Patient-oriented researcher “SHARE”-ing the responsibility for better healthcare (https://xitter.cf/t.co/MNr4HPF5Q1). Views are my own.
Winnipeg, Manitoba
Joined November 2018
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In the last episode of Season 2, patient partner Kathy Smith offers a recap and points to ponder from last week's episode of @asPERusual_pod focused on @ChildBrightNet. Head to asperusual.substack.com or any major podcast platform to check it out. Season 3 coming in Fall 2024.
What if art could revolutionize how we engage patients in health research? Read our latest publication to learn how: onlinelibrary.wiley.com/doi/…
@EmilyK_Phillips @TheRakeshArora @CHImbca @Passerelle_NTE @UofM_Pharmacy @PatientAdvisors @PxPHub
We are seeking 4 to 6 patient partners to help us co-analyze data on facilitators and barriers to the patient partner role. Visit here for more info and plz share this opportunity with others: asperusual.substack.com/p/bo…
#ppi #PatientEngagement
In asPERusual's last episode of season 2, I speak to @ChildBrightNet about engaging families and youth in research. Head to asperusual.substack.com and check it out! @Passerelle_NTE @PxPHub @PatientAdvisors @CHImbca @asPERusual_pod @um_research
🎧 On @asPERusual_pod, Nominated Principal Investigator & Scientific Co-Director Annette Majnemer, interim Director of Engagement Carrie Costello and youth member @gillatsandf speak to @AMChudyk about how authentic engagement happens in our network: open.substack.com/pub/asperu…
ALT SPOR CHILD-BRIGHT. Practical considerations for engaging youth and families. Headshots of guests Carrie Costello, Annette Majnemer and Gillian Backlin. To the right, the logo for the AsPERusual: a podcast for practical patient engagement.
Interested in the future of #patientoriented research? In the latest episode of asPERusual - a podcast for practical #patientengagement - @AliesMaybee & @DonnaRubenstein share key findings from @PatientAdvisors recent #patientled report on the matter. asperusual.substack.com
Interested in joining the Canada-wide conversation about your #healthdata? Tune into the latest episode of @asPERusual_pod (asperusual.substack.com) to learn how you can have a say in how your healthcare data are collected, accessed, and used through the work of @hdrn_rrds.
Thanks again Kim McGrail, Frank Gavin, and Catherine Street for coming on! @335westmontave @kimchspr @NL_SUPPORT_Unit @CHImbca @Passerelle_NTE @PatientAdvisors @PxPHub @UofM_Pharmacy @sbrc
Check out the latest episode of onePERspective (asperusual.substack.com) for a recap of our @_DiabetesAction podcast episode, including tips on key features and players of #patientengagement and simple questions to ask when evaluating your #engagement processes
I’m here bright and early to present at #aats2024 on #patientengagement. Later today - Arnold Schwarzenegger is presenting as well. Unsure what I’m more excited for 😬 #ppi
In the latest @asPERusual_pod I learn all about #innovation, #evaluation, and #interdisciplinary connection in #patientengagement in research through conversation with @_DiabetesAction. Tune in or read the interactive transcript here: asperusual.substack.com @kristalamb #diabetes
Calling all those interested in increasing capacity for patient engagement and patient-oriented research! Check out the latest episode of onePERspective (asperusual.substack.com) for a synopsis of @asPERusual_pod episode featuring @Passerelle_NTE who are focused on just that!
The infographic below summarizes our #patientpartner co-host's key take-aways from the @Passerelle_NTE episode. Please feel free to share yours as well! Happy listening!
#ppi #patientengagement #capacitybuilding @PxPHub @CHImbca @PatientAdvisors @CIHR_ICRH @SPORAlliance
In the latest @asPERusual_pod, guests @delanelinkie and @buckleyn1 discuss @CIHR_IRSC's Chronic Pain Network (@cpn_rdc), including its history and open-minded and inclusive #patientengagement culture. Listen at asperusual.substack.com or wherever you DL your other podcasts.
@BNightsCRPS - I think some of your members may be interested in this podcast. It features a Canadian research network (@cpn_rdc) focused on #pain research
We're looking for 2 patient partners to engage on a scoping review of patient engagement in pharmacy practice research. More info here: linkedin.com/pulse/opportuni… via @LinkedIn. Plz share with your networks @CHImbca @PatientAdvisors @PxPHub @DeprescribeNet @deprescribing
Interesting opportunity to pursue a funded #phd focused on #patientengagement (also know as patient and public involvement, #ppi ) in Ireland.
Are you interested in pursuing a #PhD in #PPI?
We have a really exciting @SPHeREprogramme PhD opportunity available.
Stipend: €25,000 +laptop and fees
See here for more info: shorturl.at/cmrAN.
Closing date: 12 noon, 22nd April.
@PPI_Ignite_Net
If you’re interested in patient engagement in research (and not necessarily obtaining a PhD) it’s still worth checking out @PPI_Ignite_UCC and @SPHeREprogramme for ideas on capacity building for patient-oriented research outside of North America.