NDSS is creating a world where individuals with Down syndrome thrive.

Washington, D.C.
Joined May 2010
We're thrilled to announce that NDSS is an official charity partner of the Sanlam Cape Town Marathon, the 8th Abbott World Marathon Major and the first Major ever in Africa!🥇 Find race details and apply to run with #TeamNDSS at ndss.org/cape-town-marathon
1
1
888
National Down Syndrome Society retweeted
What does person-centered care really look like for adults with Down syndrome? Look beyond patient differences to collaborate with caregivers, navigate life transitions and apply communication strategies that enhance interactions. @NDSS #DownSyndrome spr.ly/6011BEfMNh
1
228
National Down Syndrome Society retweeted
Why are sleep disorders so prevalent in adults with Down syndrome? @NDSS explores the causes of obstructive sleep apnea and other sleep disorders that often go undiagnosed. Get diagnostic testing and treatment tips to promote better rest and health. spr.ly/6017BEfPIN
1
1
190
National Down Syndrome Society retweeted
🚨🚨New Content Provider Alert!🚨🚨 We're thrilled to offer education from @NDSS. Explore foundational knowledge and current best practices on managing health conditions in adults with Down syndrome. #CME amaedhub.org/4uCykCP
1
208
CARE Down Syndrome is now featured on @AMAEdHub, the American Medical Association’s online learning platform.
2
3
5
921
CARE Down Syndrome is an initiative from NDSS that empowers healthcare professionals with knowledge and resources to meet the unique healthcare needs of adults with Down syndrome to help support informed, high-quality care.
1
1
4
636
The education featured on @AMAEdHub includes free, CME-accredited content covering key topics such as Alzheimer’s disease, mental health, and other common health conditions. Be sure to share, visit AMA Ed Hub and enroll in CARE Down Syndrome today! edhub.ama-assn.org/national-…
1
1
292
When receiving a Down syndrome diagnosis, 61% of parents reported experiencing negative bias about Down syndrome from medical providers, while fewer than 40% said they received accurate, current, and balanced information from their doctor.
2
9
15
1,129
We, alongside other advocacy organizations, are working to improve the way that diagnoses are delivered, which includes healthcare professionals providing accurate, evidence-based information in a sensitive and informed way.
4
6
12
534
We encourage anyone looking for more information on Down syndrome across the lifespan to visit ndss.org/lifespan/understand… or utilize our helpline at 800-221-4602 and info-box at [email protected].
1
2
4
178
We attended the In Motion, In Community: Wellness for People with IDD/A and their Supporters! With support from the @eaglesautism Community Grant Award, the @TJUHospital FAB Center for Complex Care launched their wellness initiative & gave each attendee an NDSS 321go! Fitness Kit
1
1
347
The deadline to submit a photo for the 2026 NDSS Times Square Video Presentation is June 4! Submit at pci.jotform.com/form/2601944…
1
2
3
449
On Tuesday, June 2 at 10 AM ET, NDSS is hosting a meeting with the U.S. Food and Drug Administration (FDA) to discuss Down syndrome-associated Alzheimer's disease (DS-AD). Get meeting details and learn how you can make an impact during this meeting at ndss.org/el-pfdd
1
4
4
420
NDSS is honored to support self-advocates with Down syndrome in pursuing their goals, whether it’s starting a business, continuing education, or following a personal passion. 🚨 Apply by Friday, May 22 at ndss.org/scholarships.
5
225
We are proud to announce that NDSS will honor Congresswoman @EleanorNorton with the NDSS Lifetime Impact Award on May 13 following our Down Syndrome Advocacy Conference! We are grateful for her years of service advocating for the Down syndrome and broader disability community.
3
4
2
19
2,533
Photo courtesy of Global Down Syndrome Foundation
95
National Down Syndrome Society retweeted
So great to be back with my good buddy Evan Rothholz from Harleysville today! Evan is a 9th grader in the Souderton Area School District, Nationals super fan, and one of the most thoughtful, joyful, and wise people I know. We may never agree on baseball, but when it comes to making a difference, we are always on the same team. Evan is in town for the @NDSS Advocacy Conference, doing what he does best—leading with positivity and purpose. Since we first met in 2017, he has become more than a friend, he is my Chief Advisor in our mission to uplift our Down syndrome and broader disability community. Together, we have championed inclusion, expanded access to education and employment opportunities, and pushed for stronger support, research, and policies that truly change lives. Our focus today was two, deeply connected urgent priorities: the ability to build a secure life and the opportunity to reach one’s full potential. That means modernizing SSI through my bipartisan, bicameral SSI Savings Penalty Elimination Act, so low-income seniors and people with disabilities are no longer punished for saving responsibly or planning for a more secure future. And it means finally fulfilling America’s promise under IDEA. For generations, IDEA has helped open classroom doors for students with disabilities, but Washington has never met its commitment to cover 40% of special education costs. My IDEA Full Funding Act would require steady annual increases until that promise is kept. To our special needs families, educators, and disability community: we are in this together. I will never stop fighting for Evan, families like his, and the brighter future he inspires every single day.
3
3
1
17
1,228
National Down Syndrome Society retweeted
Honored to meet with advocates from @NDSS this afternoon. I will continue fighting to protect special education and advocate legislation to support people with Down syndrome.
4
4
12
1,040
Let’s learn from the lived experiences of people with Down syndrome and work to create a more inclusive, equitable, and respectful world. 💙💛
4
14
1
9
664
Click the link below to use our action alert to urge your members of Congress to pass the Words Matter Act and the Words Matter for D.C. Courts Acts. #JustEvolve ndss.quorum.us/campaign/1574…
1
4
1
7
366