We are the expert, guiding voice for life after spinal cord injury, supporting 105,000 people with SCI and their families to live a fulfilled life in the UK
Milton Keynes
Joined May 2009
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- Following3.7K
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For #SpinalCordInjuryAwarenessDay2026 we're asking you to write to your MP. Share your experiences of how fragmented the system already is, and your concerns about what will happen to the SCI community. Download a template letter from our website spinal.co.uk/news/keep-it-to… #SCIAD26
Today SIA joined @DementiaUK and all of our fellow charities to deliver the petition calling on the Government to fix NHS continuing healthcare funding once and for all.
Thank you to everyone who signed and shared the petition 💙 #FixTheFunding
You signed. You shared. Today, we delivered. 📫📨
Alongside 13 other charities, we took 26,451 signatures to @DHSCgovuk and called for an urgent review of #NHSContinuingHealthcare.
Families affected by #dementia have waited too long for better care and support. Now, we need the Government to act. #FixTheFunding
ALT A person holds a box labeled with a message to Yvette Cooper MP, highlighting a demand from 26,451 people to address NHS continuing healthcare funding. The box also features a blue sticker saying "NHS Continuing Healthcare - Fix the funding." The background shows historic architecture, with people walking and carrying umbrellas.
ALT A group of people stand outside near the Elizabeth Tower (Big Ben) in London, holding signs about dementia and Huntington's disease awareness. Some individuals hold large cards with text, while others have umbrellas. The weather appears cloudy.
SIA welcomes @transportgovuk announcement of stronger safeguards for disabled air passengers, and better training for airline staff. The accessibility improvements come from the Aviation Accessibility Implementation Group, chaired by Baroness @Tanni_GT
spinal.co.uk/news/sia-welcom…
📰 'People who have been paralysed following life-changing spinal cord injuries due to cancer are reporting lack of care and feeling abandoned after their cancer treatment'
READ MORE: spinal.co.uk/news/people-wit…
Spinal Injuries Association retweeted
BPF has joined a coalition led by the Spinal Injuries Association @spinalinjuries calling on the Government to use the Health Bill to safeguard care for people with rare and complex conditions (like PPS).
We’re asking for national commissioning where services need it, enforceable national standards, proper oversight, and transparent reporting to Parliament, so that where you live doesn’t decide the care you receive.
#SpecialisedServices #HealthBill #NHS #Polio
Spinal Injuries Association retweeted
I got a power wheelchair, but as a private renter in an inaccessible home, it made me feel more disabled dlvr.it/TVwb08 #ukhousing
Spinal Injuries Association retweeted
Some expertise comes from training. Some comes from living it.
Lived experience can challenge assumptions and offer professionals a different understanding of SCI.
It'll be part of the conversation at our @spinalinjuries event on 12th November.
🎟️ forms.cloud.microsoft/e/Pkvd…
Spinal Injuries Association retweeted
Great to be in the @editorNRTimes magazine (p32) talking with @spinalinjuries about the tricky nature of negotiating a new power chair in a rented space. #SpinalCordInjury #PowerChair
flipsnack.com/8EB596BBDC9/nr…
It's Cauda Equina Awareness Day (shout-out to Cauda Equina Champions Charity) and today we're talking about Deryck's story⬇️
youtu.be/rBiECVCPid8
It's Cauda Equina Awareness Day (shout-out to Cauda Equina Champions Charity) and today we're talking about Deryck's story⬇️
spinal.co.uk/reclaiming-my-l…
💬'The earlier people get to specialist rehabilitation, clinical support, peer support, advocacy, specialist nurses - the better the outcome.'
Find out more about the support we provide⬇️
spinal.co.uk/get-support/
To read the letter and learn more about SIA’s work, please visit our website:
spinal.co.uk/news/charities-…
🗣️Protect Specialist NHS Services
Today 33 organisations, Parliamentarians, and people with lived experience of long-term conditions and disabilities have written to the Prime Minister to raise their concerns that specialist NHS services aren’t protected in the Health Bill⬇️
ALT Letter to PM
ALT Letter to PM
ALT Charity logos
If you caught BBC Breakfast at the weekend you will have seen our VP @MartinHibbert championing SIA and highlighting why it's so important that we reach every newly injured person⬇️
Spinal Injuries Association retweeted
Nicholas Young and Liz Davies share key reflections from the @spinalinjuries Rebuilding Lives Conference.
They also examine gaps in support for those with cauda equina syndrome.
Read here: bit.ly/4yaidxO
Fix NHS continuing healthcare and sign the petition today action.dementiauk.org/fix-nh…
Time shouldn’t be spent fighting for care.
But carers and families navigating NHS Continuing Healthcare (CHC) funding face delays, appeals, and a broken process.
There's less than two weeks left to sign the petition to fix CHC. Add your name today: bit.pulse.ly/ftzywnkglx
ALT A bright teal graphic headed "Fix NHS continuing healthcare" with a call to action stating "Sign our petition now..." next to an icon of a black pen. Below this, a white panel displays the logos of several supporting healthcare and charity organizations, including: - Dementia UK - Dementia Carers Count - The Neurological Alliance - Huntington's Disease Association - The Lewy Body Society - British Polio Fellowship - tide (together in dementia everyday) - MND Association - Parkinson's UK - sia (spinal injuries association) - Muscular Dystrophy UK - Carers UK
Spinal Injuries Association retweeted
Final reminder of the deadline today to apply to chair or join the Board of our brilliant charity!
SIA is looking for up to four new Trustees, including its next Chair, to join the Board.
We want to hear from people from different communities, professions and life experiences who can bring their own perspective, judgement and skills to the Board.
publicleadersappointments.co…
Thank you @BBCCWR for shining a spotlight on accessible housing and the many years that disabled people like John are having to wait to get support after after sustaining a life changing injury. Listen again on BBC Sounds bbc.co.uk/sounds/play/m00321… go to 1:40:35 #AccessibleHousing
'Four years after being paralysed, I'm stuck in a prison cell' bbc.in/4zrl073
Spinal Injuries Association retweeted
'Four years after being paralysed, I'm stuck in a prison cell' bbc.in/4zrl073
SIA ON TV 📺 Thank you @BBCSpotlight for featuring David's story on your evening news last night and speaking to our Support Network Manager Gary Dawson about the complexities and uniqueness of spinal cord injury.
Watch now on BBC iPlayer bbc.co.uk/iplayer/episode/m0… (go to 1:11)
