal retweeted
Earlier this year, Rare Dementia Support began working with partners in Japan to help build awareness, connection and support for people affected by rare dementias. 💜 Watch the video to see more about our team’s recent visit. Full story: raredementiasupport.org/news…
The National Brain Appeal retweeted
As #WorldAlzheimersMonth comes to an end, @ucl and
@BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston. raredementiasupport.org/news…
ALT The Hilary and Galen Weston Rare Dementia Support Centre
ALT The Hon. Hilary M. Weston and Mr. W. Galen Weston, founders of The Hilary and Galen Weston Foundation
The National Brain Appeal retweeted
As #WorldAlzheimersMonth comes to an end, UCL and @BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston. bit.ly/3WeZZuB
The National Brain Appeal retweeted
We’ve been in Spain with @actiu & @castfurnitureuk shaping the future Rare Dementia Support Centre — selecting sustainable, dementia-friendly furniture with lived experience at the heart. Opening 2026. 🌿🪑
The National Brain Appeal retweeted
In memory of my sister Margaret, we launched a Glioblastoma drug trial.
Now, Margaret’s Trial is open on the NHS - and offering real hope.
Ben, diagnosed with a Glioblastoma in 2022, saw his tumour vanish. His story helped make this happen.
Watch here:
The National Brain Appeal retweeted
We’ve been shortlisted for a @ThirdSector Award! Our partnership with @BrainAppeal has been recognised in the Charity Partnership of the Year category for our work in creating the world’s first Rare Dementia Support Centre. Thank you to all our funders, partners and supporters!
ALT Shortlisted 2025 graphic
The National Brain Appeal retweeted
Well done to our amazing centre for Neuromuscular Diseases team- all made it despite the heat!
Thank you everyone for being a really a great research and clinical team!
Not too late to sponsor!!
justgiving.com/page/the-nati…
@uclh @UCLBrainScience @UCLIoN @BrainAppeal
The National Brain Appeal retweeted
This week, our team & RDS members were invited to Castalla, Spain, to collaborate with @actiu and @castfurnitureuk on designing the future Rare Dementia Support Centre. Together, we’re exploring how thoughtfully designed environments can support people living with rare dementia.
ALT Nine members of the Rare Dementia Support team and partners pose together inside the ACTIU headquarters in Spain. Four people are seated on a sofa in the front row, with five standing behind them. They are smiling in a modern showroom space, with soft seating and a coffee table in the foreground, and a leafy mural in the background.
ALT The same group of nine people stands smiling in front of the ACTIU building in Spain. Behind them is a reflective glass façade with the ACTIU logo, water fountains to the left, and a green tree to the right. It’s a sunny day, and the group stands close together, capturing the spirit of collaboration and connection.
The National Brain Appeal retweeted
Professor Mike Hanna will be leading the CNMD Team in fundraining for @BrainAppeal in the Saucony London 10K race on July 13, 2025. Please donate what you can!
justgiving.com/page/the-nati… Please repost/share
ALT UCL Institute of Neurology CNMD runners at Saucony 10K 2024
The National Brain Appeal retweeted
Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day!
Free UK webinar today: speechtherapyppa.com/ppa-awa…
Missed it? A recording will be on our website: speechtherapyppa.com/ppa-awa…
@RosemaryTowns15
@RCSLT
@RareDementia
The National Brain Appeal retweeted
Sneak preview of projections from our concert. Tickets: lmo.org.uk/spring2025
The National Brain Appeal retweeted
Today's @BBCRadio4 repeat episode of our series, Dementia: Unexpected Stories of the Mind, features Dave and Gill speaking so eloquently about Dementia with Lewy Bodies. @lbsorg @rimonaweil @AlzResearchUK @RareDementia @BrainAppeal @WilliamRMiller
#DLB #Parkinsons #neurotwitter
Today’s @BBCRadio4 episode of Dementia: Unexpected Stories of the Mind featured Dave and Gill, two fantastic interviewees. Dave was diagnosed with Dementia with Lewy Bodies (#DLB) in 2020. If you missed the episode, listen back here. bbc.co.uk/programmes/m001kx9… @RareDementia
The National Brain Appeal retweeted
Thank you to Nick Robinson, @TamsinGreig @StephenMangan Indira Varma, the Julius Singers and all the musicians who supported last nights @BrainAppeal Carol Concert @HolySepulchreUK. Great cause & a brilliant way to start Christmas 🎄 🎄
