@BladderConnect

India's first support group for bladder cancer patients and caregivers

 Mumbai, India
bladdercancerindia.org
Joined April 2022
  • Tweets531
  • Following84
  • Followers162
439Media
Bladder Cancer India retweeted
Shilpa Gupta
@shilpaoncSep 8
Congrats @kor_shah @ruchi1agarwal @SalvadorjcMD and super mentor @montypal on exploring this huge issue of disparities in bladder ca trial availability in the US! Very sobering data and makes us think how big the issue is for the empress of the 🌎 @BladderCancerUS @WorldBladderCan @IBCG_BladderCA @BladderConnect
Sumanta K. Pal, MD, FASCO
@montypalSep 7
Tremendous work from a team led by @kor_shah @SalvadorjcMD & @ruchi1agarwal, co-first authors on this piece in @JAMANetworkOpen highlighting the regional variations in #bladdercancer trials in the US. Their detailed analysis of regional variations in study availability points to a misalignment between trial access & disease burden. Tagging @IBCG_BladderCA @BladderCancerUS & other groups fighting for access to #clinicaltrials for our patients.
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Bladder Cancer India retweeted
Sanjeev Sharma@Sanjeev_33Aug 10
Looking forward to speaking at the #BladderCancerForum26, September 21-22, 2026, in Hong Kong. I'm glad to share my perspective and learn from advocates, experts and people affected by bladder cancer worldwide. 🗓️ Don't miss out, register now 👉 worldbladdercancer.glueup.co…
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🩸 Blood in urine is the most common sign of bladder cancer. It can appear pink, red, or brown and sometimes it is only picked up in tests. Even one episode matters. Do not ignore it. Speak to a doctor. Learn more 👉 ow.ly/fAUj50YcKLs #BladderCancerMonth26 #BladderCancer #GetChecked #BladderCancerAware
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⏸️ Moments of uncertainty often come before action. Through #UnsureStories, we invite people to share one sentence about a moment when something felt off and pass it on within their networks 💬 Shared experiences can support earlier awareness and action 🤝 #BladderCancerMonth26 #BladderCancer #GetChecked #BladderCancerAware #UnsureStories
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Replying to @BladderConnect
Amazing, we appreciate your contribution to raising awareness this #BladderCancerMonth26!
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Bladder Cancer India retweeted
Ashish M. Kamat, MD, MBBS
@UroDocAshMay 12
In 2021, for the first time, we asked bladder cancer patients and their carers - across the world - what it is actually like to live with this disease. The survey was designed by @WorldBladderCan with an international steering committee. Ran from Oct 2021 to Feb 2022 across 45 countries on 6 continents. Published in @EUplatinum 🧵 @IBCG_BladderCA #AUA26 #AACR26 #OncSurgery @filicevas @pjhensley11 @bcan_chisolm @SourcingShannon @pcvblack @marigfern @DrStephDemkiw
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📣 Nurses play a vital role in #bladdercancer care, from first symptoms to treatment and survivorship. 87% of patients say they received enough support from nurses, and 66% completely understood their diagnosis when it was explained. Today, we recognise and thank nurses around the world. #InternationalNursesDay #BladderCancerMonth26
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Bladder Cancer India retweeted
Bob Blackman
@BobBlackmanMay 11
This May I'm supporting @BladderCancerUK's #PeeAware campaign. Bladder cancer affects 20,000 people in the UK every year. Know the signs: discoloured pee, increased urgency, or persistent UTIs. If you notice a change, contact your GP or call 111.
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🔍 Know the risk factors for bladder cancer There are steps that can help reduce risk and support earlier action: 🚭 Avoid smoking ☢️ Reduce exposure to harmful chemicals 🥦 Stay active and eat well 👨‍⚕️ Act on symptoms and seek medical advice Feeling unsure about a symptom? Get checked. Learn more 👉 ow.ly/JnlS50YcKwo #BladderCancerMonth26 #BladderCancer #GetChecked #BladderCancerAware
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It’s Patient Experience Week! 🚨 Blood in urine 🤕 Pelvic pain 🩸 Frequent urination Knowing the signs of #bladdercancer improves the patient journey, starting with early detection. Learn more about the symptoms 👉 ow.ly/O2mP50VBSBN
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📣 Yesterday, for #InternationalWomensDay, we released a new factsheet: “Bladder Cancer in Women: Unique Challenges.” #Bladdercancer is often seen as a disease that mainly affects men. Yet 1️⃣ in 4️⃣ people diagnosed are women, and women are more likely to be diagnosed at a later stage. The factsheet highlights: 🔎 Why symptoms in women are often misinterpreted 🩺 Why early investigation matters 💬 The physical and emotional impacts of treatment 🤝 The role of support networks and patient organisations 🔗 Read more: worldbladdercancer.org/news_…
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Bladder Cancer India retweeted
Shilpa Gupta
@shilpaoncMar 10
1 in 4 patients diagnosed with bladder cancer are women. Gender bias can delay diagnosis, care and outcomes. It is critical to raise importance among patients, internists and GPs to not attribute symptoms in women to UTIs alone. @IBCG_BladderCA @BladderCancerUS @BladderConnect @UroDocAsh @karima_oualla @apolo_andrea @PGrivasMDPhD @SpiessPhilippe @AndreaNecchi
World Bladder Cancer Patient Coalition
@WorldBladderCanMar 7
🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_…
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Bladder Cancer India retweeted
gaganprakash@drgaganprakashJan 11
Kickstarted 2026 academics with the amazing @UroDocAsh .. at his home pitch.. a super informative evening for us in Mumbai 🙏🏻 ..@IBCG_BladderCA @BladderConnect @WorldBladderCan @BladderCancerUS @MDAndersonNews
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Did you know? WBCPC Global Survey shows that women often face delayed diagnosis for #bladdercancer due to misattributed symptoms like UTIs. 69% of women were diagnosed with another condition first. Learn more & help raise awareness 👉ow.ly/M00V50TkJpL
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In this special session, “Myths and Truths in Bladder Cancer”, a multidisciplinary team comes together to answer real questions that patients and caregivers struggle with. Panel: Fatima Baig - Bladder Cancer Survivor Anand Kumar - Bladder Cancer Survivor Dr Gagan Prakash – HOD, Uro-Oncology, Tata Memorial Hospital, Mumbai Dr Karan Sood – Medical Oncologist, ACTREC, Mumbai Lekhika S – Onco-Psychologist Sister Sonal Rane – Stoma Nurse Moderator: Vivek Sharma – Cancer Patient Advocate In this discussion, we talk about: - Journey of bladder cancer, right from the symptoms, from the survivors - Common myths about bladder cancer causes and symptoms - Truth about diagnosis, stage, and prognosis - Life after cystectomy – stoma care, dignity, and daily routine - Emotional well-being of patients & caregivers - How to ask the right questions to your doctor - Where to seek support and reliable information If you or your loved one is going through bladder cancer, this video is for you. You are not alone. Watch on YouTube - youtu.be/ZjjuT3ax0zs?si=7VGP… #BladderCancer #BladderCancerAwareness #CancerMythsAndFacts #CancerEducation #CancerSupport #UroOncology #OncologyCare #CancerSurvivorStories #StomaCare #CystectomyJourney
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Incontinence is a common symptom of #bladdercancer, along with blood in urine❗ What other symptoms have you experienced? Share your story in the comments & help us spread awareness!
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If you or someone you love has faced #bladdercancer we would love to hear your story. Sharing your journey brings hope, raises awareness & helps others feel less alone. 👉 ow.ly/KrF250RmXPG #BladderCancerStories
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Fatima’s journey is a powerful reminder that cancer may test you, but it can never take away your courage. As a bladder cancer survivor, she fought every challenge with strength, faith, and hope — and today, her story inspires countless others. Stay tuned for the full episode releasing tomorrow at 2 PM on our Uhapo YouTube channel. 💙 Watch Fatima share her journey of resilience and recovery. 💬 Share this video to spread hope. 📞 Need support? We’re here for you. Hashtags: #BladderCancerSurvivor #CancerJourney #CancerWarrior #CancerSupport #SurvivorStories #Inspiration #Hope #CancerAwareness #StayStrong #Uhapo #CancerCare
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Too many patients continue to share stories about misdiagnosis, delays in diagnosis, and not taking #BladderCancer symptoms seriously. This has to change. We’re doing everything we can to raise awareness of this forgotten cancer. Will you help us by sharing this post?
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RT @shilpaonc: The best part about @IBCG_BladderCA besides advancing science & disseminating knowledge is putting the patient in the center…
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