PhD student in palliative care research. Particular interest in models of care and out-of-hours research.
UK
Joined May 2012
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Our paper with @PalliativeMedJ is out: Community out-of-hours palliative care – ‘It’s a patchwork of services’ journals.sagepub.com/doi/10.…
Big thanks to co-authors and funder:
@MarieCurieEOLC @CatherineJanee1 @sabinebest
Key messages in thread.
4. See paper for full results: journals.sagepub.com/doi/10.…
3. We identify a model of care which facilitates high quality community OOH care from HCP perspectives. It provides patients and families with a single point of access, staffed by an experienced palliative care clinician, who coordinates the care across all involved services.
2. Three themes generated to understand barriers& facilitators of OOH care provision: (1) ‘It’s never one service’: coordination of care across multiple services, (2) Need for timely skilled management of symptoms, (3) ‘We’re just plugging gaps’: prioritising patient care
1. We identify 4 models of out-of-hours community palliative care characterised using: balance of provision between generalist and specialist services, the type of care (advisory and hands-on nursing care), the hours of availability, and the level of integration between services.
Alice Firth retweeted
If the Scottish Assisted Dying Bill passes, there will be places in the UK where people can access assisted dying, but not specialist palliative care.
Think about it.
Surely Orkney, Shetland and the Inner Hebrides need access to a specialist palliative care service? No specialist palliative care offer. Only option would be assisted dying. Can't see how this will "enhance the wellbeing of island communities" parliament.scot/bills-and-la…
Alice Firth retweeted
We are pleased to present our poster - A Delphi study to understand the most important components of out-of-hours community care for patients approaching the end of life and their family carers #EAPC2022 #CSIEAPC2022
Alice Firth retweeted
1/3 Incredible to hear Baroness @IloraFinlay give morning plenary at #PCC2022 on Clause 16 of the Health & Care Bill which, if passed🤞🏽, is set to put palliative care firmly on the map! Particularly happy to hear her note the centrality of research-based practice 🙏🏽 @PCCongress
'Contacts with community nurses were
associated with fewer hospital admissions in the last 30 days of life.' Great to read @jlenizmartelli paper this morning.
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Looking forward to Sarah Mitchell’s @MacGPSarah seminar at the CSI on 23rd March ‘“We’re all cogs in a big machine”: Learning from the experiences of primary care in the delivery of community palliative and end-of-life care during the COVID-19 pandemic.’
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Good quality palliative care at the end of life should be a right for all. An amendment to this bill to include palliative care is an important step towards this.
In just over a week's time the House of Lords will have a once in a generation opportunity, through the Health and Care Bill, to require every part of England to commission palliative care. Really hoping @DHSCgovuk will support an amendment to make this critical change.
Great then to read our PPI member Margaret Ogden’s EAPC blog post demonstrating involvement of family carers and patients in the Delphi process for out-of-hours care
eapcnet.wordpress.com/2022/0…
@CSI_KCL @CatherineJanee1 @RHardingCSI @DrFlissMurtagh
Alice Firth retweeted
.@scottamurrayed #MCResearch2020 - 'for many patients the last year of life OOHs can feel like a car chase from a #JamesBond movie' - 95% of people at the end of life access unscheduled care
Alice Firth retweeted
Delighted to be invited by @MarieCurieEOLC to present at the “Improving end of life for all” conference. I will guide you on how to challenge ethnic #inequity in your service. Sign up here.
👇🏽👇🏽👇🏽👇🏽👇🏽👇🏽👇🏽👇🏽bit.ly/3HVEHsF
Delighted to be speaking on out-of-hours palliative care at the Marie Curie conference this Sunday evening. Our project will be sharing results from our Systematic Review and Delphi study.
@CSI_KCL @CatherineJanee1 @RHardingCSI @DrFlissMurtagh @mariecurieuk
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Alice Firth retweeted
Shocking, and yet… not. We’ve known since last summer that higher numbers of people have been dying at home. Community nurses have needed to provide greater volume and greater complexity of end of life care. Without extra resource, of course it’s unsustainable.
Exclusive: Dying patients go without care as community nurses ‘on their knees’ independent.co.uk/news/healt…
