PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.
Washington D.C.
Joined April 2013
- Tweets6.4K
- Following1.4K
- Followers3.7K
- Likes2.1K
Pinned Tweet
Gerry lives with PBC in Ireland. He struggles to access newer therapies available in the U.S. Why would the U.S. model European health care delays and denials? #MFNHurtsPatients #ValueOurHealth
The experiences of patients internationally speaks for itself. Reference to international prices has negative implications for access & disability discrimination. Learn more here. pipcpatients.org/uploads/1/2…
We convened @pipcpatients to center health care on achieving outcomes that matter to patients, people with disabilities and older adults in an evolving healthcare system. Learn more here. pipcpatients.org/uploads/1/2…
49
Partnership to Improve Patient Care (PIPC) retweeted
Evidence clear international drug pricing means delayed & denied access to care for rare disease patients. Read #ValueOurHealth paper providing policy lessons from UK’s System, alongside co-authors at United Liver, @speakfoundation & @CFRI_CureCF. cfri.org/wp-content/uploads/…
Partnership to Improve Patient Care (PIPC) retweeted
Glad to be at the @RareDiseases Summit for some Breaking News.This morning I attended the Rare Disease Regulatory Roundtable, moderated by @ComstockRi54463 Assoc. Director of the FDA rare disease hub. Guest speaker #karimMikhail made an announcement about individual gene therapy. He is Director of CBER. Watch it here! Very exciting! @FDA @DCOfficial #science #innovation
Having a patient “at the table” is not enough. Patient perspectives must meaningfully shape the evidence, deliberations and coverage decisions that determine whether people can access the care they need.
1
1
74
Partnership to Improve Patient Care (PIPC) retweeted
The GLOBE Model finalized today imports QALYs. Call it a benchmark or a threshold, a price or reimbursement, it’s still using the QALY-based values from other countries in Medicare. #ValueOurHealth #MFNHurtsPatients pipcpatients.org/news/pipc-s…
The GLOBE Model finalized today imports QALYs. Call it a benchmark or a threshold, a price or reimbursement, it’s still using the QALY-based values from other countries in Medicare. #ValueOurHealth #MFNHurtsPatients pipcpatients.org/news/pipc-s…
Adopting the values of other countries that routinely deny patients access to breakthrough treatments for serious and disabling conditions puts American patients at risk of the same outcome.
1
20
PIPC is deeply concerned about embedding in U.S. policy the use of cost-effectiveness standards like the quality-adjusted life year (QALY), which devalues the lives of people with disabilities and older patients.
1
26
PIPC issued the following statement in response to the Centers for Medicare and Medicaid Innovation (CMMI) finalized the Global Benchmark for Efficient Drug Pricing (GLOBE) model that would impose so-called “Most Favored Nation” drug pricing in Medicare Part B.
Partnership to Improve Patient Care (PIPC) retweeted
Join us for a webinar on 10/14 at 12:00 pm ET w/ @IFAiArthritis @AccessRare @PIPCpatients & @SafeMedicines to explore state Prescription Drug Affordability Boards (#PDABs) and how states, public programs, & health plans approach medication costs. Register: tinyurl.com/4pbz5a57
