@BellinaMatthew

39 year old husband and father of three. Former Naval Aviator living with ALS

 Pennsylvania
tweedthoughts.com/
Joined February 2022
  • Tweets162
  • Following25
  • Followers91
9Media
That was yesterday. Today is worse. You would have to go all the way back to the cretaceous era to find a temperature as hot as today. Thankfully, dinosaur scientists kept thorough records.
Ilhan Omar
@IlhanMN17 Jul 2023
The earth just broke the record for the hottest day in 120,000 years. In fact, we broke in on three separate days. National climate emergency now.
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Matthew Bellina retweeted
Nicole Cimbura@nicolecimbura5 Apr 2023
Dear @US_FDA in Feb & Sept 2019 many advocates, standing on the shoulders of ALS giants who came before, went to DC to get the #ALSGuidanceDocument across the finish line. @sairysays & @ChrisSnowCGY are living proof about taking risks hoping to #EndTheLegacyApproveTofersen
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Record Breaking : According to @NOAA today marks the coldest temperatures ever recorded during the festival of Shwanzaa.
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I can't believe the @dallascowboys beat the @Eagles . Ruined Shwanzaa for our whole family.
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Will @elonmusk suspend @NoradSanta for real time doxxing #SantaClaus ? Rules are rules. noradsanta.org/en/index.html
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On behalf of all of the United States, I would like to apologize for our President implying that Irish people tend to be stupid. No decent American believes this hateful stereotype and we don't think his joke was funny.
RNC Research
@RNCResearch16 Dec 2022
BIDEN: "I may be Irish, but I'm not stupid"
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Matthew Bellina retweeted
I AM ALS@iamalsorg15 Dec 2022
“We are desperate for treatment and willing to fight." - @shellyhoover Shelly, Steve Hoover and @layneo5 opened up their homes and hearts to make this @BioPharmaDive article about Relyvrio possible. Thank you for uplifting the voices of the ALS community! bit.ly/3FDXlGi
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#NurOwnWorks #NoAdComNoVoice #EndALS @DrCaliff_FDA @RepAnnaEshoo @janschakowsky @brettguthrie @cathymcmorris @RepMikeQuigley @RepGusBilirakis @KenCalvert @rosadelauro @SenatorBraun @lisamurkowski @michaelcburgess @RepFredUpton @RepJohnCurtis @DorisMatsui @BillCassidy @RepLBR
AZ Latina ☮️🌊🟦
@aVoice4ALS15 Dec 2022
. #Navy Pilot Matt Bellina on #NurOwn 2014 - #ALS dx 2018 - Using Wheelchair & Trilogy 2019 - #NurOwnWorks. Stands out of wheelchair. No Trilogy Oct 2022 - Still standing & breathing Matt deserves chance to share evidence of how he "feels & functions" w #FDA ⬇️See 2019 Video
NurOwn improved how Matt feels & functions. He has objective evidence to corroborate his testimony. He deserves an opportunity to share this evidence with the FDA before it makes a decision about whether NurOwn should be approved. Matt received 7 doses of NurOwn. His first dose was shortly after Christmas in 2018. He received 5 more doses in 2019. After a gap of time, he received his final 7th dose in 2020. As a Navy pilot, Matt had a 10x risk of getting ALS. He sacrificed his life to fight for our country and our rights of due process. He deserves a right to share his story with the FDA. Matt co-authored a Press Release with more information about how ALS impacts Veterans. prn.to/3Vm70aO

ALT NurOwn improved how Matt feels & functions. He has objective evidence to corroborate his testimony. He deserves an opportunity to share this evidence with the FDA before it makes a decision about whether NurOwn should be approved. Matt received 7 doses of NurOwn. His first dose was shortly after Christmas in 2018. He received 5 more doses in 2019. After a gap of time, he received his final 7th dose in 2020. As a Navy pilot, Matt had a 10x risk of getting ALS. He sacrificed his life to fight for our country and our rights of due process. He deserves a right to share his story with the FDA. Matt co-authored a Press Release with more information about how ALS impacts Veterans. prn.to/3Vm70aO

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It might be time for us to start asking why @US_FDA is holding #nurown to a different set of standards than treatments from larger pharmaceutical companies with bigger lobbying budgets.
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ALS organizations are calling on the FDA to hold an Advisory Committee meeting for #NurOwn. Add your name to the petition here. #BrainStorm #EndALS #NoAdCommNoVoice iamals.org/action/sign-the-p…?
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Matthew Bellina retweeted
I AM ALS@iamalsorg14 Dec 2022
I AM ALS friend Dan handed off the NurOwn petition -- and all 802 pages of signatures -- to Dr. Peter Marks at the FDA today. To everyone who signed and shared: THANK YOU. #NoAdCommNoVoice
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Matthew Bellina retweeted
Brian Wallach
@bsw50207 Dec 2022
Today, I want everyone to meet Matt. Matt is in the expanded access program for NurOwn. After progressing, the EAP has all but stopped Matt's progression. The video you see below is of Matt with his daughter on vacation this summer.
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