Long covid since Sep 21. I make the Bounded Energy podcast with my buddy Hannah 👌 and weekly video shorts - all on life with LC🤗❤️
London, England
Joined October 2022
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I wrote a piece for Cosmopolitan.co.uk on my experience of #longcovid. It’s so so important to keep telling our stories. Covid isn’t over for everybody ❤️❤️❤️ but if enough people make enough noise, we’ll find a way through this xxx #MECFS #chronicillness
Late post - last Saturday Hannah and I dusted off our microphones and began recording for the second season of Bounded Energy 🤗🤗
Taking a social media break. Gonna play league of legends, do some staring into space, and scatter the wildflower seeds I’ve been collecting in pavement cracks and parks in my local area. Thanks to those who listened to the pod & watched my silly videos. Love love love Katya xxx
You can listen to the final episode of Bounded Energy S1 on Apple Podcasts, Spotify & our website. ‘Long Covid questions- a conversation with neuropathologist Dr Mayen Briggs’ 👩🔬was a joy to record and relisten to. 🤗🤗🤗 #longcovid #mecfs #chronicillness
Talking therapy for #longcovid - 10/10 would recommend. To my fellow travellers, I hope you have someone to talk to. Definitely need a nap now. #mecfs #chronicillness. #happyfriday ❤️❤️❤️❤️❤️❤️
The loving kindness meditation - but your chronic illness means you rarely leave the house. 😂🤗🫠🧐 #longcovid #mecfs #chronicillness #disability
Next Monday on the podcast we are getting answers to our burning question from neuropathologist Dr Mayen Briggs. 🤗 What is brain fog? Why has my spelling gone out the window? What’s the deal with the dizziness? & more! 🧐🫠❤️#longcovid #chronicillness
Things I never said before #longcovid - I think I played too much piano today… post exertional malaise from a little too much Taylor Swift for easy piano. Riddle me that one universe…
A week ago a rheumatologist looked me in the face and told me he expected me to make a full recovery. No doctor had said this before to me. I’ve been feeling happier ever since. I still have #longcovid. It just sucks less atm ❤️❤️❤️
Katya retweeted
So do I! I started the @KeyWorkerPetUK with two friends. We are presenting a 100k+ petition to government next month calling for compensation & pension for #keyworkers eith #LongCovid
I know we talk about the importance of rest all the time in the #longcovid / #mecfs community - but it’s so much harder than it seems!!! Sometimes when I think I’m about to practise an NSDR, I NSDW. And they are NOT the same thing!! 🤗🫠😂Anyone else? #chronicillness
New Episode Alert!!! You can listen to our conversation with the brilliant @gezmedinger - Co-Author of The Long Covid Handbook now! Hannah & I learnt so much from this conversation & I’m thrilled to finally share it with the community ❤️ Link in bio 🤗 #longcovid #chronicillness
In which we discuss Gez’s own Long Covid experience, the making of his YouTube channel and The Long Covid Handbook, mental health, differences in the male and female experience of long covid, what Gez does now to manage symptoms, and more! Lovely speaking with you @gezmedinger 🤗
Katya retweeted
In my story, I then go on to tell a seriously unfiltered anecdote. But you get the idea. The point is: Be gentle with us. Don’t judge; don’t pity. Something gets all of us, eventually. You can read more here: theatlantic.com/ideas/archiv… 8/8
Next Monday we are speaking with the brilliant @gezmedinger on the Bounded Energy podcast about his excellent book - The Long Covid Handbook 🤗🤗🤗. This was such an insightful, informative conversation. Stay tuned! #longcovid
Katya retweeted
My presentation at the summit is live now!
I talk about the entire treatment landscape for Long Covid, as it exists at the moment - from what you might get from your pharmacy, to your GP, to your specialist, and then some of the wilder things out there internationally.
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I love Friday evenings, not that I’m doing anything, but just knowing that if I were to spend the next two days in bed and listening to audiobooks, that would be completely fine with everyone 🤗 my new #longcovid comforts. #mecfs #chronicillness ❤️❤️❤️