Alliance for Headache Disorders Advocacy and The Headache Alliance are sister orgs dedicated to making life better for those impacted by headache disorders.
New Jersey, USA
Joined June 2017
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We can’t wait! It’s going to be a great conversation!
CHAMP's @Medical_Oddity is joining the conversation! 💜 On Oct. 19, she'll share her experience living with trigeminal neuralgia during The Trigeminal Connection, a virtual Lunch & Learn hosted by @AHDAorg in partnership with @facialpainassoc.
forms.allianceforheadacheadv…
Thank you @BrainHealth_AAN and @NataliaRostMD! We’re so proud of the strong partnership between our organizations!
@AHDAorg lunch and learn being recognized at the @AANmember #BrainHealth summit! So grateful for the productive collaboration between the AAN and THA for an insightful & important webinar.
AHDA/THA retweeted
Your voice can move the HEADACHE Act. On Thurs, Sept 3, call your U.S. Rep and ask them to support H.R. 5536 and push for a hearing or markup. View the resource toolkit here: bit.ly/4xJnCN1
#HEADACHEAct
Join us on August 17th!
Join @aanmember Dr. José Posas and patient advocate Lisa Benson for the webinar, Headache Health Is Brain Health: Why Headache Disorders Belong in the Conversation, cohosted with @AHDAorg.
When: August 17, 12:00 p.m. - 1:00 p.m. ET
Register today: hubs.la/Q04r-tLj0
#BrainHealth
AHDA/THA retweeted
Today is #SpeakOutForHeadacheHealth, an @AHDAorg advocacy event that brings patients, advocates, clinicians, researchers, policymakers together to call for the care, research, recognition this community deserves.
youtube.com/live/oJUXGdhgT4Y
#MHAM #PathToBetterDays #FlagsForHeadache
#StepTherapy delays care and can cause unnecessary suffering and progression of headache disease. AHDA’s appreciates the conversation with @RepJamesComer, @HHSGov, & @RobertKennedyJr on the need to reduce barriers to treatment. #PatientsFirst #migraine
So proud of our youth advocates! Way to go, Jonathan! #HOH2026
Words cannot express how proud I am of Jonathan, who presented the #SafeStepAct to Courtney Kaufman from @RepMikeLawler office during our meeting for #HOH2026 !
#AHDA
#youthadvocacy
We are so grateful to @RepBrianFitz for being a champion for people living with migraine and headache disorders as one of our lead sponsors of the #HEADACHEAct! #HOH2026
Had a great meeting with @AHDAorg and two outstanding PA-1 constituent advocates—Jenn Schacht of Doylestown and Ashley Bennett of Chalfont.
Their lived experience and insight are exactly what shaped the bipartisan Headache Act I introduced in September with Congresswoman Lori Trahan—the first-ever coordinated federal initiative focused on headache disorders.
With more than 40 million Americans affected—and headaches the leading cause of disability worldwide—this issue demands a thoughtful and serious national response. Our bill establishes a National Headache Disorders Initiative at HHS, strengthens access to care and workforce capacity, improves data, and keeps patient voices at the center of policy.
Jenn and Ashley, thank you for your leadership and for bringing real-world perspective to this effort. It’s a powerful reminder that advocacy here in PA-1 is helping drive national change. I look forward to continuing our work together with you and the entire AHDA team to continue this progress.
AHDA/THA retweeted
So happy to participate with fantastic @ScottWPowers in #HOH2026 @AHDAorg 👏 @ahsheadache @AANmember #AANAdvocacy @miles4migraine 👏👏
AHDA/THA retweeted
#AANAdvocacy @AANmember Policy Forum #HOH2026 @AHDAorg @miles4migraine @WNGtweets @ahsheadache
No one should have to shrink their life around pain.
Your support helps us lift up patient stories, grow youth programs, and bring Flags for Headache back in 2026.
Give here: forms.allianceforheadacheadv…
#givingtuesday #migraine #headachedisorder #chronicpain #patientadvocacy
Don't forget about #HOH2026 applications. We'll be processing our first round of acceptances the last week of October! Applications will be accepted on a rolling basis through 12/05 but apply early for the best chance at reserving your spot!
Applications are open for Headache on the Hill 2026! No prior experience is required. Patients, caregivers, clinicians, & researchers are encouraged to apply. Kids are welcome too with a dedicated youth track!
Apply forms.allianceforheadacheadv… #HOH2026 #Migraine #PatientAdvocacy
Medication isn’t the only answer for #migraine.
Join us 10/30 at 12 ET for our next Lunch & Learn:
Complementary Approaches for Migraine Care: Biofeedback & Physical Therapy
Hear from medical experts + patients
Register ➡️ forms.allianceforheadacheadv…
It’s #DAFDay! Your #DonorAdvisedFund can help The Headache Alliance build community, raise awareness, and train advocates. Support our work to make headache disorders impossible to ignore.
➡️ HeadacheAlliance.org/donate
The headache community was well represented at our member organization’s Policy & Advocacy Summit! @patientaccess, thanks for a great morning! #patientadvocacy
Applications are open for Headache on the Hill 2026! No prior experience is required. Patients, caregivers, clinicians, & researchers are encouraged to apply. Kids are welcome too with a dedicated youth track!
Apply forms.allianceforheadacheadv… #HOH2026 #Migraine #PatientAdvocacy
AHDA/THA retweeted
Thank you very much to Rune Moore in @repmcdowel.bsky.social office for taking the time to me with the NC #HOH2025 team yesterday.
you can take action here: forms.allianceforheadacheadv…...
AHDA/THA retweeted
Thank you Brandon Machado w/ @RepRoKhanna for meeting with us during #HOH2025 and listening to our asks to support the #HEADACHEAct and the #SafeStepAct. These bills will reduce stigma, expand research, and improve access to care for millions.
#Headache #Migraine
@AHDAorg
AHDA/THA retweeted
Feeling FOMO about Headache on the Hill? Join us and send a message to your reps today!
#HOH2025 @AHDAorg
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