Establishing Effective Diagnostic Criteria for Lichen Sclerosus (SHELLS) The SHELLS study aims to improve the diagnosis of vulval lichen sclerosus
Nottingham
Joined July 2023
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Today is World Lichen Sclerosus Awareness Day! We are excited to share with you a new LS information website created by our study chief investigator, Rosalind Simpson in collaboration with many other specialists and patients!
Learn more about LS here:
lichensclerosusguide.org.uk
SHELLS retweeted
WE WON! The LS Guide won an award for 'Communicating effectively with patients and families' at the Picker Experience Network National Awards last week. Our fabulous patient representative Clare Baumhauer @VulvalCancerUK also won for her individual patient contribution.
#PEN25
The Lichen Sclerosus Guide Won and so did I as patient contribution 🥳🥳🥳🥳🥳
lichensclerosusguide.org.uk/
What a great team we are☺️
We've reached 50 participants in the SHELLS study! Well done to all of our recruiting sites who are doing a brilliant job, let's keep up this great momentum!
SHELLS retweeted
BBC5 Live: That Time Of The Month: Spotlight on Lichen Sclerosis
bbc.co.uk/programmes/p0kqqx1…
Guess how many times we said “Vulva” and “Vagina” at lunchtime!??
We had such a massive response to this episode of That Time of the Month on BBC5 Live hosted by @TVNaga01 @DrEkechi and Me as we discussed everything about #lichensclerosus. We were joined by Clare Baumhauer founder of @LichenSclerosisUK & @VulvalCancerUK who shared her lived in experience
If anyone wants more information- here are list of trusted sources:
@WellbeingofWmen
wellbeingofwomen.org.uk/news…
Dedicated website in partnership with British Society of the Study of Vulval Disease, and the British Association of Dermatologists
lichensclerosusguide.org.uk/
@eveappeal
eveappeal.org.uk/tag/lichen-…
Click here to listen 🎧 to our episode 👇🏻
bbc.co.uk/programmes/p0kqqx1…
#WomensHealth #LichenSclerosus #TTOTM
Producer: @alisonacton
SHELLS retweeted
Ever wondered what happens to the skin in lichen sclerosus? Watch our video 'What is vulval lichen sclerosus?' vimeo.com/1044752540 and visit lichensclerosusguide.org.uk/…
The new LS Guide launched a week ago today! Have any initial thoughts or feedback about the website? Follow this link to share: lichensclerosusguide.org.uk/…
SHELLS retweeted
Our Lichen Sclerosus Guide is now LIVE! It's an incredible resource for people with vulval LS and also for healthcare professionals who want to know more about how to diagnose and support people with this condition. Visit us at lichensclerosusguide.org.uk/
SHELLS retweeted
This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a brand new resource for people who have vulval lichen sclerosus (LS). The aim is to empower people living with LS to learn about the condition, access the right treatment, and live more comfortably.
SHELLS retweeted
This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a new resource for people who have vulval lichen sclerosus (LS), their loved ones, and health professionals who support them.
instagram.com/p/DEwmrqzN89z/…
Merry Xmas and happy new year from the SHELLS team! We are closing the year with 9 research sites opened and 25 participants recruited. We look forward to making even more progress in 2025!
Well done to Salford Royal Hospital and St Mary's Hospital for recruiting their first participants into the SHELLS study! @NCAlliance_NHS
