@AlexandraCPike

Haematologist | PhD candidate in PNH @UniversityLeeds @LIMRLeeds | Specialist interest in #PNH #AplasticAnaemia

 Leeds
Joined February 2018
  • Tweets14
  • Following395
  • Followers113
We're teaming up with the International PNH Interest Group to improve care for people with Paroxysmal Nocturnal Hemoglobinuria (PNH) in low-resource countries. PNH is a rare, debilitating blood disease that requires frequent blood transfusions & poses high risk without treatment.
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Join our PNH Awareness Campaign! 🌟 From Sept 6 to Oct 12, let's raise awareness about Paroxysmal Nocturnal Hemoglobinuria. Share our posts with #PNHAwareness2024, join discussions, and support those affected. Together, we can make a difference! 💪 #DidYouKnow #TreatingPNH
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Alexandra Pike retweeted
Louise Arnold@LouiseShackle7 Oct 2024
Access for all to support is vital
PNH Support@PNHSupport7 Oct 2024
Replying to @PNHSupport
Take a look at the video here. #PNHAwareness2024 @myeloidkings @LouiseShackle @AustinKulasekar @PNHScotland @leedshaem @GlobalPnh
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It was amazing to represent the wider multidisciplinary team at EHA presenting about PNH with the patients at the centre of everything. #eha2024 #pnh #acp @GlobalPnh @PNHSupport @PNHScotland
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Fantastic poster session yesterday. 🎉 Congratulations 🎉 to @AlexandraCPike and the team at Leeds, and to @AlexLubin6 & @bethpay and the team at UCL on their ASH Abstract Achievement Awards - a double win for Blood Cancer UK funded grants! 🏆 #ASH23
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Dr Jens Panse reminds the audience that 80% of #PNH patients have no access to #treatment = significant #inequality As #patients we collectively lobby to address this where we can @lichterzellen @aamdsif @pnhaacontact @hpn_asociacion @PNHCanada @AAundPNHeV @ERNEuroBloodNet – at Frankfurt on the Main, Germany
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committees.parliament.uk/com…

The future of clinical research in the NHS is under threat - Committees - UK Parliament

The House of Lords Science and Technology Committee has written to the Minister of State for Health and Social Care with the findings of its short inquiry into clinical academics in the NHS.

committees.parliament.uk
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Another very nice selected abstract evaluating disease burden and it’s implications for patients with #pnh within a UK-F-G consortium including QLQ-AA/PNH54 developed by ⁦@UniklinikAachen⁩ with strong support and collaboration ⁦@lichterzellen⁩ and ⁦@AAundPNHeV⁩
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Alexandra Pike retweeted
HaemSTAR 💙@HaemSTAR_UK8 Jul 2022
Congratulations to @UniversityLeeds' Prof Peter Hillmen for being awarded the Ernest Beutler Lecture and Prize, for 30 years of research on paroxysmal nocturnal hemoglobinuria. Great stuff! thelimbic.com/uk/haematology…

Leading UK haematologist honoured by ASH award

UK-based haematologist Dr Peter Hillmen has been awarded the American Society for Haematology’s (ASH) Honorific Award. Dr Hillmen was one of two haematologists to win the Ernest Beutler Lecture and...

thelimbus.co.uk
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Alexandra Pike retweeted
The AAT@AplasticAnaemia4 Jul 2022
Very proud to say that that the recent Leeds Covid vaccination study, funded by The Aplastic Anaemia Trust, has been published in The Lancet Haematology. theaat.org.uk/Blog/covid-vac… @TheLancetHaem

Covid vaccination research is published in The Lancet Haematology

We are very proud to announce that the recent Leeds Covid vaccination study, funded by The Aplastic Anaemia Trust, has been published today in The Lancet Haematology.

theaat.org.uk
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Alexandra Pike retweeted
@leedshaem@leedshaem4 Jul 2022
Congratulations to Dr Pike for her recent publication assessing SARS-CoV-2 antibody response to vaccine in patients with aplastic anemia and PNH; thank you to the patients for their participation thelancet.com/journals/lanha…

COVID-19 vaccination antibody responses in patients with aplastic anaemia and paroxysmal nocturnal...

Paroxysmal nocturnal haemoglobinuria (PNH) and aplastic anaemia are part of a spectrum of rare and potentially life-threatening bone marrow failure disorders that are thought to result from an...

thelancet.com
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New comment in @TheLancetHaem> #COVID19 vaccination antibody responses in patients with #AplasticAnaemia and paroxysmal nocturnal #haemoglobinuria thelancet.com/journals/lanha… #PNH

COVID-19 vaccination antibody responses in patients with aplastic anaemia and paroxysmal nocturnal...

Paroxysmal nocturnal haemoglobinuria (PNH) and aplastic anaemia are part of a spectrum of rare and potentially life-threatening bone marrow failure disorders that are thought to result from an...

thelancet.com
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Today musicians gather at 3pm in Trafalgar Square 💛💙#playforukraine @decappeal
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