The Global acute #leukemia #PatientAdvocacy network. Improving #AML #ALL #APL outcomes, awareness & experience #WorldLeukemiaDay #BeLeukemiaAware #ALANsummit
Global
Joined July 2017
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🩸🔬 #InsideLeukemia 🔬🩸
The type and subtype of leukemia, genetic and molecular features, age, overall health, previous treatment and individual goals can all influence treatment decisions.
#InsideLeukemia #ALAN #LeukemiaAwareness #PersonalisedCare #Treatment #PatientEducation
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☕💛 #SelfCareSunday 💛☕
A pause does not have to be productive to be valuable. Rest and comfort matter too. 🤍
#SelfCareSunday #ALAN #LeukemiaAwareness #SelfCare #Wellbeing #TakeABreak #YouMatter
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🌞💛 #WednesdayPositive 💛🌞
Accepting support, asking questions and saying when something feels difficult can all be forms of strength.
You are allowed to make space for help. ❤️
#WednesdayPositive #ALAN #LeukemiaAwareness #Hope #Support #Strength #TogetherWeAreStronger
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📣 One experience can highlight a need. Many experiences can reveal a pattern.
picker.fra1.qualtrics.com/jf…
#AcuteLeukemia #PatientVoice #GlobalSurvey #PatientExperience #Leukaemia #PatientAdvocacy #ALAN
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🧬🔬 #InsideLeukemia 🔬
Remission means that signs of disease have been greatly reduced and may no longer be detectable with standard tests. It does not always mean that every leukemia cell is gone
#InsideLeukemia #ALAN #LeukemiaAwareness #Remission #PatientEducation #BloodCancer
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🌿💛 #SelfCareSunday 💛🌿
Sometimes self-care is rest. Sometimes it is asking for help, setting a boundary or choosing one small thing that feels comforting. 🤍
#SelfCareSunday #ALAN #LeukemiaAwareness #SelfCare #EmotionalWellbeing #Rest #YouMatter
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💚 Today is World Mental Health Day.
Today, let’s make space for real voices, meaningful participation and support without stigma. ❤️
#WorldMentalHealthDay #MentalHealth #LivedExperience #PatientVoice #CancerSupport #ALAN #TogetherWeCare
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🌻💛 #WednesdayPositive 💛🌻
Sometimes the most helpful step is simply choosing what matters most right now and allowing the rest to wait.❤️
#WednesdayPositive #ALAN #LeukemiaAwareness #Hope #Wellbeing #OneStepAtATime #YouMatter
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🌍 Your experience can help build a clearer global picture.
Every response adds valuable perspective and helps strengthen the patient voice worldwide.
picker.fra1.qualtrics.com/jf…
#AcuteLeukemia #PatientVoice #PatientExperience #GlobalSurvey #Leukaemia #PatientAdvocacy #ALAN
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🩸🔬 #InsideLeukemia 🔬🩸
Understanding the purpose of each test can help patients feel more informed and prepared. ❤️
#InsideLeukemia #ALAN #LeukemiaAwareness #BloodTests #Diagnosis #PatientEducation
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🍂💛 #SelfCareSunday 💛🍂
Some days call for doing less, not more.
Self-care can be simple. What matters is making space for what you need. 🤍
#SelfCareSunday #ALAN #LeukemiaAwareness #SelfCare #Wellbeing #Rest #BeKindToYourself
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👥❤️ Today is the International Day of Older Persons.
Today, let’s celebrate older people and support a future where every person can age with dignity, inclusion and care❤️
#InternationalDayOfOlderPersons #ALAN #PatientVoice #PersonCentredCare #LeukemiaAwareness #CommunitySupport
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🌿💛 #WednesdayPositive 💛🌿
As Blood Cancer Awareness Month comes to an end, the need for awareness does not.
Let’s carry that awareness forward together. ❤️
#WednesdayPositive #ALAN #BloodCancerAwarenessMonth #LeukemiaAwareness #PatientVoice #TogetherWeAreStronger
🌍 Your experience can help build a clearer global picture.
Take part and help us reach more people. ❤️
picker.fra1.qualtrics.com/jf…
#AcuteLeukemia #PatientVoice #PatientExperience #GlobalSurvey #Leukaemia #PatientAdvocacy #ALAN
🧬🔬 #InsideLeukemia 🔬🧬
Every contribution helps move knowledge forward. ❤️
#InsideLeukemia #ALAN #LeukemiaAwareness #BloodCancerAwarenessMonth #ClinicalResearch #PatientAdvocacy
Acute Leukemia Advocates Network (ALAN) retweeted
Make Your Voice Heard: Participate in the Acute Leukemia Global Survey 🌍
Patient experience data is essential to understanding the unique challenges faced by the acute leukemia community and improving care pathways worldwide.
The Acute Leukemia Global Survey, conducted by Picker, is currently gathering insights directly from patients and caregivers.
Key Highlights:
• Global Reach: Open to acute leukemia patients and caregivers internationally.
• 16 Languages: Available in English, Spanish, French, German, Swahili, Portuguese, Japanese, Chinese, and 8 more languages.
• Format: Secure online digital survey.
Your lived experience can help identify gaps, inform researchers, and advocate for better healthcare outcomes.
👉 Take the survey today: link to the article
oncodaily.com/societies/acut…
@AcuteLeuk
🔴 Today is European Myeloma Day.
❤️
#EuropeanMyelomaDay #Myeloma #MultipleMyeloma #BloodCancerAwarenessMonth #PatientVoice #ALAN
