@EDIFYresearch

Join us in transforming the public perceptions, policy and practice surrounding #eatingdisorders through innovative research.

edifyresearch.co.uk
Joined October 2021
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EDIFYresearch retweeted
EDGI UK
@edgi_ukSep 22
We're now welcoming people under 16 to take part in our research. If a young person consents, and their parent or caregiver provides assent, they can now join the study. Together, we can: ✅ Help improve treatments ✅ Understand who's most at risk ✅ Learn more about the experiences of young people Together with your help, we can help beat eating disorders. #EDGIUK #EatingDisorderResearch #Under16 #YourVoiceMatters
EDGI Under-16 Recruitment Leaflet, page 1. Teal and orange NIHR BioResource poster reading 'edgi@kcl.ac.uk — Do you have concerns about your child's eating habits?' Text explains that eating disorders like Bulimia Nervosa, Binge Eating Disorder, ARFID and Anorexia Nervosa can affect people of all ages, and invites children to join research into genetic and environmental risk factors. A photo shows a man and three children sharing food at a table. Eligibility criteria listed: parental consent, UK resident, aged 8 or above, and has ever experienced an eating disorder (no clinical diagnosis required). Beat and EDGI (Eating Disorders Genetics Initiative) logos shown.

ALT EDGI Under-16 Recruitment Leaflet, page 1. Teal and orange NIHR BioResource poster reading '[email protected] — Do you have concerns about your child's eating habits?' Text explains that eating disorders like Bulimia Nervosa, Binge Eating Disorder, ARFID and Anorexia Nervosa can affect people of all ages, and invites children to join research into genetic and environmental risk factors. A photo shows a man and three children sharing food at a table. Eligibility criteria listed: parental consent, UK resident, aged 8 or above, and has ever experienced an eating disorder (no clinical diagnosis required). Beat and EDGI (Eating Disorders Genetics Initiative) logos shown.

EDGI Under-16 Recruitment Leaflet, page 2. Heading: 'What is the Eating Disorders Genetics Initiative (EDGI) UK?' Explains the study aims to understand genetic and environmental risk factors for eating disorders. A four-step 'How to join EDGI UK' grid: Register (email edgi@kcl.ac.uk), Consent (parental consent and child's assent), Online Questionnaire (about 30 minutes, covering health, lifestyle and eating behaviours), and Send a saliva sample (by freepost or a blood sample in clinic). Contact details: edgi@kcl.ac.uk, 0800 917 6016, @edgi_uk on social media, part of NIHR BioResource.

ALT EDGI Under-16 Recruitment Leaflet, page 2. Heading: 'What is the Eating Disorders Genetics Initiative (EDGI) UK?' Explains the study aims to understand genetic and environmental risk factors for eating disorders. A four-step 'How to join EDGI UK' grid: Register (email [email protected]), Consent (parental consent and child's assent), Online Questionnaire (about 30 minutes, covering health, lifestyle and eating behaviours), and Send a saliva sample (by freepost or a blood sample in clinic). Contact details: [email protected], 0800 917 6016, @edgi_uk on social media, part of NIHR BioResource.

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📣NEW PAPER📣 Our latest qualitative paper, led by Carina Kuehne, explored how remote monitoring through smartphones and wearable devices can influence eating-, exercise- and weight-related experiences among people with lived experience of, or at risk of, an eating disorder (ED).
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✨ Remote monitoring was not inherently helpful or harmful. The findings highlight the need to balance autonomy with safeguards, including careful device selection, limits on potentially triggering data and clear communication. @kingsedresearch @bskinc @KingsIoPPN @MaudsleyNHS
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@beatED @UKRI_News @EdinburghUni
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UK and Ireland Speech Workshop aims to bring together researchers in the Speech Science and Speech Technology community. The workshop is an opportunity to share research in the community. Register for UKIS Workshop on 22-23 June at King's College London: sites.google.com/view/ukis20…
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This year at #UKIS you can join a tutorial session (24 June) for students, on current advances in #speechtechnologies for healthcare + a hands-on session on feature extraction, modelling, and analysis. More info: sites.google.com/view/ukis20… Register: estore.kcl.ac.uk/conferences…
UKIS tutorial

ALT UKIS tutorial

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My character designs for an animation for @EDIFYresearch and Woven Ink design studio. This animation looks at how experiences of ethnicity and culture impacts living with and recovering from an eating disorder
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We’re hoping to reach more young men as still a few spots available for interviews. Please share widely! Link for screening survey: qualtrics.kcl.ac.uk/jfe/form…
EDIFYresearch@EDIFYresearchFeb 2
📢 Call for Male Participants aged 16-25 Male experiences are often under-represented in the eating disorder research, and we want to change that.
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Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study | BJPsych Open | Cambridge Core - cup.org/48JUivf

Exploring career concerns and opportunities for UK-based early career researchers working in the...

Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study - Volume 12 Issue 3

cambridge.org
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EDIFYresearch retweeted
Beat@beatEDMar 10
Big changes such as going to university can be difficult to navigate, especially being away from familiar settings if you've been affected by an eating disorder. So, we are joining Student Minds and UMHAN this #UniMentalHealthDay to let you know that you are not alone 💜
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📣NEW PAPER📣 Recently published work, led by Callum Bryson, explores food insecurity experiences in people with lived experience of an eating disorder, including their perspectives on seeking help for their food insecurity and suggestions for improving clinical guidance.
A green banner showing the details of the paper. It has the logo of the journal in the top left corner, a QR code to the paper in the top right, and the details below. Title: "Food insecurity in individuals with eating disorders: a UK-wide survey of impact, help-seeking, and suggestions for guidance." Authors: Callum Bryson; Jessica Wilkins; Basak Ince; Amelia Hemmings; Carina Kuehne; Daire Douglas; Matthew Phillips; Helen Sharpe; Ulrike Schmidt Published in Nutrients 2026, Volume 18, Issue 5, 852

ALT A green banner showing the details of the paper. It has the logo of the journal in the top left corner, a QR code to the paper in the top right, and the details below. Title: "Food insecurity in individuals with eating disorders: a UK-wide survey of impact, help-seeking, and suggestions for guidance." Authors: Callum Bryson; Jessica Wilkins; Basak Ince; Amelia Hemmings; Carina Kuehne; Daire Douglas; Matthew Phillips; Helen Sharpe; Ulrike Schmidt Published in Nutrients 2026, Volume 18, Issue 5, 852

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The paper finds that food insecurity exacerbates eating disorder symptoms and hinders patients' recovery efforts. Moreover, there is an urgent need to provide clinicians with resources and training to help manage food insecurity in ED care. Read more here: mdpi.com/2072-6643/18/5/852

Food Insecurity in Individuals with Eating Disorders: A UK-Wide Survey of Impact, Help-Seeking, and...

Background/Objectives: Food insecurity (FI) is significant and increasing in the UK’s general population. Previous research has linked FI to disordered eating and obesity, yet most of this research...

mdpi.com
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Dr Heike Bartel and Dr Tamsin Parnell are leading a virtual workshop today exploring the relationship between social media, eating disorders, and online safety. #eatingdisordersawarenessweek #EDAW @beatED @ConsiderMaleEDs
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Session 3: Online Communities and Beyond – problems, perspectives & possibilities and how they relate, focussing on: Online community-building, diverse representation and hope. Speakers: Chair: Tamsin Parnell, George Mycock, Kai Thomas, Meg Humphries, Muneera Hussaini, Helena Quainton

ALT Session 3: Online Communities and Beyond – problems, perspectives & possibilities and how they relate, focussing on: Online community-building, diverse representation and hope. Speakers: Chair: Tamsin Parnell, George Mycock, Kai Thomas, Meg Humphries, Muneera Hussaini, Helena Quainton

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Final reflections, Chair: Tamsin Parnell, George Mycock, Paula Saukko, Rebecca Regler, Daniel Magson. The importance of open conversations between people with lived experience, researchers, clinicians and policy makers to inform support, and safe social media communities.

ALT Final reflections, Chair: Tamsin Parnell, George Mycock, Paula Saukko, Rebecca Regler, Daniel Magson. The importance of open conversations between people with lived experience, researchers, clinicians and policy makers to inform support, and safe social media communities.

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Session 1: Eating Disorders and Social Media – What Healthcare Professionals Need to Know. Focussing on the interconnection between social media and eating disorders - including knowledge sharing and how to navigate this space safely. Speakers: Chair: Heike Bartel, Rebecca Regler, Vanessa Yim, Daniel Magson, Tom Rebair

ALT Session 1: Eating Disorders and Social Media – What Healthcare Professionals Need to Know. Focussing on the interconnection between social media and eating disorders - including knowledge sharing and how to navigate this space safely. Speakers: Chair: Heike Bartel, Rebecca Regler, Vanessa Yim, Daniel Magson, Tom Rebair

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