The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

UK & Ireland
Joined February 2015
Addison's Disease Self-Help Group (ADSHG) retweeted
💯 I've had crises where I would have been done if it not for having someone to administer as I was utterly unable.
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Addison's Disease Self-Help Group (ADSHG) retweeted
Replying to @GiuliaBould
Thank you @GiuliaBould! Here's how people can support the campaign for Safer Adrenal Crisis Care. 🏛️Invite MPs to our Parliamentary drop-in 🙋Volunteer skills or expertise to help grow our campaign. ✨Donate or fundraise so we can do more! Find out more➡️addisonsdisease.org.uk/advoc…
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Addison's Disease Self-Help Group (ADSHG) retweeted
Replying to @Bill_Esterson
@Bill_Esterson @andyburnham @YvetteCooperMP I have had Addisons disease for over 28 years! Please attend the drop in about safer adrenal crisis care! This will save lives! #addisonsdisease #adrenalcrisis
We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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Addison's Disease Self-Help Group (ADSHG) retweeted
"1 in 200 adrenal crises is fatal, yet patients face a 15-step injection process to save their own life."
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Addison's Disease Self-Help Group (ADSHG) retweeted
10 years ago today I was in resus & diagnosed with incurable, life-threatening Addison's Disease + 4 further resus trips I thought I'd be unable to fulfil my ambitions To anyone in that place, keep going. Magic happens when you back yourself. I hope I have more magic to come 💫
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Addison's Disease Self-Help Group (ADSHG) retweeted
We're pleased to promote the forthcoming, free #adrenalinsufficiency information & training session hosted by @AddisonsUK - which is available for ALL #paramedics and clinical #ambulance personnel. Register for the 9 Sept session at addisonsdisease.org.uk/adshg…
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Addison's Disease Self-Help Group (ADSHG) retweeted
On our #AddisonsDiseaseDay blog, meet Lottie & Emily. Both live with Addison's disease & use their personal experiences to turn awareness into action. Lottie as a paramedic, & Emily as a content creator. Read their stories ➡️ loom.ly/Fl2cSE4 (4/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
And who can resist having a photo with a blood tube almost as big as me 😬
Replying to @AddisonsUK
What made this #DifferenceInADay partnership extra special is @BDandCo manufacture the needles & syringes used in our emergency hydrocortisone injection kits 💉 Here's their giant model from the BD Innovation Room! Thank you BD & @taprootfound for your time & expertise. 2/2
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Addison's Disease Self-Help Group (ADSHG) retweeted
Never thought I would be be able to say I did a marathon! 🤣However so much energy and passion from @BDandCo and @AddisonsUK went into this great day formulating how we can improve emergency care for people with #adrenalinsufficiency Watch this space!
Our small but mighty charity spent the day with brilliant volunteers from @BDandCo for their #DifferenceInADay Marathon. With our team BD brought their expertise to one of our biggest challenges: reducing delays in recognising & treating adrenal crisis in emergency settings. 1/2
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @AddisonsUK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (23 June) at addisonsdisease.org.uk/Event… @ParamedicsUK #JRCALC
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Addison's Disease Self-Help Group (ADSHG) retweeted
I am one of just 8000 people with this rare, incurable & life-threatening condition. Big hello to everyone else in #Addisons club 🤘🏻 I hope you are all well and living your best life ❤️ I will be retweeting important info today from all in our community
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉 This year our theme is ‘Turn Awareness into Action’ ⤵️ loom.ly/Fl2cSE4 (1/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
📅 29th May is Addison’s Disease Day In late March I was diagnosed with primary adrenal insufficiency (aka Addison's). Since then I've been learning to live with this condition. Fortunately, so far so good, as my medication is working well and I feel much better than previously.
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉 This year our theme is ‘Turn Awareness into Action’ ⤵️ loom.ly/Fl2cSE4 (1/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
💜Today I'll post a bit more about living with Addison's Disease 🚨It's very rare, it's incurable & it can be life-threatening ⚽I've 2 sides to my life. The one where I'm loving life reporting on footy 🚑The other is being kept alive artificially every day #AddisonsDiseaseDay
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @AddisonsUK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (2 April) at addisonsdisease.org.uk/adshg… @ParamedicsUK #JRCALC
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Addison's Disease Self-Help Group (ADSHG) retweeted
**North East England** Do you have Addisons Disease or Adrenal Insufficiency? Book onto the Addisons Disease Injection Training and Sick Day Rules Refresher, link below addisonsdisease.org.uk/Event… @AddisonsUK @NorthumbriaNHS
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information and training sessions hosted by @AddisonsUK - available for all #paramedics and clinical #ambulance personnel. Register for the next one (Jan 26) at addisonsdisease.org.uk/Event… @ParamedicsUK #JRCALC
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Addison's Disease Self-Help Group (ADSHG) retweeted
My fave Christmas tree. Great to see the NHS Steroid Emergency Card being shared. My new year wish is for all health and care professionals to take note of the advice esp in EDs and acute care areas during the busy winter flu season.
Does your Christmas tree promote steroid-dependent patient safety?! We love this tree by the brilliant Endocrine Specialist Nurses @SheffieldHosp, with homemade NHS Steroid Emergency Card decorations🎄 Steroid Emergency Cards➡️ addisonsdisease.org.uk/stero… | @hormone_doc | @Soc_Endo
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Addison's Disease Self-Help Group (ADSHG) retweeted
🌍 Let's raise awareness this #InternationalDayOfPersonsWithDisabilities! Same person but the two sides of my life. Addison's Disease is very rare, life threatening & incurable. Resus trips become familiar to us unfortunately You never know what someone is dealing with 😊
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Addison's Disease Self-Help Group (ADSHG) retweeted
Great research group - please do share so we can learn from as many people as possible with adrenal insufficiency
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