@Addisons_and_AI

Adrenal Diseases Support Global/Group is the world’s largest social media support place for persons with Adrenal Diseases and Adrenal Insufficiency.

 Worldwide
facebook.com/adsg.home/
Joined May 2016
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VIDEO: At long last our video about Smartphone Medical ID Apps is here! #AdrenalInsufficiency.... fb.me/KXGSRpTA
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Today is international Addison's awareness day! Here is a picture that might help spreading the awareness regarding this disease. #addisonawareness #addisonday #addisonawarenessday #TogetherWeAreAIStrong
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Help make it happen for MD Dogs Against COVID19 igg.me/p/md-dogs-against-cov… #indiegogo via @indiegogo

Indiegogo

Indiegogo is where amazing projects come to life. Easily manage crowdfunding and pledge managers.

indiegogo.com
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It's #adrenaldiseasesawarenessmonth Have a peek at our page on Facebook, as this month we'll be sharing a lot of stories of patients on how they got to their diagnosis! facebook.com/adsg.home/ It's a bit lenghty to post on limited twitter, sorry about that!
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Many of you are wondering what to do regarding preparations for the COVID-19 virus. Our friends at the National Adrenal Diseases Foundation have recently issued updated recommendations for all patients with AI to follow the CDC recommendations for higher risk groups.
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If you'd like to read the NADF announcement, that can be found here: nadf.us/

National Adrenal Diseases Foundation

nadf.us
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As well, we'd like to remind everyone to familiarize themselves with the stress dosing recommendations for illness in AI- and make sure you have extra steroids available at home in advance. One excellent guide for stress dosing can be found here: adrenals.eu/stress-instructi…

Stress instructions - adrenals.eu

Increasing the hydrocortisone to prevent an Addison crisis This folder explains how you can prevent an Addison crisis (also known as an adrenal crisis) by increasing the dose of hydrocortisone...

adrenals.eu
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Adrenal Insufficiency is a rare disease. So rare that the "Specialists" who should know how to care for us often just do not have the knowledge needed. They are not up to date on the newest research and treatments as they may never see an AI patient in their entire career.
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Melissa Rae Hope Carla Vandyne Brittany Moser Madelyn Eugenia Elaterman Callum Cartlidge Ryan Steele Towle Wallace Wesley Barr III Kris Clay Phillip Hobt Christina Lynn Androff Crystal Amber Sloop Natasha Sosnoski
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Angi Mcelfresh Kelly Price Jadyn Wingier Julia Stangl Rohan Talim Laura Catheryn Early Sarah M Burns Deanna Nicole Brown Brandon Dailey Shawn McQuade Fifion Jones Cassie Daily Brandon Dailey Ronda Bowyer #RareDiseaseDay #Adrenalinsufficiency #AI #TogetherWeAreAIStrong
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