Australian POTS Foundation│Non Profit Organisation. We strive to make a brighter future for those with postural orhtostatic tachycardia syndrome.
📍Adelaide, South Australia
Joined May 2022
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The poster competition at #Converge2026 deserves its own moment. 💙
8 researchers. 9 posters.
9 questions this field has been asking - and people who showed up with evidence, rigour, & genuine commitment to moving the dial for people living with #POTS & invisible illness. 1/9
*Soo Liang Ooi and team, led by A/Prof Sok Cheon Pak (Charles Sturt University) - the HSOP-POTS study protocol: investigating whether Hokkaido Scallop Oil Plasmalogen supplementation can improve cognitive function in children and adolescents with POTS. 8/9
Dr Alexis Cutchins opened with a 2002 study.
94 POTS patients compared with COPD & heart failure patients - 3 conditions not often compared.
Physical disability scores were equivalent.
"POTS is not all in your head, and it's not, it's not an emotionally driven problem"
"Patients are experts in their own experience."
A powerful reminder from Emma-Louise at #Converge2026 today.
When we listen with curiosity instead of assumptions, we create better healthcare, better research and better outcomes.
Healthcare needs to be patient-informed.
Big ideas. Cutting-edge research. Lived experience. Hope.
#Converge2026 has officially begun, bringing together some of the world's leading voices in POTS, Long COVID, ME/CFS, dysautonomia and complex chronic illness.
We'll be sharing highlights and key takeaways.
Stay tuned.
Australian POTS Foundation retweeted
As October is Dysautonomia Awareness Month we make sure we raise awareness of #PoTS every day throughout the month: 31-days of jam-packed ways to get involved!
We will be:
✨Sharing daily facts
✨Hosting special webinars and events
✨Sharing powerful patient quotes & stories
✨Lighting up buildings across the UK in purple
✨Raising awareness and vital funds to support our work
👉Follow along, get involved, and help us spread the word. Together, we can build understanding, support those living with PoTS, and push for the recognition this condition deserves!
💜Let’s make PoTS visible this October.
📲 Keep an eye on this page for updates and ways you can take part!
#PoTSAwarenessMonth #DysautonomiaAwarenessMonth #LivingWithPoTS #PoTSFacts
#LightUpForPoTS
Australian POTS Foundation retweeted
New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently.
- Teens: worse orthostatic symptoms
- Adults: more gut & bladder issues
Both report = poor QoL.
Proud to author this work.
👉 doi.org/10.5694/mja2.52710
@ADARC_UoA @DH_Lau @sahmriAU @AustralianPots
🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use.
Yet face longer diagnostic delays.
Led by @mcseeley @CelineGallaghe2 @DH_Lau
🔗bit.ly/4j3y0aH
📣 The APF was proud to advocate at Parliament House today with @MissingSchoolAU, championing kids with chronic illness who are missing from school.
🙏 @MeganGilmour & the team for driving this conversation! @mcseeley @CelineGallaghe2
instagram.com/p/DF_mk6vTTuQ/…
Australian POTS Foundation retweeted
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
go.nature.com/3ElLqQa
More research from @Stanford_Neuro showing the burden of #POTS and #autonomic disorders after #COVID
New from @Stanford_Neuro Among 491 individuals with no prior history of #autonomic disorders:
🔹 44% developed an autonomic disorder after COVID-19
🔹 75% of these had new onset POTS
link.springer.com/article/10…
📢 New Australian research on #POTS! 🇦🇺
Adelaide researchers have shown cerebral hypoperfusion in POTS is common.
These findings have major implications for clinical care and future research.
Read more: rdcu.be/d7UFW
@CelineGallaghe2 @DH_Lau @ADARC_UoA @mcseeley
Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders.
Read more: rdcu.be/d7UFW
@sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia
Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform.
🙏to @mcseeley & @celinegallagher for tireless advocacy & @Dysautonomia & Dr Jeff Boris for paving the way in the US.
instagram.com/p/DDq6H4ZvGkN/…
#POTS #Dysautonomia
