scientist and MD, aiming to bring novel strategies to fight kidney disease from basic research to the clinic with a focus on dietary and metabolic interventions
Joined April 2021
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🚨 Big news from our Genes&Kidney Working Group at the @ERAkidney
We just released a consensus statement in Nephrology Dialysis Transplantation aiming to bring us closer to precision medicine in CKD. 🧬🩺
🧵 THREAD 👇
🚀 Hot off the press in npj Digital Medicine: MEDA-PKD!
Can we turn years of clinical data into better, personalized care for ADPKD?
@UKKoeln @CECAD_ Heinrich-Heine-Universität Düsseldorf Universitätsklinikum Düsseldorf Uni Köln
@PKD_Int
📖 nature.com/articles/s41746-0…
🔬 Why does this matter?
ADPKD progression varies. MEDA-PKD helps explore disease trajectories and real-world treatment responses, including tolvaptan.
In an initial evaluation, it reduced preparation time for treatment counselling by ~72%!
🎥 doi.org/10.18716/cecad/adpkd…
💡 Our bigger vision: a learning healthcare system where clinical care and research continuously inform each other.
Proud of our fantastic interdisciplinary team in Cologne & Düsseldorf!
🌐 Explore MEDA-PKD yourself:
doi.org/10.18716/adpkd_regis…
#ADPKD #DigitalHealth #openaccess
Roman-Ulrich Müller retweeted
🧵 🌍 A new milestone for the STOP-PKD Study.
@FPuigvert has officially become the first active STOP-PKD trial site in Spain. This is an important step forward for the study and for the international effort to advance research in ADPKD.
Roman-Ulrich Müller retweeted
🧵🧪 STOP-PKD study | Five additional trial sites successfully initiated
The STOP-PKD study continues to expand its network across Europe, with five additional trial sites now successfully initiated in the Netherlands, Germany and Austria.
Roman-Ulrich Müller retweeted
🧵 (4/4) 🌍 The addition of new trial sites further strengthens international collaboration and expands the study’s reach across Europe.
🔗 Learn more:
stop-pkd.de/en
#PKDInternational #ADPKD #STOPPKD #PKDResearch
@FLAVIAZH
@MuellerRom
Roman-Ulrich Müller retweeted
🧵On 14 September 2026, Düsseldorf will host the PKD Symposium 2026, a hybrid event dedicated to people living with PKD, their families and caregivers, and anyone interested in learning more about the latest developments in research and care.
Roman-Ulrich Müller retweeted
An iterative training approach, the expert-guided annotation loop, for efficient reference standard medical image segmentation doi.org/10.1148/ryai.250200 @MuellerRom @SL_Radiology #CostAnalysis #MRI #MachineLearning
Roman-Ulrich Müller retweeted
🧬Cutting-edge developments in diagnosis, genomics, and personalised management of genetic kidney diseases 👇🏼👇🏽👇🏾
Listen to our Head of #Nephrology Dr. Lluís @guiradoperich explaining how the upcoming edition of the triennial FundacióPuigvert's Nephrology Course #29NefroPuigvert has been designed as an intensive and highly interactive meeting, bringing together the latest advances in the rapidly evolving field of inherited & genetic kidney disorders.
🟢REGISTRATIONS OPEN: fundaciopuigvert.org/feature…
We are looking forward to meeting you on November 23-24, either #online or in #Barcelona, at the beautiful venue of @santpaubcn Modernist Site!
#GeneticKidneyDiseases #CKD #Alport #Tubulopathies #RareDiseases
Unterstützung im Direktions- und Oberarztsekretariat gesucht!
Eine herausragende administrative Organisation ist die grundlegende Voraussetzung für eine wissenschaftliche starke Nephrologie an einem Universitätsklinikum.
uniklinik-duesseldorf.de/aus…
uniklinik-duesseldorf.de/aus…
Great opening: professorship on data science in kidney disease and transplantation. The next steps towards targeted treatment in nephrology will largely depend on data science. Looking forward to working on this together with outstanding colleagues.
bit.ly/3TlscBM
Embedded between clinician-scientists, molecular research labs at the Nephrology Department and the data science research environment of the Center for Digital Medicine (zdm.hhu.de/en/) this group will make a central contribution to the kidney disease field.
Interested in working on RNA-biology in human disease? We can offer a PhD student position in a great team. Looking into RNA-modifications as a driver of polycystic kidney disease
lnkd.in/e7R6QRiB
Thanks @gunnar_heine …and your channel continues to spread the word on the most important news. This is great teamwork. And so important for the kidney disease field.
Indeed you contributed substantially, @MuellerRom!
youtu.be/RzupTGtHs8g?is=gvNT…
youtu.be/9e-UFBnIyDI?is=oong…
Roman-Ulrich Müller retweeted
🧵 🧬 KDIGO 2025 ADPKD Guideline | Vascular manifestations
📄 Read the full article: academic.oup.com/ndt/advance…
#KDIGO2025 #ADPKD #PKDInternational
@ERAkidney
The fact that primary hyperoxaluria is the first kidney disease for which an RNA therapeutic has become available is a milestone for the field.
How does this change the treatment landscape? 🧵
A recent survey study performed by the @ERAkidney WG Genes&Kidney addresses this question and highlights how current recommendations are implemented in real-world care.
academic.oup.com/ckj/advance…
Roman-Ulrich Müller retweeted
🧵🧪 STOP-PKD study | Expanding recruitment across Europe : stop-pkd.de/en
The STOP-PKD study continues to expand, marking an important step forward for ADPKD research in Europe.
