The Public Policy Department of The ALS Association. We provide people with ALS and their families an active and strong voice in Washington DC.
Washington, DC
Joined April 2011
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Legislation has been introduced to waive the five month SSDI waiting period for ppl living w/ #ALS! You can help! bit.ly/1Te0cKh
Please join us at @alsassociation for the latest information about ALS-related public policy priorities, progress, and achievements. We will no longer be posting on this handle. Thank you! #MND #ALS #ALSadvocacy
Please join us at @alsassociation for the latest information about ALS-related public policy priorities, progress, and achievements. This account will be deactivated on March 15. Thank you! #MND #ALS #ALSadvocacy
Please join us at @alsassociation for all the latest information about ALS-related public policy priorities, progress, and achievements. This account will be deactivated on March 15. Thanks! #MND #ALSadvocacy
Thank you to @RepDerekKilmer for meeting with advocates from @ALSA_EC last week and helping people with #ALS by cosponsoring #HR5183!
ALS Public Policy retweeted
Thanks, @SenatorBurr, for cosponsoring S. 2904. All of us in the ALS community give our heartfelt thanks.
1,500 advocates have sent nearly 4,500 messages to Congress urging them to cosponsor #HR5183 and #S2904. Have you? bit.ly/1Te0cKh
Thanks to @repblumenauer for supporting the #ALS community and his friends with @ALSAofORSWWA by cosponsoring #HR5183!
Great support for #HR5183 from New York: thanks to cosponsors @RepKathleenRice, @RepPaulTonko & Rep. Peter King! @ALSofGNY @ALSAUpstateNY
After meeting with advocates from @ALSofDcMdVa last week, @Call_Me_Dutch is now a cosponsor of #HR5183. Thank you from the #ALS community!
Thank you to @RepTimRyan for cosponsoring #HR5183 to waive the SSDI five-month waiting period for people with #ALS! @ALSANorthernOH
ALS Public Policy retweeted
I’m cosponsoring the ALS Disability Insurance Access Act (S.2904) because people with #ALS don’t have time to wait.
This week, @SenatorBurr cosponsored 2 bills to help people with #ALS: S. 2196 (CRT) and S. 2904 (SSDI). Thank you Sen. Burr! @catfishchapter
Thank you to @SenSchumer for cosponsoring S. 2904 to waive the SSDI five-month waiting period for people with #ALS! @ALSAUpstateNY @ALSofGNY
ALS Public Policy retweeted
This is so important. On average, an ALS patient lives 2-5 yrs after diagnosis. 5 mos is too long! #ALS #Help xitter.cf/ALSPublicPolicy/status…
Legislation has been introduced to waive the five month SSDI waiting period for ppl living w/ #ALS! You can help! bit.ly/1Te0cKh
Learn how you can help people living with #ALS in just a few clicks! bit.ly/1Te0cKh
ALS Public Policy retweeted
Focus on #ALS and the Nat’l ALS Registry in a new journal article associating environmental toxins and ALS at 1.usa.gov/1TzcmYC.
ALS Public Policy retweeted
ATSDR at ALS Advocacy Day Conf. in Wash. DC discussing the Nat’l #ALS Registry. Learn more: cdc.gov/als
.@LorriCarey was a featured panelist at #Cures4Rare to highlight why we need treatments now! #alsadvocacyday
