ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark
Warwick Medical School, UK
Joined June 2013
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So excited to be joining Nuffield Council on Bioethics as a new council member
nuffieldbioethics.org/news-b…
New Paper: Remote data collection in qualitative health research, a realist informed review journals.sagepub.com/doi/10.…
Do you have a child diagnosed with SMA in the last three years? If so we'd like to hear your views on SMA newborn screening. Details:
smauk.org.uk/advocacy/univer…
Newborn screening: why clear communication matters as testing expands theconversation.com/newborn-… via @ConversationUK
Come and join us :D
📣Save the Date📣our next SERG meeting will be on June 22nd at University of Oxford. Speakers include Dr Susie Weller and Dr Michelle Peter. Hybrid options available. Register here: warwick.ac.uk/serg/registerj…
New paper: Psychosocial implications, acceptability and ethics of screening for paediatric type 1 diabetes: a systematic review and mixed methods evidence synthesis
link.springer.com/article/10…
Wonderfully thoughtful piece on the social and ethical implications of screening for type 1 diabetes by @mj_randell jmepb.bmj.com/content/2/2/e0…
New paper from our team: views of the UK public, families and adults living with SMA, health professionals and families offered screening towards newborn screening for SMA @SMA_NBSalliance @SMA_UK_ @Corinna_Clark_ nature.com/articles/s41431-0…
📢New paper 📢Mapping the benefits and harms of antenatal and newborn screening prog... sciencedirect.com/science/ar…
Felicity Boardman talking about ethical considerations in newborn screening programmes @ Adelphi Genetics Forum Oct 25 youtu.be/GxPzKcZr9ww?si=Ph-m… via @YouTube
📢new paper involving the If team 📢bmjmedicine.bmj.com/content/…
📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library onlinelibrary.wiley.com/doi/…
📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢
onlinelibrary.wiley.com/doi/…
📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies onlinelibrary.wiley.com/doi/…
So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics
nature.com/collections/jiagg…
How to use the QRDC guidance for remote qualitative studies 👇
What is the QRDC guidance and how could it help you design your remote qualitative study? See here: warwick.ac.uk/fac/sci/med/re…
New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: doi.org/10.1038/s41431-024-0…
New paper: comparing in-person and remote qualitative data collection @JulieRoberts12 @sophie_stan2 @Corinna_Clark_ @fegriffiths
📣New paper from QRDC project 📣“Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion: A Scoping Review” is now published and is available at doi.org/10.1177/160940692513…
New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. preprints.jmir.org/preprint/… #digitalhealth via @jmirpub