Initiatorin @DSL_Deutschland #DigitalHealth & #SocialMedia Expert #PatientExpert, blogger, HIMSSFuture50, member of @sciana, about: https://xitter.cf/t.co/HagxEbmTIl
Deutschland, Bayern
Joined March 2009
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Birgit Bauer retweeted
Create good karma. Do not judge or criticize others. Resolve not to partake in gossip or negativity of any type. Look only to help, support and #encourage. Your thoughts and #actions directly impact your environment and you. -Donna Cardillo
#CauseAndEffect #UniversalLaw
Birgit Bauer retweeted
Can the revised 2024 McDonald Criteria reduce MS misdiagnosis?
🎧 In this ECTRIMS Podcast episode, recorded in collaboration with the MS Journals “Controversies in MS” series, Prof. Anneke van der Walt speaks with Prof. Andy Solomon from University of Vermont and Prof. Enrique Gomez Figueroa from Hospital Civil De Guadalajara about the promises and challenges of the revised criteria.
As MS diagnosis evolves, balancing earlier diagnosis with diagnostic accuracy remains one of the field’s greatest challenges.
𝐋𝐢𝐬𝐭𝐞𝐧 𝐧𝐨𝐰:
𝐒𝐩𝐨𝐭𝐢𝐟𝐲: bit.ly/3RJywCs
𝐀𝐩𝐩𝐥𝐞: apple.co/4obJlcz
𝐖𝐞𝐛𝐬𝐢𝐭𝐞: bit.ly/4dP9ydu
@MSJ_Research @uvmvermont @HospitalCivil
This episode is part of the MS Journal Controversies in MS series on The revised 2024 McDonald criteria can solve the misdiagnosis problem in MS. The accompanying Yes, No, and Commentary articles are available to read open access for the next month, compliments of MS Journal.
#MultipleSclerosis #McDonaldCriteria #MSDiagnosis #MSResearch #Neurology #Neuroimmunology #MRI #ECTRIMS #MultipleSclerosisJournal #ECTRIMSPodcast
Birgit Bauer retweeted
📺 Rewatch the final #EHFG2024 Plenary "Democracy at work - the European Health Data Space from concept to reality", co organised with @EU_Health, here: bit.ly/3YXSB84
#EHFG2024Rewind #EHDS @marsemo @Birgitpower @BPrainsack @Nickf72
Birgit Bauer retweeted
#Women with #MS face unique challenges, such as #reproductive issues and #menopause. Read the recap of our recent 3webinar feat. experts from @ClevelandClinic @cemcat_em & @DalhousieU as they discuss where research should focus its efforts first ➡️ bit.ly/48Sulsk
Birgit Bauer retweeted
🔥 Hot off the press: The #EHFG2024 Conference Outcomes are here!
This year’s theme, "Shifting sands of health", explored how democracy, demographics & digitalisation are reshaping health systems across Europe.
Check out the key takeaways and insights 👉 bit.ly/3UJjxHm
Why do so many people open their vendors tray when there was ask to give short introduction? Instead of giving facts people start to tell a novel. Shouldn’t we use the time instead for doing a good job in Patient advocacy? #patientinvolvement
Birgit Bauer retweeted
😴People with #MS are vulnerable to #sleep disturbances, which can be challenging to assess. "Before recommending polysomnographic studies..., it is essential to screen properly," says Anne-Laure Dubessy of @HopPitieSalpe. Read more about managing sleep👉
bit.ly/48LovJl
Joanna Wardzinski from @awscloud about the work aws does in the area of healthcare and #digitalisation in healthcare. Very interesting talk at the #healthcarehackathonbayern
Birgit Bauer retweeted
We live in an infodemic. We have to fight disinformation just as hard as we fight pandemics! @alabriqu
Birgit Bauer retweeted
💻 Rachel Dunscombe, CEO of @openEHRjoins us to discuss the future of EHR and digital health at our webinar! Join us on 16 Oct 2024. xpandh-project.iscte-iul.pt/…
Birgit Bauer retweeted
🔥Hot off the press - our latest Newsletter is packed with all the highlights of ECTRIMS 2024! Discover Congress session replays, special podcasts, Patient Community Day recordings in 6 languages, must-see videos, abstracts, and more. Read it here ➡️ bit.ly/3Yd5OKV #MS
Letztens im Rathaus: Ich buche einen Termin, warte 15 Min bis der zuständige Sachbearbeiter kommt, der auf meine Erinnerung, dass wir einen Termin hätten nur mit einem Schulterzucken und "ich bin nicht digital, mit interessiert das nicht" reagiert. bitkom.org/Presse/Presseinfo…
Birgit Bauer retweeted
Cognitive impairment and its impact on employment: A qualitative interview-based study involving healthcare professionals and people living with multiple sclerosis - Multiple Sclerosis and Related Disorders msard-journal.com/article/S2…
Birgit Bauer retweeted
MS is thought to be rare or non-existent in Africa (tho it's not) so there is little training/awareness of it among health care professionals.
So thrilled #AFRICTRIMS is now part of @ECTRIMS family.
@OheneNanaBoakye,@Doxoki,@dryaredzewde, @DeannaSaylor1,@_Freda_A, @AnneHelme,
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Birgit Bauer retweeted
Just rec'd a reminder for Covid-19 & flu jabs.
On Ocrevus. Timing?
@GavinGiovannoni
"For ppl on anti-CD20's (ocrelizumab, rituximab, ofatumumab) trying to coordinate COVID-19 & flu vaxs with ur next infusion/dose makes little sense, so go ahead &have the vax asap."
„Patients are heard.“ one of the answers about my intervention at #ehfg2024 , as a member of different councils etc. I can agree. But to hear means not always to respect etc. So patient involvement/ participation must be an active partnership.
To be honest I appreciate the theme: chronic diseases are in the discussion. It’s a discussion about patients. Great. But: where is the patient representative in this panel? @GasteinForum #ehfg2024 #nothingaboutuswithoutus
