I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

Joined November 2018
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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Our incredible community member Dave Hardin put a fun twist on the Ice Bucket Challenge! Great food, freezing water dumped out of tractors, and funds and awareness raised for ALS. 💙 Join the movement: bit.ly/ALS-next
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Our incredible community member Dave Hardin put a fun twist on the Ice Bucket Challenge! Great food, freezing water dumped out of tractors, and funds and awareness raised for ALS. 💙 Join the movement: bit.ly/ALS-next
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Our advocacy has changed what’s possible in ALS, one small action at a time. Join this movement and help end ALS in a few minutes: (1) sign up for our newsletter, (2) get quick online actions, (3) do them your way. Sign up TODAY: bit.ly/news4ALS
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A NEW STEP FORWARD! 💡 CNM-Au8, a promising @CleneNano therapy available through ACT for ALS-funded expanded access programs, has been submitted to the FDA. If approved, it could reach everyone in the U.S. living with ALS in 2027. People with ALS don’t have time to wait.
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A NEW STEP FORWARD! Clene’s CNM-Au8, available through ACT for ALS-funded EAPs, has been submitted to the FDA. If approved, it could reach everyone in the U.S. living with ALS in 2027. People with ALS don’t have time to wait. We urge a timely review.
A major milestone for Clene: We’ve submitted an NDA to the FDA seeking accelerated approval of investigational CNM-Au8® for ALS. Thank you to the patients, families and partners who helped make this step possible. Read More: invest.clene.com/news-releas…
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Calling ALL ALS Advocates 📢 Small online actions add up to historic wins. With just a few minutes of your time, you can get us closer to a world without ALS! 💙 Become a consented constituent today 👉 bit.ly/ALSconstituents
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Caregivers! You’re invited to two caregiver-led conversations with the I AM ALS community ✨ Getting Started | Nov 4 at 8PM ET bit.ly/NCM-1 Navigating the Journey | Nov 18 at 8PM ET bit.ly/NCM-2 Connect with caregivers who have been there. RSVP today!
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Our powerhouse @nycmarathon runners breezed past their $75,000 goal by over $12,000 and counting, with over 2 weeks left until race day! Support our phenomenal TCS NYC Marathon 2026 team: bit.ly/Marathon-26 (case-sensitive)
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The I AM ALS community’s advocacy work is up for an @anthemawards Community Voice Award, and we need YOUR help to win! A win would help more people impacted by ALS find us. Vote by Oct 29: bit.ly/IAA-Anthem. Find “Push for Progress” and click “Celebrate”!
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The thank yous continue! Volunteers, co-chairs, advocates, friends, and everyone who found us through the petition: you helped get ACT for ALS across the finish line—THANK YOU! 💙 Now thank your lawmakers for standing with the I AM ALS community: bit.ly/A4A-TY
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The I AM ALS community is here to support you through ALS. Need someone to talk to? We have a support group for you. Want 1-on-1 support? We’ll match you with a trained Peer Mentor or Peer Support Specialist impacted with ALS themselves. bit.ly/GetALSSupport
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The Healthy Brains Act would help us better understand the root causes of ALS and other neurodegenerative diseases. Once passed, it will launch the first-ever research program on environmental risk factors. Tell your legislators to support it → bit.ly/HBA-26
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Welcome our first-ever I AM ALS Honorary Board Member: @RebelTanea! “Advocacy for ALS is a major priority in my battle, and I plan to continue to fight the good fight with I AM ALS to find a cure and help others get access to treatment.”—Rebel bit.ly/withrebel
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"He had always been an extremely active man. Despite everything, my father is a man of great faith and has never stopped believing that he will be healed. We are from Toledo, Paraná, Brazil." —Filipe | a family member of someone living with ALS
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Thanks to YOUR advocacy, hard work, and unwavering support, our community’s Push for Progress campaign was chosen out of 2,500+ projects worldwide as a finalist for a 2026 Anthem Award! 🎉 Click “Celebrate” here to vote for I AM ALS: bit.ly/IAA-Anthem
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Dan Tate, Jr. took the stage at ARPA-H’s BIOGAMI kick-off to share the urgency of ALS with researchers. This year, I AM ALS advocated for and helped secure $30M for ARPA-H, and they’re on the fast path to learning more about this category of diseases.
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"ALS has a way of making you feel like a patient. ALS will decide a lot of things. It doesn’t get to decide everything. You can still get joy. You can still laugh. You can still have meaning. You can still make a difference. Still"—Rich | living w/ALS 🔗: bit.ly/RichBaxt
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With @ProtecTomorrows, we are proud to announce the nation’s first-ever ALS Financial Wellness Program! Designed for people living with ALS and caregivers, from health insurance to estate planning. Kicks off Oct 13. Sign up with I AM ALS Peer Support: bit.ly/peerintake
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We asked community members what ACT for ALS means to them. One common thread: hope. 💙 Tell your lawmakers what it means to you: bit.ly/A4A-TY
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Short on time but want to help build a world without ALS? Become a consented constituent today. It's quick, easy, and helps move key ALS legislation forward. Sign up: bit.ly/ALSconstituents
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