@BLACKSWANFound

Foundation supporting Research on #RareDiseases worldwide. This channel is no longer fed; follow us on Bluesky https://xitter.cf/t.co/sWzt2hczRg

 Switzerland
blackswanfoundation.ch
Joined February 2010
  • Tweets993
  • Following386
  • Followers1.9K
189Media
Our Foundation decided to leave X because of misinformation and toxic discourse on the platform. You can find us at #bluesky. This channel is no longer fed. bsky.app/profile/rarevolutio…
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BLACKSWAN FOUNDATION retweeted
Mary Wang@marywangCM18 Mar 2023
Going to @irdirc conference and #REACTCongress is like going to an extended family reunion, in a good way. It’s the best community! And @EJPRareDiseases m&m’s are just irresistible! – at Berlin, Germany
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community@react_community18 Mar 2023
Terrific presentations in #diagnostics, #gene, #celltherapy, and new technologies, but how to bring treatments to #raredisease patients? The #REACTCongress 2023 will explore it with the Last session of the #REACTCongress 2023, “Systems thinking towards #access.” #RAREvolution – at Berlin, Germany
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Just posted a photo instagram.com/p/Cp5QVOKMAr3/…
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community@react_community17 Mar 2023
Day 3 and time for the session on #Gene and #Cell #therapy, and we start with the outstanding presentation of Guillaume Canaud #REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution – at Berlin, Germany
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#RAREvolution, great to see you @ClaudioCarta_4
Claudio Carta@ClaudioCarta_417 Mar 2023
#REACTCongress and @irdirc #conference 2⃣0⃣2⃣3⃣ ❗️ it was a pleasure to meet Olivier (@OlivierMenzel) Chairman & Founder of the @BLACKSWANFound @REACT_Community #RAREvolution #RareDisease #malattierare @istsupsan #UNIAMO #EURORDIS
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#RAREvolution
RE(ACT) Community@react_community16 Mar 2023
When friendship can help people living with a #RareDisease, thumbs up 👍🏻 for Paulien Klap. #REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution #DMD
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BLACKSWAN FOUNDATION retweeted
ERDERA@ERDERA_org15 Mar 2023
Day 1/4 of the RE(ACT) Congress & IRDiRC Conference: ✅ Meet Dr. Olivier Menzel (@OlivierMenzel) Chairman & Founder of the Blackswan Foundation on the first day of the event! – at Berlin, Germany
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#RAREvolution
ERDERA@ERDERA_org15 Mar 2023
Day 1/4 of the RE(ACT) Congress & IRDiRC Conference: ✅ Meet Dr. Olivier Menzel (@OlivierMenzel) Chairman & Founder of the Blackswan Foundation on the first day of the event!
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#RAREvolution
ERDERA@ERDERA_org15 Mar 2023
Day 1/4 of the RE(ACT) Congress & IRDiRC Conference: ✅ Meet Dr. Olivier Menzel (@OlivierMenzel) Chairman & Founder of the Blackswan Foundation on the first day of the event!
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community@react_community15 Mar 2023
It's time for the opening ceremony at the #REACTCongress with Ruxandra Draghia-Akli, the Queen 👑 and co-founder of @irdirc #irdirc #ejprd #blackswanfoundation #RAREvolution
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Happy to have you here @ Of note, the concept of the RE(ACT) Congress has been created by the great designer @demianconrad
Rare Disease Policy@RareDiseasesEU15 Mar 2023
Great to be in #Berlin this week for the #REACTCongress organised by @irdirc @EJPRareDiseases and @BLACKSWANFound ! Hearing about the latest in global developments for #raredisease diagnostics & screening, regulatory science, advanced therapies, &more! @NCL_RareDisease
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community@react_community15 Mar 2023
This is a start for the #REACTCongress 2023 in collaboration with @irdirc and @EJPRareDiseases @BLACKSWANFound #irdirc #ejprd #blackswanfoundation #RAREvolution
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Everything is set up for the 7th RE(ACT) Congress and 5th IRDiRC Conference in #Berlin @irdirc @EJPRareDiseases @react_community #raredisease #research #RAREvolution
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BLACKSWAN FOUNDATION retweeted
RE(ACT) Community@react_community10 Jan 2023
Happy New Year, 33% discount for the first 15 registrations! Register Now!
RE(ACT) Community@react_community22 Dec 2022
🎁🎄 Xmas gift! Get 25% off your registration fee for the RE(ACT) Congress & IRDiRC Conference. 🏷️Use the coupon "REACTXMAS". 🚨(Discount valid until December 25th) ℹ️ Speakers, registration, & more: react-congress.org/ #raredisease #RAREvolution #REACTCongress
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🎁🎄 Xmas gift! Get 25% off your registration fee for the RE(ACT) Congress & IRDiRC Conference. 🏷️Use the coupon "REACTXMAS". 🚨(Discount valid until December 25th) ℹ️ Speakers, registration, & more: react-congress.org/ #raredisease #RAREvolution #REACTCongress
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BLACKSWAN FOUNDATION retweeted
ERDERA@ERDERA_org7 Nov 2022
🚨At the RE(ACT) Congress & IRDiRC Conference, you'll get the opportunity to see @irdirc members Anneliene Jonker & Marc Doom's presentation during the « Therapeutic Development, innovative clinical trials, precision medicine » session Registration & more: bit.ly/2PXAgGu
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🚨Only 3 days left before the end of early bird registration (lower fee!) at the 7th RE(ACT) Congress and 5th IRDiRC Conference, held in person next March 2023 in Berlin 🇩🇪 . ℹ️More information: react-congress.org

RE(ACT) Congress

The first international congress on rare and orphan diseases, a human platform for knowledge sharing

react-congress.org
Check out Nord’s breakthrough summit on rare diseases and orphan products. rarerevolutionmagazine.us13.… #NORD #rareresearch instagram.com/p/CjkvbL2DKhu/…

NORD® Rare Diseases and Orphan Products Breakthrough Summit.®

Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.® Together, we can advance equity and innovation for the more than...

nordsummit.org
Great event happening. Register here: rarerevolutionmagazine.us13.… #beaconforrarediseases #DrugRepo22 instagram.com/p/CjkvCCksYZ6/…
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