@comendcare

The operating system for patient groups

 Toronto
comendcare.com
Joined December 2022
  • Tweets24
  • Following10
  • Followers11
5Media
Day 2 at @GlobalGenes #WeekInRare, and we’re feeling so empowered by the incredible sessions and conversations from leaders, advocates, and changemakers in the rare disease community! #RAREAdvocacySummit
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Check out our Instagram for more highlights from today's event! @comendcare
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We're so happy to be at @GlobalGenes #weekinrare!🦓 Ready to listen, learn, and connect with caregivers, patient advocates, and YOU! ✨Find us for a free sticker, and let’s connect!
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This year, @OsmosisMed is running "Year of the Zebra". Every week will focus on educating the public on a unique rare disease, including a video on their YouTube channel. I guarantee they talk about at least one rare disease you haven't heard of. youtube.com/playlist?list=PL…
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It's Rare Disease Day! “Doctors are taught 'when you hear hoofbeats, think horses not zebras'". But Sometimes the explanation for a condition is indeed a rare disease. Retweet if you believe Zebras DO exist! #rare #awareness #rarediseaseday #caregiving #raredisease
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It is now #RareDiseaseDay across the globe 🌍 📌 Organise and post your event: cutt.ly/98d6NtE ✨ Join the Global Chain of Lights & #LightUpForRare: cutt.ly/zPlxnHb 📖 Share your story: cutt.ly/s8d612W 🔥 Share our resources: cutt.ly/M8d69nH
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DEI In clinical studies is a great first step in moving towards a more equitable healthcare system. We'll see how this might mitigate measurement bias, design more culturally aware studies, and regain some trust in our institutions. nature.com/articles/d41586-0… #Equality #healthcare

FDA to require diversity plan for clinical trials

Nature - US regulatory agency makes ‘big change’ to increase the number of participants from under-represented groups in drug testing.

nature.com
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Tonight, we saw a green CN Tower for World Cholangiocarcinoma Day (February 16th). 🧵(1/3)
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Cholangiocarcinoma, or bile duct cancer, is a rare condition affecting nearly 500 thousand individuals globally. New targeted therapies are coming to market but accessibility poses a barrier - especially here in Canada. Read more here: businesswire.com/news/home/2… (2/3)

World Cholangiocarcinoma Day: Big Challenges for People with a Little-Known Cancer

This evening, the CN Tower in Toronto will shine green for World Cholangiocarcinoma Day, recognizing the hope and challenges people living with this little-k...

businesswire.com
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To learn more and get involved, check out: cholangiocarcinoma.org/ globalccaalliance.com/en/get… #WorldCCADay #PledgeforCCA (3/3)
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According to the CDC, there are about 7 potential caregivers per adult. By the year 2030 that will drop to 4. @gpbnews gpb.org/news/2023/02/07/info… #caregiver #caregiving #Disability #DisabilityTwitter #DisabilityRights #Georgia

Informal family and unpaid caregivers often sacrifice pay, benefits and their own health. Here's why

Many unpaid caregivers leave professional careers or dramatically reduce their hours to help their elders or adult children with disabilities.

gpb.org
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Caregivers are real-life heroes. They tend to our sick and elderly, a physically and emotionally draining job, and rarely get the appreciation they deserve. I've seen this myself and can tell you without a doubt: we owe them our admiration and gratitude. (PS Love you mom)
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Pfizer cutting development of a few orphan drugs sucks, especially amidst record profits from the pandemic. But let's see if their reinvestment strategies pay off! fiercebiotech.com/biotech/rd… #RareDisease #RareDiseaseTruth #rarediseases #Pfizer #Caregiver #caregivers #Caregiving

Pfizer CEO says R&D is the 'lifeblood that fuels us' as spending revs up post-COVID

In the pandemic's third year, Pfizer could do whatever it wanted thanks to billions reaped from the COVID-19 shot Comirnaty and antiviral Paxlovid. | In the pandemic's third year, Pfizer could do...

fiercebiotech.com
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Comend Caregiving -- The Caregivers Behind: Stephen Hawking comend.substack.com/p/the-ca…
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E-caregivers are a thing! Time will tell if they really take off, but @ElectronicCare has launched a caregiving avatar for remote patient monitoring. healthcareitnews.com/news/el…

Electronic Caregiver launches customizable, animated RPM

Designed to provide affordable health monitoring and wellness support at home, the virtual assistant could help providers increase treatment adherence rates and improve health outcomes for aging and...

healthcareitnews.com
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WSJ Highlights the high turnover, low pay, and extra training issues caregivers face in America. We need to continue building awareness! wsj.com/articles/high-turnov… via @WSJ

Caregiver Turnover Strains Households

The supply of home health aides isn’t meeting growing demand as America ages and many people prefer to stay out of facilities. One woman has had seven different caregivers over the past six months.

wsj.com
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Comend Caregiving -- The Caregivers Behind: Muhammad Ali and Parkinson's Disease comend.substack.com/p/the-ca…
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Comend Caregiving -- Caregivers in Fiction: Knives Out comend.substack.com/p/caregi…
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