To cure ALS through funding research, while advocating for and supporting people living with ALS.
Richmond, BC
Joined March 2011
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ALS Society of BC retweeted
🏒 In September on Parliament Hill, NHL Alumni Mark Kirton shared his powerful fight against ALS, joined by friends, family, and hockey legends like Wayne Gretzky and Darryl Sittler. In an emotional moment, Gretzky called Kirton a "hero," reflecting on their longtime friendship and Kirton’s relentless advocacy for ALS awareness and funding. Sittler echoed the sentiment, likening Kirton’s resilience to Terry Fox, acknowledging his drive to make a difference. 🏒
With support from hockey-world figures like Brendan Shanahan, Dave Poulin, and more, Kirton’s ALS Super Fund has raised over $1M in just nine months—proof that change is possible with community and collaboration.
Read the full story here: bit.ly/48IjT6A
Join us on December 5, 2024, for Courage to Fight: Together We End ALS — a free virtual event dedicated to raising awareness and supporting ALS research. Stand with Mark and advocates around the world as we fight for a cure. Let’s end ALS together! #EndALS
ALS Society of BC retweeted
Dig out your craziest socks and help us make a difference at the 2024 PRCs!🧦🙌
@als_bc and #BCRugby have joined together for #CrazySocksForALS on July 6 at the 2024 #PRCs. Wear your craziest socks and donate to a great cause!
Learn more & donate 👉 ow.ly/78O850Srafn
ALS Society of BC retweeted
Scientists & clinicians join efforts at the new Amyotrophic Lateral Sclerosis & Related Disorders Clinic at @DMCBrainHealth to accelerate research, outreach & care accessibility for patients with ALS: ow.ly/7G5950SioHM @ALS_BC
ALS Society of BC retweeted
🎉 Big news, Canada! 🎉
With incredible support from NHL teams, individuals, and communities, the ALS Super Fund has surpassed $1M in donations! Special thanks to former NHL player @KirtSpeaksALS for his inspiring leadership. 💪💙
Read more here: alssuperfund.ca/united-for-a…
#EndALS
ALS Society of BC retweeted
980 CKNW is proud to support the @ALS_BC Project Hope! Fight ALS & bring HOPE! Led by UBC's ALS experts, join the movement to defeat ALS and ignite a beacon of hope for everyone touched by this disease. Learn more at: trib.al/Q6W2B00 #PROJECTHOPE #ALSBC
ALS Society of BC retweeted
🧠 This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how to deal with our emotions like guilt and anxiety. 🤗ow.ly/Hga550QMOMJ
ALS Society of BC retweeted
Tune in to hear Darryl, one of our members, bravely share his journey of living with ALS. Join us in our mission to #EndALS.
ALS Society of BC retweeted
Today is @UN International Day of Charity un.org/en/observances/charit… . Please consider giving or volunteering with your favourite ALS/MND charity - our member organizations fill the gaps for people living with ALS/MND globally! #ALSMNDWithoutBorders
ALS Society of BC retweeted
Give back & pay it forward by donating to one of 86,000 charities at the link in bio. Visit: canadahelps.org/en/
#charity #nonprofit #canadahelps #didyouknow
ALS Society of BC retweeted
We had a great day at the 21st Annual Shuhachi Naito Golf Classic, swinging our clubs & supporting the @ALS_BC and @theVHEC.
Thanks to our amazing sponsors, we had a blast and made a positive impact. Let's keep the giving and fun spirit alive! #Noplacelikecoast #Coasthotels
ALS Society of BC retweeted
It's the 21st Annual Coast Hotels Shuhachi Naito Golf Classic Day!
Tee off with us at Tsawwassen Springs Golf Club in Delta, BC. All proceeds from this event will support the @ALS_BC and the @theVHEC. We wish all players, volunteers and spectators a great time on the greens!
ALS Society of BC retweeted
7 Rounds played, 2 Eagles and 82 Birdies were made by these three guys yesterday in support of the ALS Golfathon! Nice work fellas! @ALS_BC @RTadeycpga @JBakaPosher @CaelanBooth #alsgolfathon
ALS Society of BC retweeted
We have had 748 people living with ALS/MND and 837 caregivers give us their feedback on whether their fundamental rights are respected. Can you spread the word and see if we can get over the 1000 mark for both? The survey link is: survey.alchemer-ca.com/s3/50…
#ALSMNDWithoutBorders
ALS Society of BC retweeted
Are you a person living with ALS/MND who has an interest in research? Please apply to be a Patient Fellow at the International Research Symposium this December in Basel, Switzerland and online. alspatientfellows.org/ #ALSMNDWithoutBorders #ALS #MND #ELA
ALS Society of BC retweeted
👏THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 1000 signatures! Let's keep the momentum going!
🇨🇦PLS SIGN HERE 👉 lnkd.in/g7_tZ8KZ
ALS Society of BC retweeted
Join @NEALSConsortium webinar to understand - What do researchers and scientists mean when they describe a study as “statistically significant?” How do people with ALS and clinicians understand whether or not a treatment option is “clinically significant?” register.gotowebinar.com/reg…
ALS Society of BC retweeted
A group of Australian researchers are making it easier for people living with MND to play videogames. Dr. Matthew Harrison wants to connect players with ALS/MND with other gamers to maintain social connections and build new friendships. #ALS #MND #ALSMNDWithoutBorders
ALS Society of BC retweeted
We have some 230 people coming to the Alliance Meeting and 440 to the Allied Professionals Forum including the largest contingent of people living with ALS/MND attending in history. You can still join us at pheedloop.com/EVEOHKCATAZOQ/… #ALSMNDWithoutBorders #ALS #MND
ALS Society of BC retweeted
Join us on October 25th for our webinar on Genetic Counselling. Learn about different types of genetic testing and genetic counselling considerations before testing. English and Spanish captions available. us02web.zoom.us/webinar/regi… #ALSMNDWithoutBorders