We encourage you to continue engaging with us here, where we can still share resources, stories, and updates.
Thank you for being a part of the cysticfibrosis . com community!
Wishing you all the best in health and happiness,
From all of us at cysticfibrosis . com
In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.
While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.
Important Update: Website and Forum Closure
To our valued community,
We wanted to let you know that cysticfibrosis.com is no longer active & has been closed.
Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award!
To read more, click here: bit.ly/3NTThpJ
Watch the recording here: youtube.com/@CysticFibrosisF…
#CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC
From the archives of the 1990's - Oh how far we've come!
Do you have interesting articles to share?! Let us know!
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#CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives
In addition to oral food and supplements, sometimes extra help is needed by tube feedings
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Vitamins, minerals, and supplements are important
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Caring for bone health
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth
Food is fuel!
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Supplemental oxygen may be necessary as CF progresses.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Sometimes it is necessary for someone with CF to get a lung transplant.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation
Chronic illness takes its toll.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital!
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
CF does not impact only one system. There are several comorbidities associated with it.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
We remember and honor those who gave the ultimate sacrifice today and every day.
#MemorialDay
