Advocate. Speaker. Paradigm Shifter. White House Champion of Change for Precision Medicine 🧬, Pres of @BeADragonMaster
Probably on a plane
Joined September 2008
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If you aren’t sharing data with a sense of urgency, you are missing the point. Cancer & rare disease patients live in the now. They don’t have time to wait for you to publish a paper. This is not about you. It’s about them. #CuresNotCredit – at Kechi, KS
Collegiate #esports partnership to help kids with cancer! dragonmaster.org/press-relea…
I haven’t read this yet but the quote below is pure gold.
Is AI Flooding Medical Journals With 'Meaningless' Research? medpagetoday.com/special-rep…
"If medical schools and universities don't want the literature to be overwhelmed with garbage," ... "then they should probably stop giving every applicant ... an incentive to publish a lot of crap."
Ooohh! I bet I have followers who would like an app to track their meds! #realworlddata #PatientAdvocacy
Amanda Haddock 🧬 retweeted
The 13th edition of our Brain Tumor Guide for the Newly Diagnosed has just been released!
This free guide helps patients and families understand brain tumors, treatment options, clinical trials, and the questions to ask their medical team.
Read it online or order a free printed copy at:
virtualtrials.org/Guide.cfm
Please share it with anyone who may benefit.
I love people who release code for others. Reminds me of all the folks working on @wearecbtn
Amanda Haddock 🧬 retweeted
Photodynamic therapy (PDT) is a promising adjunct treatment for GBM, using light-activated compounds to selectively target tumor cells and promote anti-tumor immune activity. This review highlights current evidence and future clinical applications: link.springer.com/article/10…
Amanda Haddock 🧬 retweeted
The 2026 Childhood Cancer Data Initiative Symposium will explore data and AI opportunities to improve outcomes for children, adolescents, and young adults with cancer.
📅 Sept. 18 | In person + virtual
go.nih.gov/SA8yjBm
I offered help to a friend diagnosed w/ a complicated health issue by having a meal delivered. She referred me to the friend coordinating services. Yay!! I ❤️ that she put someone in charge & felt comfortable just referring me! Something so simple, yet so impactful! #PatientCare
Doing the work I do puts me in a position to talk to a lot of people who want to help a friend or family member with cancer. I wrote this blog post about some of the things we found handy when taking David in for treatments. thisgreymatters.wordpress.co… via @AmandaHaddock
Amanda Haddock 🧬 retweeted
Lin et al. characterized the molecular landscape of adult H3 K27-altered diffuse midline glioma following surgical resection. They found significant enrichment of RTK/RAS/PI3K pathway mutations. Read more at: link.springer.com/article/10… #MolecularOncology #NeuroOncology
Leaving #ISPNO2026 and got a lovely amenity bag on the plane. If you have more than you need of items like this, we can repurpose them for @beadragonmaster ! Send me a DM for details💕
Excited for the debate “Hope or Hype? Compassionate urgency to find new treatments has overcome scientific rigor” with @VitanzaNick and @RUNDIPG ‘s Matt Dunn #ispno2026
Exciting to hear about the work being done for kids with low grade gliomas because like Dr. Bandopadhaya says “No brain tumor is a good brain tumor” #ISPNO2026
This is perhaps the biggest “aha” moment for people I speak with outside of the cancer community. Not only do we need to learn more about these driving mutations, we need ways for researchers to interrogate the data pan-disease by mutation.
What can we learn by studying tumors one cell at a time?
Researchers used single-cell genomics to reveal how pancreatic cancers evolve, adapt, and diversify—offering new insights that could help inform future treatment strategies for this challenging disease. go.nih.gov/cgIV53Y
ALT An infographic reads, \"More than 30% of all human cancers are driven by mutations of RAS genes.\"
@theNCI has helped fund amazing work in this area in pediatrics. Leaders like
@wearecbtn @kidsfirstDRC @ARPA_H are pushing models forward for kids with cancer and rare disease.
Amanda Haddock 🧬 retweeted
How it started: the IBM 5110 in 1978. How it's going: AI-powered classrooms in 2026. Haddock Education's been here for all of it. We've helped schools evolve for 45 years and counting. 💾
gohaddock.com/contact-us
What was the first computer you ever used?
Amanda Haddock 🧬 retweeted
“We did the hardest thing in the history of American health care. We got the majority of American doctors to all voluntarily adopt a single technology platform.”
NBC News on how that happened, what U.S. physicians actually do with OpenEvidence, and how partnerships with NEJM, JAMA, NCCN, and Wiley make it possible.
Amanda Haddock 🧬 retweeted
My lab is recruiting a Postdoctoral Associate in informatics to investigate the epigenome of pediatric brain tumors. To join our team of motivated and professional molecular biologists and bioinformaticians, apply here: jobs.bcm.edu/job/Postdoctora…
Amanda Haddock 🧬 retweeted
Mauricaite reviewed over 50,000 GBMs and demonstrated that treatment after surgery varies widely across centers, with over 20% receiving no post-op therapy, highlighting disparities in care delivery
Read more here: link.springer.com/article/10…
#GBMResearch #BrainCancer
