International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
Global, based in Amsterdam
Joined June 2014
- Tweets6.9K
- Following4.1K
- Followers4.7K
- Likes7.2K
Why add your voice to the IKCC Global Patient Survey? 💙
Our 2025 survey data shows real global disparities in kidney cancer care:
• 55% face barriers accessing treatment
• 92% in regions like India & Korea face obstacles
• 76% of young adults (18–29) encounter care barriers
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Understanding these challenges helps patient organisations and decision-makers target resources and advocate for real, lasting solutions. 💡✨
If you're a patient or carer, please complete this year’s survey: buff.ly/QFaHn5I
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💙 Why is the Global Patient Survey on Kidney Cancer important?
The 2024 survey showed that patients who felt involved in treatment decisions were more likely to follow their prescribed medication.
Now, we're building on these insights with the 2026 survey.
Take 15 mins to have your say and help improve kidney cancer care: buff.ly/QFaHn5I
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🌍 Two inspiring days in Darmstadt at the #Patient360 Summit 2026, hosted by Merck!
On 2–3 November, patient advocates, caregivers and Merck teams from around the world came together to discuss one important question: how can we turn the patient voice into real action?
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A few key takeaways:
🤖 AI in healthcare – making sure AI truly serves patients
🔬 Decentralised clinical trials – building and maintaining patient trust
💙 Caregivers – recognising the people who are often overlooked in healthcare
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📱 Digital engagement and health literacy – making information meaningful and accessible to patients
A big thank you to the Merck Patient 360 team for creating a space where listening comes first, and to everyone who took part.🙏
#Patient360 #PatientVoice #KidneyCancer
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💙 Join us in recognising 3 IKCC Board members who completed their tenure on 31 Oct.
Dr Michael Jewett, Anne Wilson and Bryan Lewis all impacted the success of IKCC through their professional expertise and personal commitment to improving the lives of people with kidney cancer.
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IKCC Kidney Cancer retweeted
We were represented at this year’s @ESMOcongress which was held in Madrid, Spain. Partner organisations of the @IKCCorg attended the meeting to keep up to date with the care and treatment of #kidneycancer patients.
The take home messages are here:
actionkidneycancer.org/kidne…
IKCC Kidney Cancer retweeted
@IKCCorg's Global Patient Survey helps identify trends, understand evolving patient needs, and recognize where progress has been made and where challenges remain.
And every response matters!
📅 Share your experience before 11/20
bit.ly/IKCC_Kidney_Cancer_Gl…
💙 A kidney cancer diagnosis can bring many questions. The IKCC Kidney Cancer Basics booklet offers a clear introduction to RCC, helping patients understand their diagnosis and medical terms: buff.ly/aqmFkws
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It covers everything from kidney cancer subtypes, stages and grades to treatment options, clinical trials and the healthcare professionals involved in care.
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Join the Cancer Genomic Epidemiology course (15–18 March 2027) at the Wellcome Genome Campus, UK, to explore how genomic and epidemiological research can help us understand cancer causes and inform prevention strategies.
#CAGenEpi2027
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- Nofer Institute of Occupational Medicine (NIOM)
- Maria Sklodowska-Curie National Research Institute of Oncology (MSCNRCO)
- IRCCS Neuromed Mediterranean Neurological Institute (NEUROMED)
- UiT The Arctic University of Norway (UiT)
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