BoatdogBella (@BoatdogB) profile picture
Joined January 2021
Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)Photo by BoatdogBella (@BoatdogB)
👉 Come and see our tree of hearts at the @stmaryletower church #Ipswich Christmas tree festival on until the 7th.🎄 Our tree displays photos of some participants in our Scarred FOR Life exhibition💔Read more here: sfhearts.org.uk/trees22/ #ACHDAwareness #ScarredForLife
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We're heartbroken that our co-founder & #CHD champion, Noemi de Stoutz, has died as a result of her CHD. Noemi contributed a wealth of experience as physician, patient & leader in patient support & advocacy. Her wisdom, intelligence & humour will be missed. Online memorial TBA.
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Do you have dysphagia arteria lusoria' or 'subclavia arteria lusoria - A rare condition that causes difficulty when swallowing, eating or drinking? Comment below to share your experiences on this. 🌟Enquiry from a CHD patient group in the Netherlands.
Save the date for our 2023 conference! 📅 13 May 2023 in Newcastle upon Tyne. More details to follow. See our conference summary from the 2022 event: sfhearts.org.uk/members-area…. You'll need to be signed up as a member to access.
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Westminster scenes
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We are appealing after a crash on the B822 at Kippen roundabout, Stirling, in which a cyclist was seriously injured around 5.05pm on Tuesday, 27 September, and involved a black Ford Ranger towing a silver Ifor Williams trailer which failed to stop. More: ow.ly/AFs950Lclbg
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Somerville Heart Foundation are deeply saddened by the loss of Her Majesty The Queen. Her devotion to service and commitment to charitable causes has been an inspiration to many. We send our sincere condolences to The Royal Family at this extremely difficult time.
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Energy bill support will help many struggling in #Lichfield, but we ask @Mike_Fabricant to once again push for an immediate uplift in Universal Credit, in line with current inflation levels (10%). We know from experience that this will reduce the numbers needing our service.
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👉 Virtual Patient Meeting Fri 23 Sept!!💓 Email If you or anyone you care for is treated by a hospital in the Lifelong #CHD Network, hosted by Evelina London Children’s Hospital & Royal Brompton & Harefield Hospitals, email CHDnetwork@gstt.nhs.uk to receive a MS Teams invite.
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BoatdogBella retweeted
People living in Shetland would need to be earning at least £104,000 a year to avoid fuel poverty. The stark warning is from @ShetIslandsCll & estimates by April the average energy cost per year for a household will be over £10,000, double that of the rest of the UK #bbcgms 0605
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Happy Bank Holiday. Enjoy the last of the summer days! 😎
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At the Conference we held topical discussions - this was a popular element of the day and prompted some great conversations - thank you to all who took part! Get involved with follow up discussions on the topics raised by email: allison.crane@sfhearts.org.uk
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Mooring in the shade is hard for a boater! Beautiful Ashby canal. #boatsthattweet
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It is with great sadness that the Board of Trustees announce that our President Michael Cumper who served the charity for many years passed away earlier this week. Read the full announcement here: sfhearts.org.uk/announcement…
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❤️ We are here for you. Join our community and become a friend. 💞sfhearts.org.uk/register/fri… #ACHD #ACHDAwareness #MentalHealth #HeartCommunity
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Tadalafil for sRV patients. Extraordinary effort by the Swiss #ACHD community 👏. Looking forward to it 🤓 @WernerBudts @AriCedars @sasha_opo @Mag_Ladouceur
Results of our SERVE study will be presented at the Late-Breaking Science session at ESC in Barcelona #ACHD
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Quality of Life of adult Fontans - Join the focus group! Led by Master research student Jara Weinkauf who is also a Fontan patient herself. Read more here: sfhearts.org.uk/focus-group-… Register your interest by email to; Michelle.woods@sfhearts.org.uk
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