@AlstromInternat
 58 countries
alstrom.org
Joined June 2014
  • Tweets11
  • Following57
  • Followers68
Alstrom Syndrome Int retweeted
NIH
@NIH25 Feb 2015
A5 @NIHClinicalCntr is the largest hospital devoted to clinical research and a major resource for rare disease patients worldwide. #NIHChat
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Alstrom Syndrome Int retweeted
Rare Disease Day@rarediseaseday16 Feb 2015
The 2015 video is OUT - bring people #livingwith a #raredisease out of the shadows: ow.ly/J8oHn
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Alstrom Syndrome Int retweeted
Genetic Alliance@GeneticAlliance30 Jan 2015
Genetic Alliance CEO @sharonfterry attends @BarackObama #PrecisionMedicine Initiative announcement. Watch it live: whitehouse.gov/live
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Involve the patient: #raredisease registries accelerate treatment & address knowledge gap about patients' daily lives bit.ly/1ICTMLG
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Alstrom Syndrome Int retweeted
Rare Disease Day US@RareDayUS8 Jan 2015
50 days until #RareDiseaseDay 2015! Be heard, tell your story. bit.ly/RAREStory #HandprintsAcrossAmerica
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The results are in! YOU DID IT!!!! You helped Alstrom Angels win $10,000! conta.cc/1sPINes Congratulations @AlstromAngels
Amazon donates to Alstrom Syndrome International when you shop @AmazonSmile. smile.amazon.com/ch/01-05151… #YouShopAmazonGives
Alstrom Syndrome Int retweeted
Rare Disease Day@rarediseaseday20 Nov 2014
100 days until Rare Disease Day - the website for #RareDisease Day 2015 launched today! Add your events now! thndr.it/14mDkAq
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Alstrom Syndrome Int retweeted
Cassie Johnston@CassieJohnstonJ6 Nov 2014
Are we part of your morning routine yet?? Get coffee...VOTE AGAIN! #constantcontact conta.cc/1x8WPWz
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Alstrom Syndrome Int retweeted
CENA Project@CENAProject6 Aug 2014
CENAs disease advocacy partners: @AlstromInternat @AXYSinfo @jsrdf @pxe @NGF_Gaucher @HFIconnect @IBCResearch @DCOutreachInc @MLDfoundation
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