ACTIVE-HD is a source for information about all things pertaining to exercise, physical activity and physiotherapy in Huntington’s disease (HD).
Cardiff University, UK
Joined April 2013
- Tweets174
- Following234
- Followers456
- Likes45
ActiveHD retweeted
'We need to work together for better places to live, play and work' #TuesdayThoughts #ActiveDesign huffingtonpost.ca/evidencene…
ActiveHD retweeted
Great to see :) I can't say enough for the valuable insights people have given from their personal experiences to make sure research & engagement projects are relevant & accessible. Another perspective can make all the difference!
We're excited to announce that we'll be hosting our first BRAIN Involve Community Day on Sept 24! We're inviting existing BRAIN Involve members & members of the public with an active interest in helping us with the design of neurodegenerative research: bit.ly/2MtG6yo
ActiveHD retweeted
#WorldMentalHealthDay + mental health is such a key part of life for Huntington's Disease families. pls RT to support @jcarroll42 @DrEdWild
Great walk this morning #HDonthemove at EHA conference Sofia...let's get moving! @EuroHuntington
Rudi and Jessie of the EHDN physio WG leading 'HD on the move' walk at the 'Stronger together' @EuroHuntington Association Conference Sofia
Great PTJ podcast with @busse_monica - trial of a theoretically grounded physical activity intervention: ENGAGE-HD academic.oup.com/ptj/pages/p…
ENGAGE-HD study academic.oup.com/ptj/article… xitter.cf/Active_HD/status/87930…
In the study(previous tweet)people with HD were allocated to a physical activity coaching intervention or a social interaction intervention.
ActiveHD retweeted
Around 28,480 people live with a high genetic risk of inheriting HD in England in Wales #HDAwarenessWeek
ActiveHD retweeted
#LetsTalkAboutHD with #PopeFrancis
In the battle vs #HuntingtonsDisease, no one fights alone.
At HDSA, FAMILY IS EVERYTHING!
#HDSAFamily
ActiveHD retweeted
One by one, pope hugs over 100 patients suffering from rare disease: #Huntington's Syndrome romereports.com/2017/05/18/o…
ActiveHD retweeted
Last Stage of Huntington's Disease - Stages of HD #huntingtonsdisease #huntingtonsdiseaseawarenessmonth #hdstages
ActiveHD retweeted
@Active_HD Have you heard about @HDdennomore Set to be the world's largest global gathering for #HuntingtonsDisease
Hey @HDAI_ie @EmmaYhnell @BRAIN @EuroHuntington have you seen this? -Experiences of a walking group in South Wales? youtu.be/nyRJhwkvnvE
ActiveHD retweeted
Looking forward to seeing @UoLEngineering take part in #LightItUp4HD tonight for #HDAwarenessWeek. Thank you for your support
So it's #hdawareness week! Physical activity in HD? Check this out! youtu.be/nyRJhwkvnvE @HDAwareness @HDA_tweeting @HDdennomore
ActiveHD retweeted
Please RT this survey widely and spread by email, snapchat, snail-mail and carrier pigeon to all HD contacts especially those off the grid! xitter.cf/HDBuzzFeed/status/8489…
IMPORTANT for all #HuntingtonsDisease family members: @HuntingtonSG / @HDSA survey aiming to improve access to care goo.gl/k9W0Rx