Emma will Make & #Bake4Mito to support families impacted by #MitochondrialDisease & raise awareness for #Mito. Visit the website to learn more, donate, & order!
Boise, ID
Joined February 2021
- Tweets44
- Following5
- Followers34
- Likes58
Another Helping retweeted
We all need a little bit of sunshine, including on #MitoAwarenessWeek day 3.
Today, Emma & I discuss the need for facts & work towards cures, with support being provided along the way.
It’s true for #Mito & for #RareDisease in general.
#Bake4Mito #ParentsAsRare #WorldMitoWeek
Another Helping retweeted
So proud of Emma’s support for the #mito community! Check out & support her latest goal, raising $5,000 for #DaliasWish.
You can share her message below &to help us raise awareness during #WorldMitoWeek, & contribute through links in our bios.
#bake4mito
#mitochondrialdisease
Day 2 of #WorldMitoWeek is almost over, but the fundraising for Dalia’s Wish is just beginning! Learn more about the program I’m supporting through Another Helping in the video below & in the following link.
To support my goal, visit link in bio! #mito
mitoaction.org/programs-supp…
Day 2 of #WorldMitoWeek is almost over, but the fundraising for Dalia’s Wish is just beginning! Learn more about the program I’m supporting through Another Helping in the video below & in the following link.
To support my goal, visit link in bio! #mito
mitoaction.org/programs-supp…
Another Helping retweeted
#WorldMitoWeek is here, & my daughter Emma & I are back to spread awareness, have some fun, & raise funds for @Bake4Mito’s latest fundraising goal!
Follow along & support Emma as she raises $5,000 for Dalia’s Wish (link in bio…more info tomorrow!). #mito #mitochondrialdisease
Another Helping retweeted
A little #SaturdayMorning entertainment …I needed a laugh & finally got around to putting these @Bake4Mito outtakes together.
Having a #RareDisease is difficult, but we love the community & try to have fun raising awareness.
Hope you enjoy these clips as much as I do! 😂😍💚
Another Helping retweeted
Don’t dare miss this video by #GuyCupcake, ala Adam Johnson (@RareDiseaseDad). The Triple C series is sure to hit a sweet spot through @Bake4Mito! #RareDiseaseTruth #Mito
Inspired by @GuyFieri’s recent visit to #Boise, my kids & I had some fun focusing on my daughter’s #RareDisease advocacy work through Another Helping (@Bake4Mito) that benefits the #Mito community. Stay tuned!
#Bake4Mito #Flavortown #RareDiseaseTruth #RareDiseaseDay #TurnItUp 🔊
Can’t wait to be interviewed next week on Triple C! Look for it on #RareDiseaseDay!
#Bake4Mito #RareDisease
Inspired by @GuyFieri’s recent visit to #Boise, my kids & I had some fun focusing on my daughter’s #RareDisease advocacy work through Another Helping (@Bake4Mito) that benefits the #Mito community. Stay tuned!
#Bake4Mito #Flavortown #RareDiseaseTruth #RareDiseaseDay #TurnItUp 🔊
Another Helping retweeted
Hope. Fight. Cure.
One thing I hold on to.
One thing I keep doing.
One thing we work towards.
It’s not easy, but I try. There’s no choice, really.
Having my 12 y/o daughter along side me is inspiring & heartbreaking. So far we’ve kept our sense of humor.
#MitoAwarenessWeek
Get some good #FridayVibes going by checking out some more #mito info.
It’s been a fun week sharing about #MitochondrialDisease with my daughter during #MitoAwarenessWeek. She’s doing amazing work for the community, all while enduring my #DadJokes! 💚
@Bake4Mito @MitoAction
Day 4 of #WMDW. Here’s another video to share some info & help keep #MitochondrialDisease awareness week going! #mito
Today is the #FirstDayOfFall, & yesterday was Day 4 of #MitochondrialDisease Awareness Week.
The perfect time of year for #mito facts, tennis, & puns. Well, I may have added that last part.
Emma needs a raise, trying to keep me focused! 💚😂 #RareDisease
@MitoAction @Bake4Mito
#MitoAwarenessWeek Day 3 is in the books! Yesterday, Emma helped us look at the big, big energy deficiency conundrum those of us with #mito face.
Check out our video below & Emma’s fundraising efforts for @MitoAction through Another Helping (@Bake4Mito).
mitoaction.org/join-the-caus…
Another Helping retweeted
#MitoAwarenessWeek Day 3 is in the books! Yesterday, Emma helped us look at the big, big energy deficiency conundrum those of us with #mito face.
Check out our video below & Emma’s fundraising efforts for @MitoAction through Another Helping (@Bake4Mito).
mitoaction.org/join-the-caus…
Yesterday was day 2 of #MitochondrialDisease awareness week.
My daughter Emma (@Bake4Mito) & I share about #mito, a disease that has impacted me & my family over the last three years.
Check it out & follow along as we discuss more throughout the week! #GreenForMito
@MitoAction
Another Helping retweeted
Incredibly proud of my 12 year old daughter, Emma (@Bake4Mito), who is one of the nominees for this year’s RARE Rising Star Award. She’s raised tons of awareness & over $4k so far for the #Mito community!
💚😍🧁
Check out her message below. #GGSummit22
@GlobalGenes @MitoAction
Congratulations to the nominees of this year's RARE Rising Star. Tune in to our Facebook Live event next tonight at 9:30 pm ET/ 6:30 pm PT to watch the #2022COH pre-show and ceremony where the winners will be announced! go.globalgenes.org/3RO8icH
Another Helping retweeted
Here is your chance to see a true power team in action. Adam Johnson (@RareDiseaseDad) & his daughter Emma (@Bake4Mito) engage, teach, & entertain in this quick clip about #MitochondrialDisease. #RareDisease
Yesterday was day 2 of #MitochondrialDisease awareness week.
My daughter Emma (@Bake4Mito) & I share about #mito, a disease that has impacted me & my family over the last three years.
Check it out & follow along as we discuss more throughout the week! #GreenForMito
@MitoAction
Another Helping retweeted
Yesterday was day 2 of #MitochondrialDisease awareness week.
My daughter Emma (@Bake4Mito) & I share about #mito, a disease that has impacted me & my family over the last three years.
Check it out & follow along as we discuss more throughout the week! #GreenForMito
@MitoAction
It’s the first day of #MitochondrialDisease Awareness Week!
Check out my reel below to see what we have planned & how you can help raise awareness for #mito!
#Bake4Mito #GreenForMito #MitoAction
@MitoAction @RareDiseaseDad
instagram.com/reel/CiqpqX_J6…
Last weekend, I went to bake at @RMHIdaho.
RMHC is a place where families can go and stay if their child is ill or injured and in the hospital. The staff there helps care for the families so the families can focus on caring for and spending time with their kids. (1/3)
#Bake4Mito
ALT Me with my mom, dad, and grandma baking at the Ronald McDonald House in Boise. We are standing next to each other in the kitchen for a photo, with a few last cupcakes on the counter to frost.
ALT Me with my mom, brother, and grandma standing outside of the Ronald McDonald house before went went in to bake.
ALT Frosting some of the 48 the red velvet cupcakes we made!
ALT Me putting a green mitochondrial disease awareness ribbon on the almost completed cupcakes.
Volunteers can sign up to help those families as well, and I decided to go and bake some cupcakes for them because I think it’s important to help those families. It was a really fun experience and I hope everyone there enjoyed the cupcakes.
#RMHC
(2/3)
To learn more about the Ronald McDonald House Charities of Idaho, to volunteer if you live in the #Boise #Idaho area, to make a donation to them, or to learn about staying there, you can visit their website.
Thanks for having us, @RMHIdaho! (3/3)
rmhcidaho.org
Decided to do my hair for #RareDiseaseDay2022 like my @Bake4Mito cupcakes, and it works out great because it was crazy hair day at school, too!
#Bake4Mito #CureMito #RareDiseaseDay #Mito
ALT Emma poses with her hair in a pair of buns that are bushes a green polka dotted cupcake liners on each side.
ALT Emma poses with her hair in a pair of buns that are bushes a green polka dotted cupcake liners on each side.
Another Helping retweeted
My daughter is proud to be a @GlobalGenes RARE Champions of Hope award nominee. I’m proud of how she supports others in the #Mito community.
12 years old & making an incredible difference in some trying circumstances. So much heart! 💚😍
#RareDisease #CareAboutRare #Bake4Mito
I’m proud to be nominated for a @globalgenes RARE Champions of Hope award this year! I’ll be celebrating with the #RareDisease community by watching the event on 11/18 at 7pm ET. RSVP here to join me:
facebook.com/events/58148180…
#2021COH #CareAboutRare #Bake4Mito #Mito
