Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation).

Miami, FL
Joined July 2009
Clinicians, scientists, laboratory experts, and patient representatives are gathering in Barcelona, Spain, for the first ERS Alpha-1 Antitrypsin Conference! The two-day meeting provides a forum to share new findings, exchange expertise, and explore future directions in Alpha-1 research and care. #ERSAlpha12026
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What should you know about Alpha-1 and liver health? Hear from Dr. Teckman at the Kansas City A1F Education Day on Saturday, November 7th, as he presents "Alpha-1 Liver Disease." Don't miss this opportunity to learn more and connect with the Alpha-1 community! Register today: alpha1.org/event/kansas-city…
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A1F is proud to exhibit at the American College of Chest Physicians (CHEST) meeting in Phoenix, AZ, October 19th–21st. We’re joining leaders from around the world to explore the latest advances in pulmonary, critical care, and sleep medicine and raise #Alpha1Awareness! #CHEST2026
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Take the next step in understanding your lung health at the Kansas City A1F Education Day on Saturday, November 7th! Hear from Dr. Riley as he presents "Alpha-1 and My Lungs: Understanding Monitoring, Treatment, and Next Steps." Gain valuable insights into managing lung health and navigating life with Alpha-1. Register today: alpha1.org/event/kansas-city…
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A1F Clinical Resource Centers (CRCs) from across the country recently came together at the A1F Leadership and Scientific Summit to share knowledge, discuss the latest in Alpha-1 research and care, and strengthen collaboration across the A1F CRC network. These centers provide access to healthcare professionals with expertise in Alpha-1 and serve as an important resource for patients and families. Find your local A1F CRC and connect with an Alpha-1 specialist near you: alpha1.org/find-an-alpha-1-s…
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Your plasma could support a therapy that someone with Alpha-1 depends on. During International Plasma Awareness Week, consider donating plasma to help make these essential therapies possible for patients who rely on them. Every donation counts. Learn more and find a donation center near you: pptaglobal.org/donate #IPAW2026
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Behind every plasma-derived therapy are hundreds of generous donors. A person with Alpha-1 needs about 900 plasma donations each year to receive treatment. This International Plasma Awareness Week, help us spread the word about the importance of plasma donation and its impact on the Alpha-1 community. #IPAW2026
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International Plasma Awareness Week begins today! Dr. Mary Ryan will bring the Alpha-1 perspective to "More Than Medicine: What Plasma Makes Possible for Patients" today at 10 am ET. Hear from Dr. Ryan and other patients and experts about what plasma and plasma-derived therapies make possible for those who rely on them. Watch live on YouTube at youtube.com/GivePlasma and learn more at plasmaweek.org. #IPAW2026
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Understanding the genetic differences behind Alpha-1 can help shape the future of research, diagnosis, and treatment. At the 30th Gordon L. Snider Critical Issues Workshop in Barcelona, A1F convened researchers, healthcare professionals, patient leaders, and industry partners worldwide to explore a clearer, more consistent framework for classifying SERPINA1/AAT variants. Read more about the discussions and their potential impact on the Alpha-1 community: alpha1.org/a1f-hosts-30th-gl…
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Kick off International Plasma Awareness Week, October 5–9, with “More Than Medicine: What Plasma Makes Possible for Patients” on October 5th at 10 am ET! The webinar will feature Dr. Mary Ryan, an Alpha-1 patient and member of the A1F Fred C. Walsh Speaker Bureau, alongside other patients and experts sharing their perspectives on the important role plasma and plasma-derived therapies play for people living with rare and chronic conditions, including Alpha-1 Antitrypsin Deficiency (Alpha-1). Watch live on YouTube at youtube.com/GivePlasma and learn more at plasmaweek.org. #IPAW2026
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