Developing a data quality and utility label for the European Health Data Space (#EHDS) | Horizon Europe-Funded project
Joined February 2024
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🦋 We have moved from X to @bluesky — follow us there for all news, events, and updates!
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🏷️#Healthdata labelling supports faster research, better care, & stronger trust in #publichealth policy. Hear real patient stories on how it makes a difference.
📅 6 May | 14:00–15:00 CET
📝 Register: sciensano.webex.com/weblink/… #PatientVoices #EHDS #DataQuality
QUANTUM Project retweeted
#QUANTUM : vers un #label européen de qualité des données de santé ! 🚀
Grâce au financement du programme #EU4Health, le projet @quantumCSA livre ses premiers travaux pour la création d’un label de qualité et d’utilité des données de #santé🔎
📖 Découvrez les deux premiers rapports, rédigés par le @HealthDataHub et la Gesundheit Österreich GmbH (GÖG), sur les spécifications techniques du label, la qualité et la maturité des #données : health-data-hub.fr/actualite…
🇮🇹 QUANTUM event in Rome gathering project's partners, key stakeholders and experts to discuss on how to build a High-Quality Health Data Ecosystem was officially opened by @FideliaCascini (@Unicatt); Serena Battilomo (Italian Ministry of Health) and @jdebarros28 (@EU_Commission)
Interesting panel discussion on the value of #dataquality labels in #healthdata systems at QUANTUM event, with: Ignacio Blanquer (EOSC), Peija Haaramo (@FindataFi), Riccardo Bellazzi (@unipv), and Ana Cochino (@EMA_News). The panel was moderated by Petra Hoogendoorn (@Label2E)!
🇮🇹2nd panel led by Monica Jones (@HDR_UK), discussing on the future of #DataQuality in the #EHDS, with @FideliaCascini; Truls Korsgaard; Pamela Dobay (@EFPIA); @giambric (@eurims); @juanarenasmarqz (@ELIXIREurope); Claudio Saccavini (@IHE_Catalyst), Giuseppe D’Avenio (@istsupsan)
🇮🇹 Another intense day in Rome for the QUANTUM General Assembly, presenting and reflecting on our latest outcomes on developing the health #DataQuality label for the European Health Data Space (#EHDS). Big thanks to all project partners for their commitment! 👏
This morning’s General Assembly brought together partners to review progress, align on next steps & share expert insights. We’re keeping momentum strong for improved #healthata quality! A special thank to the QUANTUM Advisory Board for their insightful feedback and suggestions.
🇮🇹 QUANTUM family reunited in Rome for 3 days with projects partners and stakeholders, to highlight our latest outcomes and next steps towards the development of a robust labelling system for #dataquality within the European Health Data Space. #EHDS
👉 quantumproject.eu
QUANTUM at #HealthDataSummit2025!
💬 Enrique Bernal-Delgado (@iacs_aragon) highlighted our work on a #dataquality & utility label for #EHDS.
🛠️ Hands-on workshop by Claudio Proietti Mercuri & Yaëlle Assous on our pilot tool to assess data quality, utility & data holders' maturity
👥 2 great speakers on the agenda:
🔹 @FideliaCascini (@Unicatt) will give an overview of the #EHDS legislation and of the distinction between primary/secondary use of #healthdata;
🔹 Beatriz Barros (@sciensano) will analyse and reflect on the data categories covered by the EHDS.
😊 Join us for the first session of the QUANTUM Patients & Citizens Forum online series!
📅 March 25, 2025
🕑 14:00–15:00 CET
💬 Session 1: What kind of #healthdata do we have?
🔗 Interested? Register now! quantumproject.eu/event/quan…
#PatientEngagement #EHDS #DataQuality
📭 Missed the latest QUANTUM newsletter?
📰 Catch up here: quantumproject.eu/the-3rd-qu…
✅ And make sure you don’t miss the next one — subscribe here! preview.mailerlite.io/previe…
😊 Join us for the first session of the QUANTUM Patients & Citizens Forum online series!
📅 March 25, 2025
🕑 14:00–15:00 CET
💬 Session 1: What kind of #healthdata do we have?
🔗 Interested? Register now! quantumproject.eu/event/quan…
#PatientEngagement #EHDS #DataQuality
Our coordinator, Enrique Bernal Delgado was presenting the first outcomes of QUANTUM today at the General Assembly of the #EHDS Community of Practice for secondary use, taking place in Malta.
🔎 Discover the QUANTUM outcomes, now accessible online! quantumproject.eu/deliverabl…
🙋♂️ Meet us at the #HealthDataSummit in Brussels! The event is organised by our partner @iHD_HealthDat with a strong focus on #healthdata quality.
📌 The event includes a keynote from our coordinator Enrique Bernal Delgado, as well as a QUANTUM workshop!
ℹ️ i-hd.eu/hds2025
📹 Watch the recording of the first meeting of the QUANTUM Consortium’s “Data Label Supporters” patients and citizen community.
💡 QUANTUM aims to enhance the quality and trustworthiness of health data in Europe by developing a ‘Data Quality Label’.
youtu.be/fLC07QDKKQs?feature…
The objectives of this first meeting were to:
🔹Start getting in touch with a patients and citizen community, open to anyone interested in improving #healthdata quality, and to know more about QUANTUM.
🔹Meet the team behind QUANTUM and connect with like-minded stakeholders.
✨New year, stronger #healthdata! Let’s continue driving health and research innovation across Europe!
🎉Wishing everyone a happy and impactful 2025!
🎯 This year, we’ll publish the first project results, which will also be showcased at several events. Stay tuned!
🔬 #Healthdata isn’t just numbers—it’s knowledge to be unlocked. When reused for #research, high-quality data powers impactful discoveries and better care for all!
🗓️ Join our event tomorrow to explore the future of #dataquality in the #EHDS!
👉 quantumproject.eu/event/join…
💡 Reusing #healthdata for #research drives medical breakthroughs: better treatments, diagnostics, and disease prevention.
🩺 High-quality data can transforms patient care!
🗓️ Join the QUANTUM patient & citizen community event on Dec 10 to learn more!
👉 quantumproject.eu/event/join…
