We are a charity aiming to raise awareness and support people affected by ocular melanoma.💙 Contact our helpline on 📞 0300 790 0512
United Kingdom
Joined September 2012
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but we're still here for you. 💙
Follow us on Facebook and LinkedIn for updates, support, and stories from the OM community:
📘 facebook.com/OcularMelanomaU…
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Let’s stay connected.
#OcularMelanoma #EyeCancer #OcularMelanomaUK
After years of campaigning, we’re incredibly pleased NHS England is reviewing chemosaturation treatment.
Huge thanks to the people, doctors & supporters who’ve pushed for this, your voices have truly made a difference.
Gill Dummigan,💯reporting @BBCNews bbc.co.uk/news/articles/cewg…
The SMC has not approved tebentafusp for metastatic uveal melanoma on the NHS in Scotland.
We’re working with @Immunocore, @MelanomaFocus, @SMC_Updates and our members to push for access – just as we did in England.
📞 0300 790 0512
📧 helpline@omuk.org
If you're in Scotland and this decision affects you and your clinician believes tebentafusp could help, they can still request to prescribe it. All Scottish health boards have systems in place for this.
scottishmedicines.org.uk/med…
Today is an excellent day! We are incredibly pleased to share the news that NICE has overturned its previous decision and is now recommending that people with metastatic uveal melanoma who are HLA-A*02:01-positive should receive Tebentafusp on the NHS.
omuk.org/tebentafusp-update/
We are also shocked @AXAUK disregarded medical advice.
We’ve been campaigning for AXA to cover claims for #Chemosat after they denied treatment for people with #OcularMelanoma despite good evidence and letters of support from doctors. @BBCNews @MartinSLewis @GMB @livelifecarol
Woman with brain injury faced insurance refusal bbc.in/3B6Pwuc
This shows why we feel patients should receive treatment. pmc.ncbi.nlm.nih.gov/article…
In the trial of 91 people who received treatment, 7.7 had a complete response, 28% had a partial response and 37.4% got stability, which in uveal melanoma, is simply incredible. @DelcathSystems
Exciting News!
We're thrilled to share that OcuMel UK is evolving into Ocular Melanoma UK!
Our dedication to supporting everyone affected by ocular melanoma remains as strong as ever. Stay tuned for more updates & our refreshed website!
#OcularMelanomaUK #OcularMelanoma #OMUK
"These friends may not have known what to say, but they certainly knew what to do. A few days before my surgery, they whisked me off to buy the darkest, most glamorous sunglasses with thick arms." thetimes.com/article/b344cb3…
“If you turn on the TV,there was no woman,at all,visible,that had an imperfection.There I was in 93 coming out with an #EyePatch having a lazy eye”. @GabrielleUk does the thing she loves,singing!
Life’s tough for our OMies, but we get through & 🤞 have a blast while doing so ❤️
Happy Saturday! Look at these smiles! @jamesmartinchef is back in the kitchen and serving up a feast of delicious food for singer @GabrielleUk, and there are recipes from chefs @CorrigansFood and @NickNairn! 9.30am @ITV
Glad to see our CEO and @useMYdata member, Jo Gumbs bringing the rare cancer voice to the discussions.
Can AI add value?
Yes, we are sure it can, but we need to do things differently for AI to also help people with #RareCancers.
💡How much added value do AI tools have for patient benefit? Join the debate with our co-chairs @markowetzlab (@CRUK_CI) & patient advocate Jo Gumbs and speakers @CataVallejosM (@EdinburghUni) & @cwcyau (@UniofOxford) at our #CRUKDataConf24 (AB)
ALT Debate session at the data-driven cancer research conference
Dad saying 'there's something in my eye' given year to live liverpoolecho.co.uk/news/liv…
#Chemosaturation #OcularMelanoma
Patient from Glossop talks to the BBC about fundraising for Chemosaturation.
Craig Shore, a 52-year-old gentleman whose #OcularMelanoma cancer has spread to his liver, requires a ground-breaking treatment called #Chemosaturation.
To read more, click 👇
ocumeluk.org/articles/14299/
On #WorldCancerDay2024 we’d like to thank everyone who has supported our OM community.
Together we’ll change the landscape for people with #OcularMelanoma by uniting the wider community, so people receive the support, information, & treatment they need to live well for longer.
Thank you to everyone who has supported our Cycle Around the World campaign. Your support will allow us to be able to improve the well-being of people with ocular melanoma cancers.😊
ocumeluk.org/cycle-around-wo…
#Cancer #OcularMelanoma
Thank you to everyone who has supported our Cycle Around the World campaign. There is still time to join the campaign and help us raise £70,000 to fund our wellbeing programme. Good well-being can decrease the risk of disease, illness, and injury.😊
ocumeluk.org/cycle-around-wo…
Will you join our Cycle Around the World campaign, to help us raise £70,000 to fund our wellbeing programme? We aim to help support people with ocular melanoma cancers by giving them the skills to manage relaxation, fatigue and more.
ocumeluk.org/cycle-around-wo…
#MentalHealth
Gemma has raised over £100 for her London Marathon fundraiser. She is fundraising in honour of her friend Sally, who recently got the devastating news that her cancer has spread to her liver and is not curable. Will you help Gemma meet her goal of £500?😊bit.ly/3NaxOc5