Anna Webb (@Anna_Webb) header
Anna Webb (@Anna_Webb) profile picture

Work for a medical research charity. Interested in #rarediseases, #outreach, #genomics, #patientengagement, #openscience

Leicester, UK
Joined May 2011
Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)Photo by Anna Webb (@Anna_Webb)
To Anna’s friends and former colleagues who follow her account. I’m sorry if I haven’t been able to contact you more directly and you are only finding out from this.
My wife died last week. She was the most amazing person. I’m at a loss.
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"I do not need to display luxury cars, luxury homes, trips, even planes. I prefer that my people receive a little of what life has given me," said the 30-year-old Senegalese Bayern Munich player.
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2 days ago I randomly bumped into the doctor who in 2017 told me “the good news is the problem you have in your hip can be fixed but you won’t be able to play professional sport again.” I think we dispelled that myth the last 5 days.😉Goodnight ❤️
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Genomics behemoth Illumina just unveiled what it calls its fastest, most cost-efficient sequencing machines yet, one that slashes the cost to just $200 per human genome. (Via @WIRED) trib.al/2L5uBsE
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Today is #RareCancerDay! #Osteosarcoma is a rare cancer. Join the herd and help @RareDiseases raise awareness and spread the word for #RareCancer. Visit bit.ly/RCD-22 to learn more.
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Tomorrow we are sending out the first Osteosarcoma Now Newsletter! Sign up for research updates and opportunities to get involved with our work. We will also be sharing the work of other charities including the @AgentsMIB webinar series. 👉Sign up now: bit.ly/3r639kP
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Anna Webb retweeted
Pls RT & help increase the number & diversity of excellent mathematicians. I’m hosting FREE online maths circles EVERY week. 13 circles per week. 6 ability levels Fully interactive. Anyone, anywhere welcome. Let's build the world's biggest maths circles. parallel.org.uk
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We are looking for help refining our innovative #osteosarcoma clinical trial database, ONTEX. If you have a connection to osteosarcoma (as a patient, family member or doctor) we would really appreciate your input. The survey takes no more than 5 minutes to complete. Please RT!
How can we improve our osteosarcoma #ClinicalTrial database? Complete this short survey and tell us what you want from a clinical trial database. It is open to everyone in the #osteosarcoma community. 👉bit.ly/3QPH4SS #ClinicalTrials #Sarcoma
Attend @RareBeacon’s #DrugRepo22 to gain the tools, connections and ways needed to bring your repurposing project to the forefront. Their conference will help you deliver your repurposing project, so others can look to you as a beacon of hope. lght.ly/6oben8g
We now have over 150 people signed up to the #BHDsyndrome International Registry. Can you help us get to 200 people? Find out more about the #registry and sign up at birt.healthie.net #kidneycancer #pneumothorax #raredisease
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Are you a cancer researcher interested in writing a review on some aspect of molecular biosciences, including cell signaling and biochemistry? I'm a reviews commissioning editor for @FEBS_Letters and would be interested to hear your ideas. Please RT.
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It's worth spending some time discussing what this new @whitehouse Open Science policy does and doesn't do, and what is still be to determined. whitehouse.gov/ostp/news-upd…
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We interviewed Dr Sandra Strauss @uclh about the ICONIC trial funded by @BCRT. The trial is actively recruiting in the UK and aims to increase our understanding of #Osteosarcoma and help direct future research. Watch the full interview here 👉bit.ly/3w3Z9Ec
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Happy to chat informally...
Could you be our new Trustee? The Myrovlytis Trust is recruiting trustees to help us at an exciting time. Range of experience considered, but part interested in HR, legal, scientific skills and those with lived experience of #rarediseases. bit.ly/3wa5spX
We were delighted to attend the @AgentsMIB FACTOR conference. The osteosarcoma community joined forces for an inspirational cause – to make things better for those with osteosarcoma. Read the highlights here 👉 bit.ly/3zO1khF @OSInstitute @ASweetcordero
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Put the "S" in ESG by taking care of your most important community: our kids. The Bardo Open 2022 is on August 15th. (see link in bio) All proceeds of this event will fund a promising Osteosarcoma research at Medical University of SC @MUSC_COM in partnership with @myrovlytis
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A systematic analysis of splicing variants identifies new diagnoses in the 100,000 Genomes Project rdcu.be/cSG0R
Genetic heart conditions could be cured for first time in ‘defining moment’ theguardian.com/society/2022…
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